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Content
November 2024, Volume 17, Issue 6
- 603-617 The Role of Patient-Reported Outcomes to Measure Treatment Satisfaction in Drug Development
by Carolina Navas & Alexandra Palmer Minton & Ana Maria Rodriguez-Leboeuf - 619-634 Stated Preferences of At-Risk Populations for the Treatment of Osteoporosis: A Systematic Review
by Eva-Lotta Hinzpeter & Lakshmi Nagendra & Nadja Kairies-Schwarz & Charlotte Beaudart & Mickaël Hiligsmann - 635-644 The Performance of Kaizen Tasks Across Three Online Discrete Choice Experiment Surveys: An Evidence Synthesis
by Benjamin Matthew Craig & Maksat Jumamyradov & Oliver Rivero-Arias - 645-662 Preferences for Neurodevelopmental Follow-Up Care for Children: A Discrete Choice Experiment
by Pakhi Sharma & Sanjeewa Kularatna & Bridget Abell & Steven M. McPhail & Sameera Senanayake - 663-672 Preferences of Recent Mums in Remote and Rural Areas for Type of Intrapartum Care: A Discrete Choice Experiment
by Luis E. Loría-Rebolledo & Hugo C. Woerden & Helen Bryers & Seda Erdem & Verity Watson - 673-683 Appropriateness of the EQ-HWB for Use in Residential Aged Care: A Proxy Perspective
by Lidia Engel & Cate Bailey & Ekaterina Bogatyreva & Frances Batchelor & Nancy Devlin & Briony Dow & Andrew S. Gilbert & Brendan Mulhern & Rosalie Viney & Tessa Peasgood - 685-696 Patients’ Preferences for Sphingosine-1-Phosphate Receptor Modulators in Multiple Sclerosis Based on Clinical Management Considerations: A Choice Experiment
by Alexander Keenan & Chiara Whichello & Hoa H. Le & David M. Kern & Gabriela S. Fernandez & Vicky Turner & Anup Das & Matthew Quaife & Amy Perrin Ross - 697-710 Young People’s Barriers and Facilitators of Engagement with Web-Based Mental Health Interventions for Anxiety and Depression: A Qualitative Study
by Thi Quynh Anh Ho & Lidia Engel & Glenn Melvin & Long Khanh-Dao Le & Ha N. D. Le & Cathrine Mihalopoulos - 711-728 15th Meeting of the International Academy of Health Preference Research
by Deborah Marshall
September 2024, Volume 17, Issue 5
- 483-491 Making Use of Technology to Improve Stated Preference Studies
by Caroline Vass & Marco Boeri & Gemma Shields & Jaein Seo - 493-518 Practices and Barriers in Developing and Disseminating Plain-Language Resources Reporting Medical Research Information: A Scoping Review
by Avishek Pal & Isabelle Arnet & Bernice Simone Elger & Tenzin Wangmo - 519-535 Treatment Preference Research in Atopic Dermatitis: A Systematic Review of Quantitative Studies
by Katja C. Heinz & Charlotte Beaudart & Damon Willems & Mickaël Hiligsmann - 537-550 Consumer Preferences for a Healthcare Appointment Reminder in Australia: A Discrete Choice Experiment
by Shayma Mohammed Selim & Sameera Senanayake & Steven M. McPhail & Hannah E. Carter & Sundresan Naicker & Sanjeewa Kularatna - 551-563 Development of Patient and Caregiver Conceptual Models Investigating the Health-Related Quality of Life Impacts of Malignant Pleural Mesothelioma
by Adam E. J. Gibson & Waqas Ahmed & Louise Longworth & Bryan Bennett & Melinda Daumont & Liz Darlison - 565-574 Evaluating the Preferences and Willingness-to-Pay for Oral Antidiabetic Drugs Among Patients with Type 2 Diabetes Mellitus in China: A Discrete Choice Experiment
by Ling-Hsiang Chuang & Huanlan Zhang & Tianqi Hong & Shitong Xie - 575-588 Optimizing Communication on HPV Vaccination to Parents of 11- to 14-Year-Old Adolescents in France: A Discrete Choice Experiment
by Sandra Chyderiotis & Jonathan Sicsic & Amandine Gagneux-Brunon & Jocelyn Raude & Anne-Sophie Barret & Sébastien Bruel & Aurélie Gauchet & Anne-Sophie Duc Banaszuk & Morgane Michel & Bruno Giraudeau & Nathalie Thilly & Judith E. Mueller - 589-601 Eliciting Older Cancer Patients’ Preferences for Follow-Up Care to Inform a Primary Healthcare Follow-Up Model in China: A Discrete Choice Experiment
by Jiawei Geng & Ran Li & Xinyu Wang & Rongfang Xu & Jibin Liu & Haiyan Jiang & Gaoren Wang & Therese Hesketh
July 2024, Volume 17, Issue 4
- 335-347 Adverse Event Reporting in Cancer Clinical Trials: Incorporating Patient-Reported Methods. A Systematic Scoping Review
by Minna Grahvendy & Bena Brown & Laurelie R. Wishart - 349-362 Differences in Preferences for Drug Therapy Between Patients with Metastatic Versus Early-Stage Breast Cancer: A Systematic Literature Review
by Lilly Sophia Brandstetter & Steffi Jírů-Hillmann & Stefan Störk & Peter Ulrich Heuschmann & Achim Wöckel & Jens-Peter Reese - 363-378 What Breast Cancer Screening Program do Rural Women Prefer? A Discrete Choice Experiment in Jiangsu, China
by Yanjun Sun & Yiping Wang & Huiying Zhang & Zhiqing Hu & Yuhao Ma & Yuan He - 379-395 Studying How Patient Engagement Influences Research: A Mixed Methods Study
by Deborah A. Marshall & Nitya Suryaprakash & Danielle C. Lavallee & Tamara L. McCarron & Sandra Zelinsky & Karis L. Barker & Gail MacKean & Maria J. Santana & Paul Moayyedi & Stirling Bryan - 397-406 A Novel Approach to Computing Preference Estimates for Different Treatment Pathways: An Application in Oncology
by Kathleen Beusterien & Oliver Will & Emuella Flood & Susan McCutcheon & deMauri S. Mackie & Stella Mokiou - 407-419 Community Preferences for the Care of Older People at the End of Life: How Important is the Disease Context?
by Patricia Kenny & Deborah J. Street & Jane Hall & Meera R. Agar & Jane Phillips - 421-439 Health-Related Quality-of-Life Impacts Associated with Transfusion-Dependent β-Thalassemia in the USA and UK: A Qualitative Assessment
by Jennifer Drahos & Adriana Boateng-Kuffour & Melanie Calvert & Laurice Levine & Neelam Dongha & Nanxin Li & Zahra Pakbaz & Farrukh Shah & Antony P. Martin - 441-455 Diabetes Research Matters: A Three-Round Priority-Setting Survey Consultation with Adults Living with Diabetes and Family Members in Australia
by Christel Hendrieckx & Sienna Russell-Green & Timothy Skinner & Ashley H. Ng & Chris Lee & Siobhan Barlow & Alan Davey & Caitlin Rogers & Elizabeth Holmes-Truscott & Jane Speight - 457-469 Perceptions and Acceptance of a Prophylactic Vaccine for Human Immunodeficiency Virus (HIV): A Qualitative Study
by Natalie V. J. Aldhouse & Eric K. H. Chan & Tamara Al-zubeidi & Stephanie McKee & Valérie Oriol Mathieu & Antoine C. El khoury & Helen Kitchen - 471-479 Exploring Consumers’ Motivations and Experiences of Engaging as Partners in Cancer Research
by Jamie L. Waterland & Cassandra Beer & Rowan Forbes Shepherd & Laura E. Forrest - 481-481 Correction: Exploring Consumers’ Motivations and Experiences of Engaging as Partners in Cancer Research
by Jamie L. Waterland & Cassandra Beer & Rowan Forbes Shepherd & Laura E. Forrest
May 2024, Volume 17, Issue 3
- 215-217 The Limitations of EQ-5D as a Clinical Outcome Assessment Tool
by Ari Gnanasakthy & Carla Romano DeMuro - 219-227 Key Insights into Developing Qualitative Concept Elicitation Work for Outcome Measures with Children and Young People
by Samantha Husbands & Paul Mark Mitchell & Joanna Coast - 229-237 Using Patient Preferences in Health Technology Assessment: Evaluating Quality-Adjusted Survival Equivalents (QASE) for the Quantification of Non-health Benefits
by Kevin Marsh & Hannah Collacott & Jim Thomson & Jonathan Mauer & Stephen Watt & Koonal Shah & Brett Hauber & Louis Garrison & Mendwas Dzingina - 239-249 A Review of the Use of EQ-5D for Clinical Outcome Assessment in Health Technology Assessment, Regulatory Claims, and Published Literature
by Caroline Shaw & Louise Longworth & Bryan Bennett & Louise McEntee-Richardson & James W. Shaw - 251-251 Correction to: A Review of the Use of EQ-5D for Clinical Outcome Assessment in Health Technology Assessment, Regulatory Claims, and Published Literature
by Caroline Shaw & Louise Longworth & Bryan Bennett & Louise McEntee-Richardson & James W. Shaw - 253-262 Quality of Life in Adults with Chronic Cough: A Mixed Methods Study Informing the Development of a Quantitative Patient Preference Study
by Theresa Coles & Molly McFatrich & Helen Ding & Nicole Lucas & Erin Daniell & Aparna Swaminathan & Jonathan Schelfhout & Reed Johnson - 263-274 Development and Testing of a Chronic-Disease Patient Experience Mapping Toolbox
by Elisabeth M. Oehrlein & Silke Schoch & Kelsie Majercak & Laura Elisabeth Gressler & Ryan C. Costantino & T. Rosie Love & Eleanor M. Perfetto - 275-285 Attitudes Toward the Adoption of Remote Patient Monitoring and Artificial Intelligence in Parkinson’s Disease Management: Perspectives of Patients and Neurologists
by Carlos Antonio Godoy Junior & Francesco Miele & Laura Mäkitie & Eleonora Fiorenzato & Maija Koivu & Lytske Jantien Bakker & Carin Uyl-de Groot & William Ken Redekop & Welmoed Kirsten Deen - 287-300 Patients’ Preferences for Systemic Lupus Erythematosus Treatments—A Discrete Choice Experiment
by Hannah Collacott & Andrea Phillips-Beyer & Nicolas Krucien & Bruno Flamion & Kevin Marsh - 301-317 Exploring the Factors that Drive Clinical Negligence Claims: Stated Preferences of Those Who Have Experienced Unintended Harm
by Nyantara Wickramasekera & Arne Risa Hole & Donna Rowen & Allan Wailoo & Anju D. Keetharuth - 319-333 From Qualitative Research to Quantitative Preference Elicitation: An Example in Invasive Meningococcal Disease
by Joshua Coulter & Chiara Whichello & Sebastian Heidenreich & Brett Hauber & Christine Michaels-Igbokwe & Joseph C. Cappelleri & Paula Peyrani & Jessica Vespa Presa & Malavika Venkatraman & Katharina Schley
March 2024, Volume 17, Issue 2
- 109-120 Pretesting Discrete-Choice Experiments: A Guide for Researchers
by Nicola B. Campoamor & Christi J. Guerrini & Whitney Bash Brooks & John F. P. Bridges & Norah L. Crossnohere - 121-131 A Best–Worst Scaling Study of the General Population's Preferences for Activities in Living Arrangements for Persons With Dementia
by Christian Speckemeier & Carina Abels & Klemens Höfer & Anke Walendzik & Jürgen Wasem & Silke Neusser - 133-145 Exploring the Preferences of Parents of Children with Myopia in Rural China for Eye Care Services Under Privatization Policy: Evidence from a Discrete Choice Experiment
by Wen Lin & Xiaodong Dong & Jack Hennessy & Junling Zhao & Xiaochen Ma - 147-159 Current Practices and Challenges When Submitting Patient Experience Data for Regulatory Decisions by the US Food and Drug Administration: An Industry Survey
by Cathy Anne Pinto & Tommi Tervonen & Cecilia Jimenez-Moreno & Bennett Levitan & Montse Soriano Gabarró & Cynthia Girman & Josephine M. Norquist & Brett Hauber - 161-177 Preferences of Patients with Amyotrophic Lateral Sclerosis for Intrathecal Drug Delivery: Choosing between an Implanted Drug-Delivery Device and Therapeutic Lumbar Puncture
by Jaein Seo & Sandeep Saurkar & Gabriela S. Fernandez & Anup Das & Stephen A. Goutman & Sebastian Heidenreich - 179-190 Research Priorities to Increase Confidence in and Acceptance of Health Preference Research: What Questions Should be Prioritized Now?
by Rachael L. DiSantostefano & Ian P. Smith & Marie Falahee & Aura Cecilia Jiménez-Moreno & Serena Oliveri & Jorien Veldwijk & G. Ardine Wit & Ellen M. Janssen & Conny Berlin & Catharina G. M. Groothuis-Oudshoorn - 191-202 Prosocial Behaviour and Antibiotic Resistance: Evidence from a Discrete Choice Experiment
by Mirko Ancillotti & Samare P. I. Huls & Eva M. Krockow & Jorien Veldwijk - 203-213 Impact of Difelikefalin on the Health-Related Quality of Life of Haemodialysis Patients with Moderate-To-Severe Chronic Kidney Disease-Associated Pruritus: A Single-Arm Intervention Trial
by James Fotheringham & Julian Guest & Joerg Latus & Edgar Lerma & Isabelle Morin & Thilo Schaufler & Marco Soro & Sonja Ständer & Steven Zeig
January 2024, Volume 17, Issue 1
- 3-12 Role Preferences in Medical Decision Making: Relevance and Implications for Health Preference Research
by Janine A. Til & Alison Pearce & Semra Ozdemir & Ilene L. Hollin & Holly L. Peay & Albert W. Wu & Jan Ostermann & Ken Deal & Benjamin M. Craig - 13-24 Patient Preferences for Pharmacy Services: A Systematic Review of Studies Based on Discrete Choice Experiments
by Margaux Riboulet & Anne-Laure Clairet & Mohamed Bennani & Virginie Nerich - 25-37 Determining Commonalities in the Experiences of Patients with Rare Diseases: A Qualitative Analysis of US Food and Drug Administration Patient Engagement Sessions
by Catherine Mease & Lewis J. Fermaglich & Karen Jackler & Shawn Shermer & Kathleen L. Miller - 39-52 What Aspects of Quality of Life are Important from Palliative Care Patients’ Perspectives? A Framework Analysis to Inform Preference-Based Measures for Palliative and End-of-Life Settings
by Nikki McCaffrey & Julie Ratcliffe & David Currow & Lidia Engel & Claire Hutchinson - 53-64 Unravelling the Self-Report Versus Proxy-Report Conundrum for Older Aged Care Residents: Findings from a Mixed-Methods Study
by Julie Ratcliffe & Kiri Lay & Matthew Crocker & Lidia Engel & Rachel Milte & Claire Hutchinson & Jyoti Khadka & David G. T. Whitehurst & Brendan Mulhern & Rosalie Viney & Richard Norman - 65-82 Fighting to Breathe and Fighting for Health-Related Quality of Life: Measuring the Impact of Being Dependent on Technology for Breathing on the Child and Their Caregiver
by Janine Verstraete & Christopher Booth & Jane Booth & Shazia Peer & Jessica McGuire & Fiona Kritzinger & Taryn Gray & Noluthando Zibi & Primrose Shabangu & Marco Zampoli - 83-95 Preferences for Monitoring Comprehensive Heart Failure Care: A Latent Class Analysis
by Axel C. Mühlbacher & Andrew Sadler & Christin Juhnke - 97-108 Preferences and Willingness to Pay for Medication in Patients with Renal Cell Carcinoma in China: A Discrete-Choice Experiment
by Ruilin Ding & Rong Shao & Lingli Zhang & Jianzhou Yan
November 2023, Volume 16, Issue 6
- 569-578 Operationalizing the Chronic Care Model with Goal-Oriented Care
by Agnes Grudniewicz & Carolyn Steele Gray & Pauline Boeckxstaens & Jan Maeseneer & James Mold - 579-591 Patient Preferences in Diagnostic Imaging: A Scoping Review
by Trey A. Baird & Davene R. Wright & Maria T. Britto & Ellen A. Lipstein & Andrew T. Trout & Shireen E. Hayatghaibi - 593-606 Gauging Incentive Values and Expectations (G.I.V.E.) among Blood Donors for Nonmonetary Incentives: Developing a Preference Elicitation Instrument through Qualitative Approaches in Shandong, China
by Yu Wang & Peicong Zhai & Yue Zhang & Shan Jiang & Gang Chen & Shunping Li - 607-623 Discrete-Choice Experiment to Understand the Preferences of Patients with Hormone-Sensitive Prostate Cancer in the USA, Canada, and the UK
by Juan Marcos Gonzalez & Arijit Ganguli & Alicia K. Morgans & Bertrand F. Tombal & Sebastien J. Hotte & Hiroyoshi Suzuki & Hemant Bhadauria & Mok Oh & Charles D. Scales Jr & Matthew J. Wallace & Jui-Chen Yang & Daniel J. George - 625-640 A Qualitative Exploration of Patient and Staff Experiences of the Receipt and Delivery of Specialist Weight Management Services in the UK
by Ross Watkins & Dawn Swancutt & Mia Alexander & Shokraneh Moghadam & Steve Perry & Sarah Dean & Rod Sheaff & Jonathan Pinkney & Mark Tarrant & Jenny Lloyd - 641-653 Maximum Acceptable Risk Estimation Based on a Discrete Choice Experiment and a Probabilistic Threshold Technique
by Jorien Veldwijk & Rachael Lynn DiSantostefano & Ellen Janssen & Gwenda Simons & Matthias Englbrecht & Karin Schölin Bywall & Christine Radawski & Karim Raza & Brett Hauber & Marie Falahee - 655-666 Face Validity of Four Preference-Weighted Quality-of-Life Measures in Residential Aged Care: A Think-Aloud Study
by Lidia Engel & Leona Kosowicz & Ekaterina Bogatyreva & Frances Batchelor & Nancy Devlin & Briony Dow & Andrew S. Gilbert & Brendan Mulhern & Tessa Peasgood & Rosalie Viney
September 2023, Volume 16, Issue 5
- 415-423 A New Framework for Co-Creating Telehealth for Cancer Care with the Patient Community
by Bonnie Addario & Violeta Astratinei & Louise Binder & Jan Geissler & Marcia K. Horn & Linda U. Krebs & Bryan Lewis & Kathy Oliver & Andrew Spiegel - 425-456 Including Young Children in the Development and Testing of Patient Reported Outcome (PRO) Instruments: A Scoping Review of Children’s Involvement and Qualitative Methods
by Victoria Gale & Jill Carlton - 457-471 Decision Making About Disease-Modifying Treatments for Relapsing-Remitting Multiple Sclerosis: Stated Preferences and Real-World Choices
by Edward J. D. Webb & David Meads & Ieva Eskytė & Helen L. Ford & Hilary L. Bekker & Jeremy Chataway & George Pepper & Joachim Marti & Yasmina Okan & Sue H. Pavitt & Klaus Schmierer & Ana Manzano - 473-483 Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members
by Lucy Coombes & Daney Harðardóttir & Debbie Braybrook & Anna Roach & Hannah Scott & Katherine Bristowe & Clare Ellis-Smith & Julia Downing & Myra Bluebond-Langner & Lorna K. Fraser & Fliss E. M. Murtagh & Richard Harding - 485-495 Measurement Properties of the 15-Item Singapore Caregiver Quality of Life Scale (SCQOLS-15) in Family Caregivers of Patients with Heart Diseases
by Mihir Gandhi & Ru-San Tan & Shir Lynn Lim & Irene Teo & Grace Yang & Kai Lee Woo & Yin Bun Cheung - 497-513 Preferences for Adjuvant Immunotherapy in Adults with Resected Stage III Melanoma—A Discrete Choice Experiment
by Ann Livingstone & Kirsten Howard & Alexander M. Menzies & Georgina V. Long & Martin R. Stockler & Rachael L. Morton - 515-536 Developing a Conceptual Framework for Socioeconomic Impact Research in European Cancer Patients: A ‘Best-Fit’ Framework Synthesis
by Phu Duy Pham & Michael Schlander & Rachel Eckford & Karla Hernandez-villafuerte & Jasper Ubels - 537-553 Preferences of People Living with HIV for Long-Acting Antiretroviral Treatment in Germany: Evidence from a Discrete Choice Experiment
by Martin Emmert & Stefan Rohrbacher & Jennifer Jahn & Katharina Fernando & Michael Lauerer - 555-567 Exploring the Preferences of the Australian Public for Antibiotic Treatments: A Discrete Choice Experiment
by Chris Degeling & Trent Yarwood & Alberto Nettel-Aguirre & Judy Mullan & Nina Reynolds & Gang Chen
July 2023, Volume 16, Issue 4
- 289-292 Comment on: Taking the Shortcut: Simplifying Heuristics in Discrete Choice Experiments
by F. Reed Johnson - 293-300 A Foundation for Patient-Centered Core Impact Sets: Key Learnings from Past and Existing Approaches
by Eleanor M. Perfetto & T. Rosie Love & Elisabeth M. Oehrlein & Silke C. Schoch & Suz Schrandt - 301-315 Taking the Shortcut: Simplifying Heuristics in Discrete Choice Experiments
by Jorien Veldwijk & Stella Maria Marceta & Joffre Dan Swait & Stefan Adriaan Lipman & Esther Wilhelmina Bekker-Grob - 317-341 Do Cash-For-Care Schemes Increase Care Users’ Experience of Empowerment? A Systematic Review
by Eva Pattyn & Paul Gemmel & Sophie Vandepitte & Jeroen Trybou - 343-343 Correction to: Do Cash-For-Care Schemes Increase Care Users’ Experience of Empowerment? A Systematic Review
by Eva Pattyn & Paul Gemmel & Sophie Vandepitte & Jeroen Trybou - 345-357 Individual Differences in the Patient Experience of Relapsing Multiple Sclerosis (RMS): A Multi-Country Qualitative Exploration of Drivers of Treatment Preferences Among People Living with RMS
by Sophi Tatlock & Kate Sully & Anjali Batish & Chelsea Finbow & William Neill & Carol Lines & Roisin Brennan & Nicholas Adlard & Tamara Backhouse - 359-369 Patient-Centered Clinical Trial Design for Heart Failure Devices via Bayesian Decision Analysis
by Shomesh E. Chaudhuri & Phillip Adamson & Dean Bruhn-Ding & Zied Ben Chaouch & David Gebben & Liliana Rincon-Gonzalez & Barry Liden & Shelby D. Reed & Anindita Saha & Daniel Schaber & Kenneth Stein & Michelle E. Tarver & Andrew W. Lo - 371-383 Cancer Survivor Preferences for Models of Breast Cancer Follow-Up Care: Selecting Attributes for Inclusion in a Discrete Choice Experiment
by Sanjeewa Kularatna & Michelle Allen & Ruvini M. Hettiarachchi & Fiona Crawford-Williams & Sameera Senanayake & David Brain & Nicolas H. Hart & Bogda Koczwara & Carolyn Ee & Raymond J. Chan - 385-398 Physical Activity Preferences of People Living with Brain Injury: Formative Qualitative Research to Develop a Discrete Choice Experiment
by Abby Haynes & Kirsten Howard & Liam Johnson & Gavin Williams & Kelly Clanchy & Sean Tweedy & Adam Scheinberg & Sakina Chagpar & Belinda Wang & Gabrielle Vassallo & Rhys Ashpole & Catherine Sherrington & Leanne Hassett
May 2023, Volume 16, Issue 3
- 179-181 The Pogo-ization of Post-Pandemic Vaccine Policy
by Peter J. Pitts - 183-199 So You Want to Build Your Disease’s First Online Patient Registry: An Educational Guide for Patient Organizations Based on US and European Experience
by Paul Wicks & Lindsey Wahlstrom-Edwards & Sam Fillingham & Andrea Downing & Elin Haf Davies - 201-221 Systematic Review of the Effect of a One-Day Versus Seven-Day Recall Duration on Patient Reported Outcome Measures (PROMs)
by Tessa Peasgood & Julia M. Caruana & Clara Mukuria - 223-237 The Impact of Video-Based Educational Materials with Voiceovers on Preferences for Glucose Monitoring Technology in Patients with Diabetes: A Randomised Study
by Ian P. Smith & Chiara L. Whichello & Esther W. Bekker-Grob & Maureen P. M. H. Rutten-van Mölken & Jorien Veldwijk & G. Ardine Wit - 239-253 Comparing Outcomes of a Discrete Choice Experiment and Case 2 Best-Worst Scaling: An Application to Neuromuscular Disease Treatment
by Vikas Soekhai & Bas Donkers & Jennifer Viberg Johansson & Cecilia Jimenez-Moreno & Cathy Anne Pinto & G. Ardine Wit & Esther Bekker-Grob - 255-264 Improving Outcome-Driven Care in Multiple Myeloma Using Patient-Reported Outcomes: A Qualitative Evaluation Study
by Christine Bennink & Marleen Mul & Marjolein Klift & Annemiek Broijl & Lidwine Tick & Eva Jongh & Mirjam Garvelink & Dorien Lobbezoo & Pieter Sonneveld & Jan Hazelzet - 265-276 Focus Groups to Inform the Development of a Patient-Reported Outcome Measure (PROM) for Temporomandibular Joint Disorders (TMDs)
by Emily Elstad & Fraser D. Bocell & Tamika Cowans Owens & Dilani Logan & Emily Melluso & Claire Viscione & San Keller & Allen Chen & Jessica Weinberg & Veronica Sansing-Foster & Leah Royce & Phillip Woods & Andrew I. Steen & Adriana Ineveld & Michelle Reardon & Allen Cowley & John Kusiak & Deanne Clare & Terrie Cowley & Michelle E. Tarver - 277-285 Ability and Willingness to Participate in Dementia Clinical Research: A Qualitative Study
by Nicole Bouranis & Sherril Gelmon & Allison Lindauer - 287-287 Correction to: How Does the Public Evaluate Vaccines for Low‑Incidence, Severe‑Outcome Diseases? A General‑Population Choice Experiment
by F. Reed Johnson & Angelyn Fairchild & Dale Whittington & Amit K. Srivastava & Juan Marcos Gonzalez & Liping Huang
March 2023, Volume 16, Issue 2
- 89-93 Rethinking Patient Engagement in Cancer Research
by Anne L. R. Schuster & Heather Hampel & Electra D. Paskett & John F. P. Bridges - 95-103 Long-Term Improvement in the Patient-Reported Outcomes of Rectal Bleeding, Stool Frequency, and Health-Related Quality of Life with Tofacitinib in the Ulcerative Colitis OCTAVE Clinical Program
by David P. Hudesman & Joana Torres & Leonardo Salese & John C. Woolcott & Rajiv Mundayat & Chinyu Su & Mahmoud H. Mosli & Jessica R. Allegretti - 105-116 Patient-Reported Outcomes for Fully Vaccinated COVID-19 Patients Over 6 Weeks: The Experiences of Clinical Breakthrough Cases
by Keri Vartanian & Daniel Fish & Benjamin Gronowski & Natalie Kenton & Ari Robicsek - 117-125 The Perception of Women in Rural and Remote Scotland About Intrapartum Care: A Qualitative Study
by Verity Watson & Helen Bryers & Nicolas Krucien & Seda Erdem & Mary Burnside & Hugo C. Woerden - 127-138 Patients’ Preferences for Connected Insulin Pens: A Discrete Choice Experiment Among Patients with Type 1 and Type 2 Diabetes
by Jaein Seo & Sebastian Heidenreich & Esraa Aldalooj & Jiat Ling Poon & Erik Spaepen & Elizabeth L. Eby & Rachel S. Newson - 139-151 How Does the Public Evaluate Vaccines for Low-Incidence, Severe-Outcome Diseases? A General-Population Choice Experiment
by F. Reed Johnson & Angelyn Fairchild & Dale Whittington & Amit K. Srivastava & Juan Marcos Gonzalez & Liping Huang - 153-164 Patient Preferences in the Management of Hidradenitis Suppurativa: Results of a Multinational Discrete Choice Experiment in Europe
by Damon Willems & Eva-Lotta Hinzpeter & Hessel H. Zee & Christopher J. Sayed & John R. Ingram & Charlotte Beaudart & Silvia M. A. A. Evers & Mickael Hiligsmann - 165-177 Patient Preferences for Attributes that Characterise Alternative Models of Care in Gastroenterology: A Discrete Choice Experiment
by Rumbidzai N. Mutsekwa & Katrina L. Campbell & Russell Canavan & Brendan Mulhern & Rebecca L. Angus & Joshua M. Byrnes
January 2023, Volume 16, Issue 1
- 3-5 FDA Guidance on Selecting, Developing, or Modifying Fit-for-Purpose Clinical Outcome Assessments: Old Wine in a New Bottle?
by Ari Gnanasakthy & Shanshan Qin & Lindsey Norcross - 7-17 Improving Interpretation of Evidence Relating to Quality of Life in Health Technology Assessments of Rare Disease Treatments
by Elena Nicod & Andrew J Lloyd & Thomas Morel & Michela Meregaglia & Sheela Upadhyaya & Amanda Whittal & Karen Facey & Michael Drummond - 19-29 Conducting Patient-Oriented Research in Low-Income and Middle-Income Countries: A Scoping Review
by Bukola Mary Ibitoye & Bernie Garrett & Manon Ranger & Jennifer Stinson - 31-42 What Author Instructions Do Health Journals Provide for Writing Plain Language Summaries? A Scoping Review
by Karen M. Gainey & Jenna Smith & Kirsten J. McCaffery & Sharon Clifford & Danielle M. Muscat - 43-56 Patient Preferences for Multi-Cancer Early Detection (MCED) Screening Tests
by Heather Gelhorn & Melissa M. Ross & Anuraag R. Kansal & Eric T. Fung & Michael V. Seiden & Nicolas Krucien & Karen C. Chung - 57-66 Preferences for Treatments for Major Depressive Disorder: Formative Qualitative Research Using the Patient Experience
by Susan dosReis & Laura M. Bozzi & Beverly Butler & Richard Z. Xie & Richard H. Chapman & Jennifer Bright & Erica Malik & Julia F. Slejko - 67-76 Constructing Health State Descriptions for Low-Risk Thyroid Cancer: Stakeholder Engagement and Formative Qualitative Research
by Erin G. Roth & Justin Kim & Julia F. Slejko & C. Daniel Mullins & Jennifer L. Doyle & David L. Levitt & Miguel Melendez & Kyle J. Fletke & Yinin Hu - 77-88 Student-Athlete Preferences for Sexual Violence Reporting: A Discrete Choice Experiment
by Alice M. Ellyson & Avanti Adhia & Emily Kroshus & Davene R. Wright
November 2022, Volume 15, Issue 6
- 611-613 Regulating Between the Notes: The US FDA and the Evolution of the Patient Voice Through Twenty-First Century Regulatory Science
by Peter J. Pitts - 615-617 Increasing the Patient-Centeredness of Predictive Analytics Tools
by Norah L. Crossnohere & Janet E. Childerhose & Seuli Bose-Brill - 619-627 Patient-Centered Core Impact Sets: What They are and Why We Need Them
by Eleanor M. Perfetto & Elisabeth M. Oehrlein & T. Rosie Love & Silke Schoch & Annie Kennedy & Jennifer Bright - 629-639 Methods to Summarize Discrete-Choice Experiments in a Systematic Review: A Scoping Review
by Daksh Choudhary & Megan Thomas & Kevin Pacheco-Barrios & Yuan Zhang & Pablo Alonso-Coello & Holger Schünemann & Glen Hazlewood - 641-654 The Impact of Patient Support Programs in Europe: A Systematic Literature Review
by José Antonio Sacristán & Esther Artime & Silvia Díaz-Cerezo & Marta Comellas & Lucía Pérez-Carbonell & Luis Lizán - 655-656 Concerns about the Responsiveness of Generic Measures and the Search for a “Minimally” Important Change: Today’s PRO Red Herrings
by David Cella - 657-668 Meaningful Improvement in General Health Outcomes with Guselkumab Treatment for Psoriatic Arthritis: Patient-Reported Outcomes Measurement Information System-29 Results from a Phase 3 Study
by Ana-Maria Orbai & Laura C. Coates & Atul Deodhar & Philip S. Helliwell & Christopher T. Ritchlin & Evan Leibowitz & Alexa P. Kollmeier & Elizabeth C. Hsia & Xie L. Xu & Shihong Sheng & Yusang Jiang & Yan Liu & Chenglong Han - 669-678 What Matters for Evaluating the Quality of Mental Healthcare? Identifying Important Aspects in Qualitative Focus Groups with Service Users and Frontline Mental Health Professionals
by Philip A. Powell & Donna Rowen - 679-690 Patient Medication Preferences for Managing Dry Eye Disease: The Importance of Medication Side Effects
by Semra Ozdemir & Sharon Wan Jie Yeo & Jia Jia Lee & Adithya Bhaskar & Eric Finkelstein & Louis Tong - 691-702 Interpreting Within-Patient Changes on the EORTC QLQ-C30 and EORTC QLQ-LC13
by Cheryl D. Coon & Michael Schlichting & Xinke Zhang - 703-713 Development of an Item Bank to Assess Patient-Reported Outcomes: Signs, Symptoms, and Impacts of COVID-19
by Matthew Reaney & James Turnbull & Jean Paty & Karli Heuer & Chad Gwaltney - 715-728 Opportunities to Improve Long COVID Care: Implications from Semi-structured Interviews with Black Patients
by Rachel S. Bergmans & Keiyana Chambers-Peeple & Deena Aboul-Hassan & Samantha Dell’Imperio & Allie Martin & Riley Wegryn-Jones & Lillian Z. Xiao & Christine Yu & David A. Williams & Daniel J. Clauw & Melissa DeJonckheere
September 2022, Volume 15, Issue 5
- 509-512 Towards Accurate Prediction of Healthcare Choices: The INTERSOCIAL Project
by Esther W. Bekker-Grob & Bas Donkers & Michiel Bliemer & Joanna Coast & Joffre Swait - 513-520 Improvements to Survey Design from Pilot Testing a Discrete-Choice Experiment of the Preferences of Persons Living with HIV for Long-Acting Antiretroviral Therapies
by Douglas Barthold & Aaron T. Brah & Susan M. Graham & Jane M. Simoni & Brett Hauber - 521-535 Exploring the Comparability of Face-to-Face Versus Video Conference-Based Composite Time Trade-Off Interviews: Insights from EQ-5D-Y-3L Valuation Studies in Belgium and Spain
by Anabel Estévez-Carrillo & Sarah Dewilde & Mark Oppe & Juan M. Ramos-Goñi - 537-550 Factors That Patients Consider in Their Choice of Non-Surgical Management for Hip and Knee Osteoarthritis: Formative Qualitative Research for a Discrete Choice Experiment
by Bryanne L. Kennedy & Gillian R. Currie & Ania Kania-Richmond & Carolyn A. Emery & Gail MacKean & Deborah A. Marshall - 551-564 The Patient Voice: Exploring Treatment Preferences in Participants with Mild Cognitive Concerns to Inform Regulatory Decision Making
by Carol Mansfield & Kristin Bullok & Jillian Venci Fuhs & Antje Tockhorn-Heidenreich & J. Scott Andrews & Dana DiBenedetti & Brandy R. Matthews & Joshua C. Darling & Jessie Sutphin & Brett Hauber - 565-576 Long COVID Citizen Scientists: Developing a Needs-Based Research Agenda by Persons Affected by Long COVID
by Sarah Ziegler & Alessia Raineri & Vasileios Nittas & Natalie Rangelov & Fabian Vollrath & Chantal Britt & Milo A. Puhan - 577-588 A Comparison of Caregiver and Patient Preferences for Treating Duchenne Muscular Dystrophy
by Norah L. Crossnohere & Ryan Fischer & Elizabeth Vroom & Patricia Furlong & John F. P. Bridges - 589-598 Determinants of Health Preferences Using Data from the Egyptian EQ-5D-5L Valuation Study
by Sahar Al Shabasy & Fatima Al Sayah & Maggie Abbassi & Samar Farid - 599-609 Perspectives of Pediatric Rheumatologists on Initiating and Tapering Biologics in Patients with Juvenile Idiopathic Arthritis: A Formative Qualitative Study
by Gillian R. Currie & Tram Pham & Marinka Twilt & Maarten J. IJzerman & Pauline M. Hull & Michelle M. A. Kip & Susanne M. Benseler & Glen S. Hazlewood & Rae S. M. Yeung & Nico M. Wulffraat & Joost F. Swart & Sebastian J. Vastert & Deborah A. Marshall
July 2022, Volume 15, Issue 4
- 383-387 Patient-Reported Chronic Pain Intensity: More Than Meets the Eye
by Dale J. Langford & Jennifer S. Gewandter & Dagmar Amtmann & Bryce B. Reeve & Sharon Hertz & John D. Loeser & Christin Veasley & Dennis C. Turk & Robert H. Dworkin - 389-397 Time to See the Difference: Video Capture for Patient-Centered Clinical Trials
by Elin Haf Davies & Clare Matthews & Adeline Merlet & Martine Zimmermann - 399-421 What is the Most Valid and Reliable Compassion Measure in Healthcare? An Updated Comprehensive and Critical Review
by Shane Sinclair & Jane Kondejewski & Thomas F. Hack & Harrison C. D. Boss & Cara C. MacInnis - 423-434 The Application of Preference Elicitation Methods in Clinical Trial Design to Quantify Trade-Offs: A Scoping Review
by Megan Thomas & Deborah A. Marshall & Daksh Choudhary & Susan J. Bartlett & Adalberto Loyola Sanchez & Glen S. Hazlewood - 435-444 Patient-Reported Outcome Measures Used for Assessing Breast Sensation after Mastectomy: Not Fit for Purpose
by Hansje P. Smeele & Rachel C. H. Dijkstra & Merel L. Kimman & René R. W. J. Hulst & Stefania M. H. Tuinder - 445-457 Challenges in Using Recommended Quality of Life Measures to Assess Fluctuating Health: A Think-Aloud Study to Understand How Recall and Timing of Assessment Influence Patient Responses
by Sabina Sanghera & Axel Walther & Tim J. Peters & Joanna Coast - 459-472 How Do People with Experience of Infertility Value Different Aspects of Assistive Reproductive Therapy? Results from a Multi-Country Discrete Choice Experiment
by Chris Skedgel & Eleanor Ralphs & Elaine Finn & Marie Markert & Carl Samuelsen & Jennifer A. Whitty - 473-483 Will the Public Engage with New Pharmacy Roles? Assessing Future Uptake of a Community Pharmacy Health Check Using a Discrete Choice Experiment
by Gin Nie Chua & Christine Bond & Terry Porteous & Mandy Ryan - 485-496 Patient and Public Preferences for Coordinated Care in Switzerland: Development of a Discrete Choice Experiment
by Anna Nicolet & Clémence Perraudin & Joël Wagner & Ingrid Gilles & Nicolas Krucien & Isabelle Peytremann-Bridevaux & Joachim Marti - 497-507 Qualitative Research Informing a Preference Study on Selecting Cannabis for Cancer Survivor Symptom Management: Design of a Discrete Choice Experiment
by Colene Bentley & Sara Izadi-Najafabadi & Adam Raymakers & Helen McTaggart-Cowan
May 2022, Volume 15, Issue 3
- 269-285 Attributes Used for Cancer Screening Discrete Choice Experiments: A Systematic Review
by Rebekah Hall & Antonieta Medina-Lara & Willie Hamilton & Anne E. Spencer - 287-306 Stated Preference Research in Reproductive and Maternal Healthcare Services in Sub-Saharan Africa: A Systematic Review
by Daniel Erku & Paul Scuffham & Katrina Gething & Richard Norman & Alemayehu B. Mekonnen & Gebremedhin B. Gebretekle & Yibeltal Assefa & Gizachew A. Tessema - 307-316 The Importance of Disease-Free Survival as a Clinical Trial Endpoint: A Qualitative Study Among Canadian Survivors of Lung Cancer
by Andrea Bever & Jackie Manthorne & Tissa Rahim & Layla Moumin & Shelagh M. Szabo - 317-328 Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development
by Hadley Stevens Smith & Stephanie R. Morain & Jill Oliver Robinson & Isabel Canfield & Janet Malek & Caryn Kseniya Rubanovich & Cinnamon S. Bloss & Sara L. Ackerman & Barbara Biesecker & Kyle B. Brothers & Crispin N. Goytia & Carol R. Horowitz & Sara J. Knight & Barbara Koenig & Stephanie A. Kraft & Simon Outram & Christine Rini & Kelly J. Shipman & Margaret Waltz & Benjamin Wilfond & Amy L. McGuire - 329-339 A Guide to Observable Differences in Stated Preference Evidence
by Benjamin Matthew Craig & Esther W. Bekker-Grob & Juan Marcos González Sepúlveda & William H. Greene - 341-351 A Standard Set of Value-Based Patient-Centered Outcomes and Measures of Overall Health in Adults
by Jaheeda Gangannagaripalli & Andrea Albagli & Stacie N. Myers & Sarah Whittaker & Andria Joseph & Anna Clarke & Lucy Matkin & Jordi Alonso & Ira Byock & Michael den Berg & Carolyn Canfield & John Chaplin & Juan Dapueto & Marcelo Pio Almedia Fleck & Chris Sidey-Gibbons & Jan Hazelzet & Rachel Hess & Kaisa Immonen & Serena Joyner & Catherine Katz & Carolyn Kerrigan & Cindy Lam & Joanne Lunn & Fiona McKenzie & Alastair Roeves & Caleb Stowell & Timothy Switaj & Melissa Tinsley & Eyal Zimlichman & Jose M. Valderas - 353-365 Women’s Willingness to Accept Risks of Medication for Inflammatory Bowel Disease During Pregnancy
by Tatyana Kushner & Angelyn Fairchild & F. Reed Johnson & Bruce E. Sands & Uma Mahadevan & Sreedhar Subramanian & Ashwin Ananthakrishnan & Christina Ha & Meenakshi Bewtra - 367-377 Exit Interviews Examining the Patient Experience in Clinical Trials of Tirzepatide for Treatment of Type 2 Diabetes
by Louis S. Matza & Katie D. Stewart & Laura Fernández Landó & Hiren Patel & Kristina S. Boye - 379-381 Correction to: Attributes Used for Cancer Screening Discrete Choice Experiments: A Systematic Review
by Rebekah Hall & Antonieta Medina-Lara & Willie Hamilton & Anne E. Spencer
March 2022, Volume 15, Issue 2
- 147-149 Patient Experience Data for Medical Product Development: Opportunity Beyond Obligation
by Robyn T. Carson - 151-155 Unexpected Outcomes of Measuring Decision Regret: Using a Breast Cancer Decision-Making Case Example
by Kelly Oman & Marie-Anne Durand & Glyn Elwyn & Renata West Yen & Christine Marx & Mary C. Politi - 157-169 Women’s Experiences of and Perspectives on Transvaginal Mesh Surgery for Stress Urine Incontinency and Pelvic Organ Prolapse: A Qualitative Systematic Review
by Mina Motamedi & Stacy M. Carter & Chris Degeling - 171-185 Family Experiences with Care for Children with Inherited Metabolic Diseases in Canada: A Cross-Sectional Survey
by Andrea J. Chow & Michael Pugliese & Laure A. Tessier & Pranesh Chakraborty & Ryan Iverson & Doug Coyle & Jonathan B. Kronick & Kumanan Wilson & Robin Hayeems & Walla Al-Hertani & Michal Inbar-Feigenberg & Shailly Jain-Ghai & Anne-Marie Laberge & Julian Little & John J. Mitchell & Chitra Prasad & Komudi Siriwardena & Rebecca Sparkes & Kathy N. Speechley & Sylvia Stockler & Yannis Trakadis & Jagdeep S. Walia & Brenda J. Wilson & Beth K. Potter - 187-196 Preference Paths and Their Kaizen Tasks for Small Samples
by Benjamin Matthew Craig & Kim Rand & John D. Hartman - 197-206 Exploring Symptom Fluctuations and Triggers in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Using Novel Patient-Centred N-of-1 Observational Designs: A Protocol for a Feasibility and Acceptability Study
by Suzanne McDonald & Samuel X. Tan & Shamima Banu & Mieke Driel & James M. McGree & Geoffrey Mitchell & Jane Nikles - 207-218 Identifying Unmet Care Needs and Important Treatment Attributes in the Management of Hidradenitis Suppurativa: A Qualitative Interview Study
by Damon Willems & Mickael Hiligsmann & Hessel H van der Zee & Christopher J Sayed & Silvia M A A Evers - 219-232 Understanding Attributes that Influence Physician and Caregiver Decisions About Neurotechnology for Pediatric Drug-Resistant Epilepsy: A Formative Qualitative Study to Support the Development of a Discrete Choice Experiment
by Glory Apantaku & Magda Aguiar & K. Julia Kaal & Patrick J. McDonald & Mary B. Connolly & Viorica Hrincu & Judy Illes & Mark Harrison - 233-243 Adaptation of a Shared Decision-Making Tool for Early Rheumatoid Arthritis Treatment Decisions with Indigenous Patients
by Valerie Umaefulam & Terri-Lynn Fox & Glen Hazlewood & Nick Bansback & Claire E. H. Barber & Cheryl Barnabe - 245-253 Preferences and Experiences Regarding the Use of the Self-Sampling Device in hrHPV Screening for Cervical Cancer
by Marjolein Dieleman & Jolien Waard & G. Bea A. Wisman & Ed Schuuring & Martha D. Esajas & Karin M. Vermeulen & Geertruida H. Bock - 255-266 Comparing Patient Preferences for Antithrombotic Treatment During the Acute and Chronic Phases of Myocardial Infarction: A Discrete-Choice Experiment
by Cathy Anne Pinto & Gin Nie Chua & John F. P. Bridges & Ella Brookes & Johanna Hyacinthe & Tommi Tervonen - 267-267 Correction to: Exploring Symptom Fluctuations and Triggers in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Using Novel Patient-Centred N-of-1 Observational Designs: A Protocol for a Feasibility and Acceptability Study
by Suzanne McDonald & Samuel X. Tan & Shamima Banu & Mieke Driel & James M. McGree & Geoffrey Mitchell & Jane Nikles
January 2022, Volume 15, Issue 1
- 3-19 Validated Tools to Measure Costs for Patients: A Systematic Review
by Thomas G. Poder & Lucien P. Coulibaly & Myriam Gaudreault & Simon Berthelot & Maude Laberge - 21-38 An Evidence-Based Theory About PRO Use in Kidney Care: A Realist Synthesis
by Kara Schick-Makaroff & Adrienne Levay & Stephanie Thompson & Rachel Flynn & Richard Sawatzky & Onouma Thummapol & Scott Klarenbach & Mehri Karimi-Dehkordi & Joanne Greenhalgh - 39-54 A Systematic Review of Discrete Choice Experiments and Conjoint Analysis on Genetic Testing
by Semra Ozdemir & Jia Jia Lee & Isha Chaudhry & Remee Rose Quintana Ocampo - 55-68 A Systematic and Critical Review of Discrete Choice Experiments in Asthma and Chronic Obstructive Pulmonary Disease
by Hannah Collacott & Dian Zhang & Sebastian Heidenreich & Tommi Tervonen - 69-75 Evaluating the Consistency of Patient Preference Estimates: Systematic Variation in Survival—Adverse Event Trade-Offs in Patients with Cancer or Cardiovascular Disease
by Kevin Marsh & Nicolas Krucien - 77-92 Identifying New Zealand Public Preferences for Pharmacist Prescribers in Primary Care: A Discrete Choice Experiment
by Rakhee Raghunandan & Kirsten Howard & Carlo A. Marra & June Tordoff & Alesha Smith - 93-108 Patient Perspectives and Experiences of Preventive Treatments and Self-Injectable Devices for Migraine: A Focus Group Study
by Jaein Seo & Charlie A. Smith & Caitlin Thomas & Tommi Tervonen & Asha Hareendran & Janet H. Ford & Virginia L. Stauffer & Robert A. Nicholson & Kevin Harrison Duffy & Antje Tockhorn-Heidenreich - 109-119 Towards Personalising the Use of Biologics in Rheumatoid Arthritis: A Discrete Choice Experiment
by Caroline M Vass & Anne Barton & Katherine Payne - 121-130 Dealing with Discontinuity in Cancer Care Trajectories: Patients’ Solutions
by Debbie Vermond & Souad Habhoubi & Esther Groot & Larike Bronkhorst & Niek Wit & Dorien Zwart - 131-143 Patient-Reported Outcomes in the Phase III BRIGHTE Trial of the HIV-1 Attachment Inhibitor Prodrug Fostemsavir in Heavily Treatment-Experienced Individuals
by Sarah-Jane Anderson & Miranda Murray & David Cella & Robert Grossberg & Debbie Hagins & William Towner & Marcia Wang & Andrew Clark & Amy Pierce & Cyril Llamoso & Peter Ackerman & Max Lataillade - 145-145 Correction to: A Systematic and Critical Review of Discrete Choice Experiments in Asthma and Chronic Obstructive Pulmonary Disease
by Hannah Collacott & Dian Zhang & Sebastian Heidenreich & Tommi Tervonen
November 2021, Volume 14, Issue 6
- 695-697 FDA Guidance on Assessment of Patient-Reported Outcomes in Cancer Trials: A Breath of Fresh Air or a Storm in a Teacup?
by Ari Gnanasakthy - 699-710 Patient-Powered Research Networks of the Autoimmune Research Collaborative: Rationale, Capacity, and Future Directions
by W. Benjamin Nowell & Peter A. Merkel & Robert N. McBurney & Kalen Young & Shilpa Venkatachalam & Dianne G. Shaw & Angela Dobes & Emily Cerciello & Laura Kolaczkowski & Jeffrey R. Curtis & Michael D. Kappelman - 711-718 Conducting Qualitative Research Online: Challenges and Solutions
by Stacy M. Carter & Patti Shih & Jane Williams & Chris Degeling & Julie Mooney-Somers - 719-740 The Perspectives of Patients with Chronic Diseases and Their Caregivers on Self-Management Interventions: A Scoping Review of Reviews
by Ena Niño de Guzmán Quispe & Laura Martínez García & Carola Orrego Villagrán & Monique Heijmans & Rosa Sunol & David Fraile-Navarro & Javier Pérez-Bracchiglione & Lyudmil Ninov & Karla Salas-Gama & Andrés Viteri García & Pablo Alonso-Coello - 741-758 Methods for Conducting Stated Preference Research with Children and Adolescents in Health: A Scoping Review of the Application of Discrete Choice Experiments
by Christine Michaels-Igbokwe & Gillian R. Currie & Bryanne L. Kennedy & Karen V. MacDonald & Deborah A. Marshall - 759-773 Patient-Reported Experience and Outcome Measures in People Living with Diabetes: A Scoping Review of Instruments
by Jimmy Martin-Delgado & Mercedes Guilabert & José Mira-Solves - 775-790 A Systematic Review of Discrete Choice Experiments in Oncology Treatments
by Hannah Collacott & Vikas Soekhai & Caitlin Thomas & Anne Brooks & Ella Brookes & Rachel Lo & Sarah Mulnick & Sebastian Heidenreich - 791-802 Don’t Forget the Caregivers! A Discrete Choice Experiment Examining Caregiver Views of Integrated Youth Services
by Lisa D. Hawke & Lehana Thabane & Leanne Wilkins & Steve Mathias & Srividya Iyer & Joanna Henderson - 803-813 Valuing End-of-Life Care for Older People with Advanced Cancer: Is Dying at Home Important?
by Patricia Kenny & Deborah J. Street & Jane Hall & Meera Agar & Jane Phillips - 815-826 Designing HIV Testing and Self-Testing Services for Young People in Nigeria: A Discrete Choice Experiment
by Jason J. Ong & Ucheoma Nwaozuru & Chisom Obiezu-Umeh & Collins Airhihenbuwa & Hong Xian & Fern Terris-Prestholt & Titilola Gbajabiamila & Adesola Z. Musa & David Oladele & Ifeoma Idigbe & Agatha David & Jane Okwuzu & Tajudeen Bamidele & Juliet Iwelunmor & Joseph D. Tucker & Oliver Ezechi - 827-836 The Impact of the Risk Functional Form Assumptions on Maximum Acceptable Risk Measures
by Juan Marcos Gonzalez & Marco Boeri - 837-847 Assessing Patient Preferences in Rare Diseases: Direct Preference Elicitation in the Rare Chronic Kidney Disease, Immunoglobulin A Nephropathy
by Kevin Marsh & Kerrie-Anne Ho & Rachel Lo & Nancy Zaour & Aneesh Thomas George & Nigel S. Cook - 849-862 Patient-Reported Outcomes Through 1 Year of an HIV-1 Clinical Trial Evaluating Long-Acting Cabotegravir and Rilpivirine Administered Every 4 or 8 Weeks (ATLAS-2M)
by Vasiliki Chounta & Edgar T. Overton & Anthony Mills & Susan Swindells & Paul D. Benn & Simon Vanveggel & Rodica Solingen-Ristea & Yuanyuan Wang & Krischan J. Hudson & Mark S. Shaefer & David A. Margolis & Kimberly Y. Smith & William R. Spreen - 869-870 Comment on Health Literacy: The Common Denominator of Healthcare Progress
by Halah Ibrahim & Satish Chandrasekhar Nair - 871-871 Authors’ Reply to Ibrahim and Nair’s Comment on: “Health Literacy: The Common Denominator of Healthcare Progress”
by Peter J. Pitts & Emily Freeman
September 2021, Volume 14, Issue 5
- 449-453 Methodological Priorities for Patient Preferences Research: Stakeholder Input to the PREFER Public–Private Project
by Ian P. Smith & Rachael L. DiSantostefano & Esther W. de Bekker-Grob & Bennett Levitan & Conny Berlin & Jorien Veldwijk & G. Ardine de Wit - 455-458 Health Literacy: The Common Denominator of Healthcare Progress
by Peter J. Pitts & Emily Freeman - 459-469 Time for Tele-TTO? Lessons Learned From Digital Interviewer-Assisted Time Trade-Off Data Collection
by Stefan A. Lipman - 471-484 Patient Centeredness in Hepatitis C Direct-Acting Antiviral Treatment Delivery to People Who Inject Drugs: A Scoping Review
by Moaz Abdelwadoud & T. Joseph Mattingly & Hemanuel Arroyo Seguí & Emily F. Gorman & Eleanor M. Perfetto - 485-503 The Use of Patient-Reported Outcome Measures in Rare Diseases and Implications for Health Technology Assessment
by Amanda Whittal & Michela Meregaglia & Elena Nicod - 505-532 What Are the Preferences of Patients With Rheumatoid Arthritis for Treatment Modification? A Scoping Review
by Suz Jack Chan & Hui Yee Yeo & Lisa K. Stamp & Gareth J. Treharne & Carlo A. Marra - 533-543 Development of a Patient-Reported Outcome Measure for Non-Alcoholic Steatohepatitis (NASH-CHECK): Results of a Qualitative Study
by Lynda C. Doward & Maria-Magdalena Balp & James Twiss & Christina Slota & Donna Cryer & Clifford A. Brass & Quentin M. Anstee & Arun J. Sanyal - 545-553 Patient and Public Involvement Refines the Design of ProtOeus: A Proposed Phase II Trial of Proton Beam Therapy in Oesophageal Cancer
by Owen J. Nicholas & Olivier Joseph & Annie Keane & Kate Cleary & Sue H. Campbell & Sarah H. Gwynne & Tom Crosby & Ganesh Radhakrishna & Maria A. Hawkins - 555-567 Process- and Outcome-Based Financial Incentives to Improve Self-Management and Glycemic Control in People with Type 2 Diabetes in Singapore: A Randomized Controlled Trial
by Marcel Bilger & Mitesh Shah & Ngiap Chuan Tan & Cynthia Y. L. Tan & Filipinas G. Bundoc & Joann Bairavi & Eric A. Finkelstein - 569-579 Prioritization and Refinement of Patient-Informed Value Elements as Attributes for Chronic Obstructive Pulmonary Disease Treatment Preferences
by Julia F. Slejko & Yoon Duk Hong & Jamie L. Sullivan & Robert M. Reed & Susan dosReis - 581-589 Discordance Between Advanced Cancer Patients’ Perceived and Preferred Roles in Decision Making and its Association with Psychological Distress and Perceived Quality of Care
by Semra Ozdemir & Yubing Tian & Chetna Malhotra & Richard Harding & Gerald Choon Huat Koh & Nesaretnam Barr Kumarakulasinghe & Lai Heng Lee & Ssu Wynn Mon & Eric Finkelstein - 591-600 A New Approach to Assessing Children’s Interpretation of Severity Qualifiers in a Multi-Attribute Utility Instrument–The EQ-5D-Y-5L: Development and Testing
by Sarah Derrett & Mike Herdman & Lucky G. Ngwira & Elizabeth Yohe Moore & Jennifer Jelsma - 601-612 Patient Preferences in Rare Diseases: A Qualitative Study in Neuromuscular Disorders to Inform a Quantitative Preference Study
by A. Cecilia Jimenez-Moreno & Eline Overbeeke & Cathy Anne Pinto & Ian Smith & Jenny Sharpe & James Ormrod & Chiara Whichello & Esther W. Bekker-Grob & Kristin Bullok & Bennett Levitan & Isabelle Huys & G. Ardine Wit & Grainne Gorman - 613-623 Patient Perceptions Regarding Multiple Myeloma and Its Treatment: Qualitative Evidence from Interviews with Patients in the United Kingdom, France, and Germany
by Jianming He & Ashley Duenas & Hannah Collacott & Annette Lam & Katharine S. Gries & Robin Carson & Dietrich Potthoff & Nicola Trevor & Tommi Tervonen - 625-634 Patient-Evaluated Quality of Care is Related to Better Inflammatory Bowel Disease Outcomes: The IQCARO II Project
by Xavier Calvet & Fransesc Casellas & Roberto Saldaña & Daniel Carpio & Miguel Mínguez & Isabel Vera & Laura Marín & Berta Juliá - 635-647 Should I Have Adjuvant Immunotherapy? An Interview Study Among Adults with Resected Stage 3 Melanoma and Their Partners
by Ann Livingstone & Donna Milne & Kathy Dempsey & Danielle Marie Muscat & Alexander M. Menzies & Kirsten Howard & Martin R. Stockler & Rachael L. Morton