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The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review

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  • Bradbury-Jones, Caroline
  • Isham, Louise
  • Taylor, Julie

Abstract

Participatory research carried out by or with children, has become a well-established and valuable part of the research landscape investigating children's lives, views and needs. So too has a critical agenda about its ethical implications and methodological complexities. One criticism is that the involvement of children who may be considered ‘vulnerable’ or ‘marginalised’ has been slower to take root within mainstream participatory practice. This means that there has been less focus on how groups such as disabled children or children affected by abuse or neglect can shape and challenge adult-dominated types of knowledge and decision-making that are likely to affect them. This article reports on the findings of a qualitative systematic literature review of thirteen contemporary papers. The review was undertaken by a UK team in 2017. The included articles explored some core ethical and methodological issues involved in carrying out participatory research with vulnerable children and young people. It reports on three themes: 1) The extent to which participatory spaces could recalibrate opportunities and attention given to marginalised and silenced groups; 2) The ways in which these children and young people could develop skills and exercise political and moral agency through participatory activity, and, 3) How to facilitate meaningful engagement with individuals and groups and reconcile this with a critical appreciation of the important but limited nature of research as means of political and social change. The review provides a unique, contemporary analysis of participatory research with vulnerable children, illuminating in particular its conceptual complexities and contradictions, particularly regarding power, empowerment and voice. Its overall utility and interest is augmented by the disciplinary and geographical breadth of the included articles, rendering it relevant to many contexts and countries.

Suggested Citation

  • Bradbury-Jones, Caroline & Isham, Louise & Taylor, Julie, 2018. "The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review," Social Science & Medicine, Elsevier, vol. 215(C), pages 80-91.
    • Handle: RePEc:eee:socmed:v:215:y:2018:i:c:p:80-91
    DOI: 10.1016/j.socscimed.2018.08.038
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    References listed on IDEAS

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    1. Woodgate, Roberta L. & Zurba, Melanie & Tennent, Pauline & Cochrane, Carla & Payne, Mike & Mignone, Javier, 2017. "“People try and label me as someone I'm not”: The social ecology of Indigenous people living with HIV, stigma, and discrimination in Manitoba, Canada," Social Science & Medicine, Elsevier, vol. 194(C), pages 17-24.
    2. Alistair Hewison & Nicola Gale & Jonathan Shapiro, 2012. "Co-production in research: some reflections on the experience of engaging practitioners in health research," Public Money & Management, Taylor & Francis Journals, vol. 32(4), pages 297-302, July.
    3. Koen, Jennifer & Wassenaar, Douglas & Mamotte, Nicole, 2017. "The ‘over-researched community’: An ethics analysis of stakeholder views at two South African HIV prevention research sites," Social Science & Medicine, Elsevier, vol. 194(C), pages 1-9.
    4. Alderson, Priscilla, 2007. "Competent children? Minors' consent to health care treatment and research," Social Science & Medicine, Elsevier, vol. 65(11), pages 2272-2283, December.
    5. W. H. Voorberg & V. J. J. M. Bekkers & L. G. Tummers, 2015. "A Systematic Review of Co-Creation and Co-Production: Embarking on the social innovation journey," Public Management Review, Taylor & Francis Journals, vol. 17(9), pages 1333-1357, October.
    6. Ostrom, Elinor, 1996. "Crossing the great divide: Coproduction, synergy, and development," World Development, Elsevier, vol. 24(6), pages 1073-1087, June.
    7. Damon, Will & Callon, Cody & Wiebe, Lee & Small, Will & Kerr, Thomas & McNeil, Ryan, 2017. "Community-based participatory research in a heavily researched inner city neighbourhood: Perspectives of people who use drugs on their experiences as peer researchers," Social Science & Medicine, Elsevier, vol. 176(C), pages 85-92.
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    1. Stefania Velardo & Christina M. Pollard & Jessica Shipman & Sue Booth, 2021. "How Do Disadvantaged Children Perceive, Understand and Experience Household Food Insecurity?," IJERPH, MDPI, vol. 18(8), pages 1-16, April.
    2. Schmidt-Sane, Megan M. & Benninger, Elizabeth & Spilsbury, James C., 2023. "Youth Lens methodology: Critical participatory action research with youth in Cleveland, Ohio," Children and Youth Services Review, Elsevier, vol. 155(C).
    3. Sarah Baird & Laura Camfield & Ashraful Haque & Nicola Jones & Anas Masri & Kate Pincock & Mahesh C. Puri, 2021. "No One Left Behind: Using Mixed-Methods Research to Identify and Learn from Socially Marginalised Adolescents in Low- and Middle-Income Countries," The European Journal of Development Research, Palgrave Macmillan;European Association of Development Research and Training Institutes (EADI), vol. 33(5), pages 1163-1188, October.

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