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Expanding Possibilities for Inclusive Research: Learning from People with Profound Intellectual and Multiple Disabilities and Decolonising Research

Author

Listed:
  • Joanna Grace

    (School of Education, University of Southampton, Southampton SO17 1BJ, UK)

  • Melanie Nind

    (School of Education, University of Southampton, Southampton SO17 1BJ, UK)

  • Catherine de Haas

    (School of Education, University of Southampton, Southampton SO17 1BJ, UK)

  • Joanna Hope

    (School of Health Sciences, University of Southampton, Southampton SO17 1BJ, UK
    National Institute for Health Research (NIHR), Applied Research Collaboration (ARC), Wessex, Southampton SO16 7NP, UK)

Abstract

This paper pursues the argument that finding a way for people with profound intellectual and multiple disabilities to belong in inclusive research requires starting from a deep knowledge of the people in question. This paper illustrates this idea in action showing what can be possible from building research around ‘being with’ people with profound intellectual disabilities, creating intersubjective knowledge together. It follows the journey of fostering a relational research space that a young person with profound intellectual and multiple disabilities can occupy, their assenting to share the space and ensuing exploring together in embodied ways. Small stories show where this particular open road of inclusive research can lead. The analysis interacts with provocations from decolonising research that demand respect for wider ways of knowing, doing research and being human. The paper invites reflection on the ways in which research needs to be deconstructed to be inclusive for all.

Suggested Citation

  • Joanna Grace & Melanie Nind & Catherine de Haas & Joanna Hope, 2024. "Expanding Possibilities for Inclusive Research: Learning from People with Profound Intellectual and Multiple Disabilities and Decolonising Research," Social Sciences, MDPI, vol. 13(1), pages 1-12, January.
    • Handle: RePEc:gam:jscscx:v:13:y:2024:i:1:p:37-:d:1314595
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    References listed on IDEAS

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    1. Catherine de Haas & Joanna Grace & Joanna Hope & Melanie Nind, 2022. "Doing Research Inclusively: Understanding What It Means to Do Research with and Alongside People with Profound Intellectual Disabilities," Social Sciences, MDPI, vol. 11(4), pages 1-13, April.
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