IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v194y2017icp1-9.html
   My bibliography  Save this article

The ‘over-researched community’: An ethics analysis of stakeholder views at two South African HIV prevention research sites

Author

Listed:
  • Koen, Jennifer
  • Wassenaar, Douglas
  • Mamotte, Nicole

Abstract

Health research in resource-limited, multi-cultural contexts raises complex ethical concerns. The term ‘over-researched community’ (ORC) has been raised as an ethical concern and potential barrier to community participation in research. However, the term lacks conceptual clarity and is absent from established ethics guidelines and academic literature. In light of the concern being raised in relation to research in low- and middle-income countries (LMICs), a critical and empirical exploration of the meaning of ORC was undertaken.

Suggested Citation

  • Koen, Jennifer & Wassenaar, Douglas & Mamotte, Nicole, 2017. "The ‘over-researched community’: An ethics analysis of stakeholder views at two South African HIV prevention research sites," Social Science & Medicine, Elsevier, vol. 194(C), pages 1-9.
    • Handle: RePEc:eee:socmed:v:194:y:2017:i:c:p:1-9
    DOI: 10.1016/j.socscimed.2017.10.005
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S027795361730610X
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.socscimed.2017.10.005?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Ma Ching-to Albert, 2008. "Health Care Economics and Policy: An Introduction," The B.E. Journal of Economic Analysis & Policy, De Gruyter, vol. 8(2), pages 1-4, January.
    2. Guta, Adrian & Strike, Carol & Flicker, Sarah & J. Murray, Stuart & Upshur, Ross & Myers, Ted, 2014. "Governing through community-based research: Lessons from the Canadian HIV research sector," Social Science & Medicine, Elsevier, vol. 123(C), pages 250-261.
    3. London, L., 2002. "Ethical oversight of public health research: Can rules and IRBs make a difference in developing countries?," American Journal of Public Health, American Public Health Association, vol. 92(7), pages 1079-1084.
    4. Salim S. Abdool Karim & Quarraisha Abdool Karim, 2010. "AIDS research must link to local policy," Nature, Nature, vol. 463(7282), pages 733-734, February.
    5. Donald B. Hausch & Victor S. Y. Lo & William T. Ziemba, 2008. "Introduction to Economics and Mathematical Insights," World Scientific Book Chapters, in: Donald B Hausch & Victor SY Lo & William T Ziemba (ed.), Efficiency Of Racetrack Betting Markets, chapter 12, pages 87-91, World Scientific Publishing Co. Pte. Ltd..
    6. N/A, 2008. "Introductory Remarks," China Report, , vol. 44(1), pages 31-32, February.
    7. Menezes, Flavio M., 2008. "An Introduction to Auction Theory," OUP Catalogue, Oxford University Press, number 9780199275991.
    8. Barsdorf, Nicola Wendy & Wassenaar, Douglas Richard, 2005. "Racial differences in public perceptions of voluntariness of medical research participants in South Africa," Social Science & Medicine, Elsevier, vol. 60(5), pages 1087-1098, March.
    9. Maureen Njue & Francis Kombe & Salim Mwalukore & Sassy Molyneux & Vicki Marsh, 2014. "What Are Fair Study Benefits in International Health Research? Consulting Community Members in Kenya," PLOS ONE, Public Library of Science, vol. 9(12), pages 1-21, December.
    10. Lairumbi, Geoffrey Mbaabu & Molyneux, Sassy & Snow, Robert W. & Marsh, Kevin & Peshu, Norbert & English, Mike, 2008. "Promoting the social value of research in Kenya: Examining the practical aspects of collaborative partnerships using an ethical framework," Social Science & Medicine, Elsevier, vol. 67(5), pages 734-747, September.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Bradbury-Jones, Caroline & Isham, Louise & Taylor, Julie, 2018. "The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review," Social Science & Medicine, Elsevier, vol. 215(C), pages 80-91.
    2. Akhenaten Siankam Tankwanchi & Emmanuella N. Asabor & Sten H. Vermund, 2023. "Global Health Perspectives on Race in Research: Neocolonial Extraction and Local Marginalization," IJERPH, MDPI, vol. 20(13), pages 1-23, June.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Lim, Eunjung, 2016. "Multilateral approach to the back end of the nuclear fuel cycle in Asia-Pacific?," Energy Policy, Elsevier, vol. 99(C), pages 158-164.
    2. de Oliveira Santos, Glauber Eduardo, 2016. "Worldwide hedonic prices of subjective characteristics of hostels," Tourism Management, Elsevier, vol. 52(C), pages 451-454.
    3. Keatley, P. & Shibli, A. & Hewitt, N.J., 2013. "Estimating power plant start costs in cyclic operation," Applied Energy, Elsevier, vol. 111(C), pages 550-557.
    4. Pappalepore, Ilaria & Duignan, Michael B., 2016. "The London 2012 cultural programme: A consideration of Olympic impacts and legacies for small creative organisations in east London," Tourism Management, Elsevier, vol. 54(C), pages 344-355.
    5. Milojević, Staša & Sugimoto, Cassidy R. & Larivière, Vincent & Thelwall, Mike & Ding, Ying, 2014. "The role of handbooks in knowledge creation and diffusion: A case of science and technology studies," Journal of Informetrics, Elsevier, vol. 8(3), pages 693-709.
    6. Buckley Fiona & Hofman Caroline, 2015. "Women in local government: Moving in from the margins," Administration, Sciendo, vol. 63(2), pages 79-99, August.
    7. Alexander, David & Blum, Véronique, 2016. "Ecological economics: A Luhmannian analysis of integrated reporting," Ecological Economics, Elsevier, vol. 129(C), pages 241-251.
    8. Williams, Simon J. & Coveney, Catherine M. & Gabe, Jonathan, 2013. "Medicalisation or customisation? Sleep, enterprise and enhancement in the 24/7 society," Social Science & Medicine, Elsevier, vol. 79(C), pages 40-47.
    9. Tyers, Rod, 2014. "Looking inward for transformative growth," China Economic Review, Elsevier, vol. 29(C), pages 166-184.
    10. Dino Falaschetti, 2008. "Can Lobbying Prevent Anticompetitive Outcomes? Evidence On Consumer Monopsony In Telecommunications," Journal of Competition Law and Economics, Oxford University Press, vol. 4(4), pages 1065-1096.
    11. Wali, Muammer & Chan, Felix & Manzur, Meher, 2017. "Nonlinear dependence in exchange rate returns: How do emerging Asian currencies compare with major currencies?," Journal of Asian Economics, Elsevier, vol. 50(C), pages 62-72.
    12. Marcelo Bucheli & Min-Young Kim, 2012. "Political Institutional Change, Obsolescing Legitimacy, and Multinational Corporations," Management International Review, Springer, vol. 52(6), pages 847-877, December.
    13. Chen Tsun Yung & Kuan Chen Tsai, 2013. "Followership: An Important Partner of Leadership," Business and Management Horizons, Macrothink Institute, vol. 1(2), pages 47-55, December.
    14. Nyaupane, Gyan P. & Poudel, Surya, 2012. "Application of appreciative inquiry in tourism research in rural communities," Tourism Management, Elsevier, vol. 33(4), pages 978-987.
    15. Contandriopoulos, Damien & Bilodeau, Henriette, 2009. "The political use of poll results about public support for a privatized healthcare system in Canada," Health Policy, Elsevier, vol. 90(1), pages 104-112, April.
    16. Moraga-González, José L. & Sándor, Zsolt & Wildenbeest, Matthijs R., 2014. "Prices, Product Differentiation, And Heterogeneous Search Costs," IESE Research Papers D/1097, IESE Business School.
    17. Carvalho Lopes, Celia Mendes & Bolfarine, Heleno, 2012. "Random effects in promotion time cure rate models," Computational Statistics & Data Analysis, Elsevier, vol. 56(1), pages 75-87, January.
    18. Susana Bernardino & J. Freitas Santos, 2015. "Financing social ventures by crowdfunding: the influence of entrepreneurs’ personality traits," NIPE Working Papers 12/2015, NIPE - Universidade do Minho.
    19. Theobald, Sally & Nhlema-Simwaka, Bertha, 2008. "The research, policy and practice interface: Reflections on using applied social research to promote equity in health in Malawi," Social Science & Medicine, Elsevier, vol. 67(5), pages 760-770, September.
    20. Colvin, John & Blackmore, Chris & Chimbuya, Sam & Collins, Kevin & Dent, Mark & Goss, John & Ison, Ray & Roggero, Pier Paolo & Seddaiu, Giovanna, 2014. "In search of systemic innovation for sustainable development: A design praxis emerging from a decade of social learning inquiry," Research Policy, Elsevier, vol. 43(4), pages 760-771.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:194:y:2017:i:c:p:1-9. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.