Including Young Children in the Development and Testing of Patient Reported Outcome (PRO) Instruments: A Scoping Review of Children’s Involvement and Qualitative Methods
Author
Abstract
Suggested Citation
DOI: 10.1007/s40271-023-00637-8
Download full text from publisher
As the access to this document is restricted, you may want to search for a different version of it.
References listed on IDEAS
- Joseph Kwon & Louise Freijser & Elisabeth Huynh & Martin Howell & Gang Chen & Kamran Khan & Shahd Daher & Nia Roberts & Conrad Harrison & Sarah Smith & Nancy Devlin & Kirsten Howard & Emily Lancsar & , 2022. "Correction to: Systematic Review of Conceptual, Age, Measurement and Valuation Considerations for Generic Multidimensional Childhood Patient-Reported Outcome Measures," PharmacoEconomics, Springer, vol. 40(4), pages 477-478, April.
- Milad Karimi & John Brazier, 2016. "Health, Health-Related Quality of Life, and Quality of Life: What is the Difference?," PharmacoEconomics, Springer, vol. 34(7), pages 645-649, July.
- Joseph Kwon & Louise Freijser & Elisabeth Huynh & Martin Howell & Gang Chen & Kamran Khan & Shahd Daher & Nia Roberts & Conrad Harrison & Sarah Smith & Nancy Devlin & Kirsten Howard & Emily Lancsar & , 2022. "Systematic Review of Conceptual, Age, Measurement and Valuation Considerations for Generic Multidimensional Childhood Patient-Reported Outcome Measures," PharmacoEconomics, Springer, vol. 40(4), pages 379-431, April.
- Samantha Husbands & Paul Mark Mitchell & Joanna Coast, 2020. "A Systematic Review of the Use and Quality of Qualitative Methods in Concept Elicitation for Measures with Children and Young People," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 13(3), pages 257-288, June.
Most related items
These are the items that most often cite the same works as this one and are cited by the same works as this one.- Louis S. Matza & Katie D. Stewart & Marie Fournier & Donna Rowen & Robin Lachmann & Maurizio Scarpa & Eugen Mengel & Travis Obermeyer & Evren Ayik & Fernando Laredo & Ruth Pulikottil-Jacob, 2024. "Assessment of health state utilities associated with adult and pediatric acid sphingomyelinase deficiency (ASMD)," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 25(8), pages 1437-1448, November.
- Powell, Philip A. & Rowen, Donna & Keetharuth, Anju & Mukuria, Clara & Shah, Koonal, 2024. "Who should value children's health and how? An international Delphi study," Social Science & Medicine, Elsevier, vol. 355(C).
- Octavio Pano & Carmen Sayón-Orea & Alfredo Gea & Maira Bes-Rastrollo & Miguel Ángel Martínez-González & J. Alfredo Martínez, 2020. "Nutritional Determinants of Quality of Life in a Mediterranean Cohort: The SUN Study," IJERPH, MDPI, vol. 17(11), pages 1-17, May.
- Suparb Aree‐Ue & Usa Kongsombun & Inthira Roopsawang & Phichpraorn Youngcharoen, 2019. "Path model of factors influencing health‐related quality of life among older people with knee osteoarthritis," Nursing & Health Sciences, John Wiley & Sons, vol. 21(3), pages 345-351, September.
- Ariana Amariles-Baena & Catalina Sosa-Palacio & Andrés A. Agudelo-Suárez, 2022. "Quality of Life and Related Factors in Specialists on Pediatric Dentistry and the like Graduated from a Public University: A Mixed Methods Approach," IJERPH, MDPI, vol. 19(20), pages 1-22, October.
- Marc Audi & Amjad Ali, 2023.
"The Role of Environmental Conditions and Purchasing Power Parity in Determining Quality of Life among Big Asian Cities,"
International Journal of Energy Economics and Policy, Econjournals, vol. 13(3), pages 292-305, May.
- Ali, Amjad & Audi, Marc & Al-Masri, Razan, 2022. "The role of environmental conditions and purchasing power parity in determining quality of life among big Asian cities," MPRA Paper 115166, University Library of Munich, Germany, revised 26 Oct 2022.
- Ali, Amjad & Audi, Marc & Al-Masri, Razan, 2022. "The role of environmental conditions and purchasing power parity in determining auality of life among big Asian cities," MPRA Paper 115030, University Library of Munich, Germany.
- Le Grande, M. & Ski, C.F. & Thompson, D.R. & Scuffham, P. & Kularatna, S. & Jackson, A.C. & Brown, A., 2017. "Social and emotional wellbeing assessment instruments for use with Indigenous Australians: A critical review," Social Science & Medicine, Elsevier, vol. 187(C), pages 164-173.
- María Dolores Ruiz-Fernández & Ángela María Ortega-Galán & Cayetano Fernández-Sola & José Manuel Hernández-Padilla & José Granero-Molina & Juan Diego Ramos-Pichardo, 2020. "Occupational Factors Associated with Health-Related Quality of Life in Nursing Professionals: A Multi-Centre Study," IJERPH, MDPI, vol. 17(3), pages 1-12, February.
- Shu‐Fang Chang & Shu‐Ching Chiu, 2020. "Effect of resistance training on quality of life in older people with sarcopenic obesity living in long‐term care institutions: A quasi‐experimental study," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(13-14), pages 2544-2556, July.
- Tessa Peasgood & Jill Carlton & John Brazier, 2019. "A Qualitative Study of the Views of Health and Social Care Decision-Makers on the Role of Wellbeing in Resource Allocation Decisions in the UK," Economies, MDPI, vol. 7(1), pages 1-13, February.
- Irene Fernández & Noemí Sansó & José M. Tomás, 2024. "A Longitudinal Study of the Effect of Memory on the Quality of life of European Adults and Older Adults," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 19(4), pages 1859-1876, August.
- Andrés A. Agudelo-Suárez & Annie M. Vivares-Builes & Natalia Muñoz-Pino & José Miguel Martínez-Martínez & Alison Reid & Elena Ronda-Pérez, 2019. "Oral Health-Related Quality of Life in Native and Immigrant Populations in the PELFI Study in Spain," IJERPH, MDPI, vol. 16(10), pages 1-14, May.
- Billingsley Kaambwa & Hailay Abrha Gesesew & Matthew Horsfall & Derek Chew, 2020. "Quality of Life Changes in Acute Coronary Syndromes Patients: A Systematic Review and Meta-Analysis," IJERPH, MDPI, vol. 17(18), pages 1-28, September.
- Nadine Simo & Denis Boucaud-Maitre & Pierre Gebhard & Roxane Villeneuve & Leila Rinaldo & Jean-François Dartigues & Moustapha Drame & Maturin Tabue-Teguo, 2023. "Correlates of Health-Related Quality of Life in Community-Dwelling Older Adults in Guadeloupe (French West Indies): Results from the KASADS Study," IJERPH, MDPI, vol. 20(4), pages 1-9, February.
- Sollis, Kate & Yap, Mandy & Campbell, Paul & Biddle, Nicholas, 2022. "Conceptualisations of wellbeing and quality of life: A systematic review of participatory studies," World Development, Elsevier, vol. 160(C).
- Ian Ross & Giulia Greco & Charles Opondo & Zaida Adriano & Rassul Nala & Joe Brown & Robert Dreibelbis & Oliver Cumming, 2022. "Measuring and valuing broader impacts in public health: Development of a sanitation‐related quality of life instrument in Maputo, Mozambique," Health Economics, John Wiley & Sons, Ltd., vol. 31(3), pages 466-480, March.
- Husbands, Samantha & Mitchell, Paul Mark & Kinghorn, Philip & Byford, Sarah & Bailey, Cara & Anand, Paul & Peters, Tim J. & Floredin, Isabella & Coast, Joanna, 2024. "Is well-becoming important for children and young people? Evidence from in-depth interviews with children and young people and their parents," LSE Research Online Documents on Economics 122060, London School of Economics and Political Science, LSE Library.
- Gina Ioan & Ionel Sergiu Pirju & Manuela Carmen Panaitescu & Tincuța Vrabie, 2024. "Assessing Economic Development and Quality of Life: A Management Perspective on Romania and the Republic of Moldova," Sustainability, MDPI, vol. 16(11), pages 1-17, May.
- Abraham G. Welie & Elly Stolk & Clara Mukuria & Yared Belete Belay & Murray D. Krahn & Beate Sander & Gebremedhin Beedemariam Gebretekle, 2022. "Reliability and validity of using EQ-5D-5L among healthy and adolescents with major mental health disorders in Ethiopia," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 23(7), pages 1105-1119, September.
- Wilmer A. Romo-Cabrera & Andrés A. Agudelo-Suárez, 2022. "A Comprehensive Mixed Methods Approach for Studying the Quality of Life of Colombian Periodontists," IJERPH, MDPI, vol. 19(23), pages 1-20, December.
Corrections
All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:spr:patien:v:16:y:2023:i:5:d:10.1007_s40271-023-00637-8. See general information about how to correct material in RePEc.
If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.
If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .
If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.
For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Sonal Shukla or Springer Nature Abstracting and Indexing (email available below). General contact details of provider: http://www.springer.com .
Please note that corrections may take a couple of weeks to filter through the various RePEc services.