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Coverage of Allies, Allyship and Disabled People: A Scoping Review

Author

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  • Gregor Wolbring

    (Community Rehabilitation and Disability Studies, Cumming School of Medicine, University of Calgary, Calgary, AB T2N 4N1, Canada)

  • Aspen Lillywhite

    (2J2.00 Walter C. MacKenzie Health Sciences Centre, Faculty of Medicine & Dentistry, University of Alberta, Edmonton, AB T6G 2R7, Canada)

Abstract

Disabled people face many problems in their lived reality, as evidenced by the content of the UN Convention on the Rights of Persons with Disabilities. Disabled people are constantly engaged in activism to decrease their problems. However, disabled people cannot do all the work by themselves and need allies (who can be so-called non-disabled people or disabled people of a different background to other disabled people) given the many barriers disabled people face in being activists, given the precarious lived reality of many, and given the many problems in need of solving. At the same time, the expectations linked to being an authentic ally of disabled people pose many challenges and stressors and a danger of burnout for the ally. Therefore, the aim of this study was to better understand the academic coverage of allyship and allies in relation to disabled people in general, and specifically the coverage of challenges, stressors, and danger of burnout for allies of disabled people. To fulfill this aim, we performed a scoping review of academic abstracts and full texts employing SCOPUS, the seventy databases of the EBSCO-HOST and the Web of Science. Of the 577 abstracts, covering allies and allyship in relation to disabled people that were downloaded, 306 were false positives. Of the 271 relevant ones, the content of six abstracts suggested a deeper coverage of allyship/allies in the full texts. Within the full texts, two mentioned ally burnout and four mentioned challenges faced by allies. Among the 271 abstracts, 86 abstracts mentioned allies without indicating who the allies were, 111 abstracts mentioned specific allies with technology as an ally being mentioned second highest. Sixty-three abstracts covered specific topics of activism for allies. Furthermore, although searching abstracts for equity, diversity, and inclusion (EDI) related phrases, terms, and policy frameworks generated sixty-three abstracts, only three abstracts mentioned disabled people. Abstracts containing science and technology governance or technology focused ethics fields terms did not generate any hits with the terms ally or allies or allyship. Searching abstracts and full texts, phrases containing ally or allies or allyship and burnout had 0 hits, ally terms with stress* generated four hits and phrases containing anti-ableism, or anti disablism, anti-disableist, anti-disablist, anti-ablist, or anti-ableist with ally terms had 0 hits. Our findings show many gaps in the coverage of allies and allyship in relation to disabled people especially around the barriers, stressors, and burnout that authentic allies of disabled people can face. These gaps should be filled given that disabled people need allies and that there are many challenges for being an authentic disabled or non-disabled ally of disabled people.

Suggested Citation

  • Gregor Wolbring & Aspen Lillywhite, 2023. "Coverage of Allies, Allyship and Disabled People: A Scoping Review," Societies, MDPI, vol. 13(11), pages 1-38, November.
  • Handle: RePEc:gam:jsoctx:v:13:y:2023:i:11:p:241-:d:1279212
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    References listed on IDEAS

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    1. Tom Shakespeare, 2015. "Gene editing: Heed disability views," Nature, Nature, vol. 527(7579), pages 446-446, November.
    2. Gregor Wolbring, 2015. "Gene editing: Govern ability expectations," Nature, Nature, vol. 527(7579), pages 446-446, November.
    3. Meg A. Warren & Michael T. Warren, 2023. "The EThIC Model of Virtue-Based Allyship Development: A New Approach to Equity and Inclusion in Organizations," Journal of Business Ethics, Springer, vol. 182(3), pages 783-803, January.
    4. Gregor Wolbring & Simerta Gill, 2023. "Potential Impact of Environmental Activism: A Survey and a Scoping Review," Sustainability, MDPI, vol. 15(4), pages 1-46, February.
    5. Gregor Wolbring & Aspen Lillywhite, 2023. "Burnout through the Lenses of Equity/Equality, Diversity and Inclusion and Disabled People: A Scoping Review," Societies, MDPI, vol. 13(5), pages 1-31, May.
    6. Giulia Barbareschi & Mark T. Carew & Elizabeth Aderonke Johnson & Norah Kopi & Catherine Holloway, 2021. "“When They See a Wheelchair, They’ve Not Even Seen Me”—Factors Shaping the Experience of Disability Stigma and Discrimination in Kenya," IJERPH, MDPI, vol. 18(8), pages 1-20, April.
    7. Chiara Salvatore & Gregor Wolbring, 2021. "Children and Youth Environmental Action: The Case of Children and Youth with Disabilities," Sustainability, MDPI, vol. 13(17), pages 1-27, September.
    8. Aspen Lillywhite & Gregor Wolbring, 2020. "Coverage of Artificial Intelligence and Machine Learning within Academic Literature, Canadian Newspapers, and Twitter Tweets: The Case of Disabled People," Societies, MDPI, vol. 10(1), pages 1-27, February.
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    Cited by:

    1. Gregor Wolbring & Rochelle Deloria, 2024. "Health Equity and Health Inequity of Disabled People: A Scoping Review," Sustainability, MDPI, vol. 16(16), pages 1-51, August.
    2. Tsion Berie & Sean A. Kidd & Gregor Wolbring, 2024. "Poverty (Number 1 Goal of the SDG) of Disabled People through Disability Studies and Ability Studies Lenses: A Scoping Review," Sustainability, MDPI, vol. 16(13), pages 1-52, July.
    3. Gregor Wolbring & Laiba Nasir & Dana Mahr, 2024. "Academic Coverage of Online Activism of Disabled People: A Scoping Review," Societies, MDPI, vol. 14(11), pages 1-55, October.
    4. Gregor Wolbring & Laiba Nasir, 2024. "Intersectionality of Disabled People through a Disability Studies, Ability-Based Studies, and Intersectional Pedagogy Lens: A Survey and a Scoping Review," Societies, MDPI, vol. 14(9), pages 1-77, September.

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