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Physical Activity Preferences of People Living with Brain Injury: Formative Qualitative Research to Develop a Discrete Choice Experiment

Author

Listed:
  • Abby Haynes

    (Sydney Musculoskeletal Health: The University of Sydney and Sydney Local Health District
    The University of Sydney
    Sydney Musculoskeletal Health)

  • Kirsten Howard

    (The University of Sydney)

  • Liam Johnson

    (University of Melbourne
    Australian Catholic University)

  • Gavin Williams

    (University of Melbourne
    Epworth HealthCare)

  • Kelly Clanchy

    (Griffith Health, Griffith University
    Menzies Health Institute of Queensland, Griffith University)

  • Sean Tweedy

    (University of Queensland)

  • Adam Scheinberg

    (Murdoch Children’s Research Institute
    University of Melbourne)

  • Sakina Chagpar

    (Sydney Musculoskeletal Health: The University of Sydney and Sydney Local Health District
    The University of Sydney)

  • Belinda Wang

    (Sydney Musculoskeletal Health: The University of Sydney and Sydney Local Health District
    The University of Sydney)

  • Gabrielle Vassallo

    (Independent consumer representative)

  • Rhys Ashpole

    (Insurance and Care (icare) NSW)

  • Catherine Sherrington

    (Sydney Musculoskeletal Health: The University of Sydney and Sydney Local Health District
    The University of Sydney)

  • Leanne Hassett

    (Sydney Musculoskeletal Health: The University of Sydney and Sydney Local Health District
    The University of Sydney
    Sydney Health Partners)

Abstract

Background and Objective The World Health Organization physical activity guidelines for people living with disability do not consider the needs of people living with moderate-to-severe traumatic brain injury. This paper describes the qualitative co-development of a discrete choice experiment survey to inform the adaption of these guidelines by identifying the physical activity preferences of people living with moderate-to-severe traumatic brain injury in Australia. Methods The research team comprised researchers, people with lived experience of traumatic brain injury and health professionals with expertise in traumatic brain injury. We followed a four-stage process: (1) identification of key constructs and initial expression of attributes, (2) critique and refinement of attributes, (3) prioritisation of attributes and refinement of levels and (4) testing and refining language, format and comprehensibility. Data collection included deliberative dialogue, focus groups and think-aloud interviews with 22 purposively sampled people living with moderate-to-severe traumatic brain injury. Strategies were used to support inclusive participation. Analysis employed qualitative description and framework methods. Results This formative process resulted in discarding, merging, renaming and reconceptualising attributes and levels. Attributes were reduced from an initial list of 17 to six: (1) Type of activity, (2) Out-of-pocket cost, (3) Travel time, (4) Who with, (5) Facilitated by and (6) Accessibility of setting. Confusing terminology and cumbersome features of the survey instrument were also revised. Challenges included purposive recruitment, reducing diverse stakeholder views to a few attributes, finding the right language and navigating the complexity of discrete choice experiment scenarios. Conclusions This formative co-development process significantly improved the relevance and comprehensibility of the discrete choice experiment survey tool. This process may be applicable in other discrete choice experiment studies.

Suggested Citation

  • Abby Haynes & Kirsten Howard & Liam Johnson & Gavin Williams & Kelly Clanchy & Sean Tweedy & Adam Scheinberg & Sakina Chagpar & Belinda Wang & Gabrielle Vassallo & Rhys Ashpole & Catherine Sherrington, 2023. "Physical Activity Preferences of People Living with Brain Injury: Formative Qualitative Research to Develop a Discrete Choice Experiment," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 16(4), pages 385-398, July.
    • Handle: RePEc:spr:patien:v:16:y:2023:i:4:d:10.1007_s40271-023-00628-9
    DOI: 10.1007/s40271-023-00628-9
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    References listed on IDEAS

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    1. Vibha Kaushik & Christine A. Walsh, 2019. "Pragmatism as a Research Paradigm and Its Implications for Social Work Research," Social Sciences, MDPI, vol. 8(9), pages 1-17, September.
    2. Anna Rydén & Stephanie Chen & Emuella Flood & Beverly Romero & Susan Grandy, 2017. "Discrete Choice Experiment Attribute Selection Using a Multinational Interview Study: Treatment Features Important to Patients with Type 2 Diabetes Mellitus," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 10(4), pages 475-487, August.
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