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Inclusion of Cultural and Linguistic Diversity in COVID-19 Public Health Research: Research Design Adaptations to Seek Different Perspectives in Victoria, Australia

Author

Listed:
  • Lisa Gibbs

    (Melbourne School of Population and Global Health, The University of Melbourne, Carlton, VIC 3053, Australia
    Joint first author.)

  • Alexander J. Thomas

    (The Burnet Institute, Melbourne, VIC 3004, Australia
    Joint first author.)

  • Alison Coelho

    (Coelho Networks, Melbourne, VIC 3058, Australia)

  • Adil Al-Qassas

    (The Burnet Institute, Melbourne, VIC 3004, Australia)

  • Karen Block

    (Melbourne School of Population and Global Health, The University of Melbourne, Carlton, VIC 3053, Australia)

  • Niamh Meagher

    (Peter Doherty Institute for Infection & Immunity, The University of Melbourne, Parkville, VIC 3052, Australia)

  • Limya Eisa

    (The Burnet Institute, Melbourne, VIC 3004, Australia
    These authors contributed equally to this work.)

  • Stephanie Fletcher-Lartey

    (The Burnet Institute, Melbourne, VIC 3004, Australia
    These authors contributed equally to this work.)

  • Tianhui Ke

    (The Burnet Institute, Melbourne, VIC 3004, Australia
    These authors contributed equally to this work.)

  • Phoebe Kerr

    (The Burnet Institute, Melbourne, VIC 3004, Australia
    These authors contributed equally to this work.)

  • Edwin Jit Leung Kwong

    (Melbourne School of Population and Global Health, The University of Melbourne, Carlton, VIC 3053, Australia
    These authors contributed equally to this work.)

  • Colin MacDougall

    (Melbourne School of Population and Global Health, The University of Melbourne, Carlton, VIC 3053, Australia
    These authors contributed equally to this work.)

  • Deng Malith

    (The Burnet Institute, Melbourne, VIC 3004, Australia
    These authors contributed equally to this work.)

  • Katitza Marinkovic Chavez

    (Melbourne School of Population and Global Health, The University of Melbourne, Carlton, VIC 3053, Australia
    These authors contributed equally to this work.)

  • Deborah Osborne

    (The Burnet Institute, Melbourne, VIC 3004, Australia
    These authors contributed equally to this work.)

  • David J. Price

    (Melbourne School of Population and Global Health, The University of Melbourne, Carlton, VIC 3053, Australia
    Peter Doherty Institute for Infection & Immunity, The University of Melbourne, Parkville, VIC 3052, Australia
    These authors contributed equally to this work.)

  • Freya Shearer

    (Melbourne School of Population and Global Health, The University of Melbourne, Carlton, VIC 3053, Australia
    These authors contributed equally to this work.)

  • Mark Stoove

    (The Burnet Institute, Melbourne, VIC 3004, Australia
    School of Public Health and Preventive Medicine, Monash University, Melbourne, VIC 3004, Australia
    Australian Research Centre in Sex, Health and Society, La Trobe University, Bundoora, VIC 3083, Australia
    These authors contributed equally to this work.)

  • Kathryn Young

    (The Burnet Institute, Melbourne, VIC 3004, Australia
    These authors contributed equally to this work.)

  • Yanqin Zhang

    (The Burnet Institute, Melbourne, VIC 3004, Australia
    These authors contributed equally to this work.)

  • Katherine B. Gibney

    (Peter Doherty Institute for Infection & Immunity, The University of Melbourne, Parkville, VIC 3052, Australia
    Shared senior oversight.)

  • Margaret Hellard

    (The Burnet Institute, Melbourne, VIC 3004, Australia
    Shared senior oversight.)

Abstract

Participation of people from culturally and linguistically diverse (CALD) communities in public health research is often limited by challenges with recruitment, retention and second-language data collection. Consequently, people from CALD communities are at risk of their needs being marginalised in public health interventions. This paper presents intrinsic case analyses of two studies which were adapted to increase the cultural competence of research processes. Both cases were part of the Optimise study, a major mixed methods research study in Australia which provided evidence to inform the Victorian state government’s decision-making about COVID-19 public health measures. Case study 1 involved the core Optimise longitudinal cohort study and Case study 2 was the CARE Victorian representative survey, an Optimise sub-study. Both case studies engaged cultural advisors and bilingual staff to adjust the survey measures and research processes to suit target CALD communities. Reflexive processes provided insights into the strengths and weaknesses of the inclusive strategies. Selected survey results are provided, demonstrating variation across CALD communities and in comparison to participants who reported speaking English at home. While in most cases a gradient of disadvantage was evident for CALD communities, some patterns were unexpected. The case studies demonstrate the challenge and value of investing in culturally competent research processes to ensure research guiding policy captures a spectrum of experiences and perspectives.

Suggested Citation

  • Lisa Gibbs & Alexander J. Thomas & Alison Coelho & Adil Al-Qassas & Karen Block & Niamh Meagher & Limya Eisa & Stephanie Fletcher-Lartey & Tianhui Ke & Phoebe Kerr & Edwin Jit Leung Kwong & Colin MacD, 2023. "Inclusion of Cultural and Linguistic Diversity in COVID-19 Public Health Research: Research Design Adaptations to Seek Different Perspectives in Victoria, Australia," IJERPH, MDPI, vol. 20(3), pages 1-17, January.
    • Handle: RePEc:gam:jijerp:v:20:y:2023:i:3:p:2320-:d:1049234
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    References listed on IDEAS

    as
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    2. Kathleen Manipis & Deborah Street & Paula Cronin & Rosalie Viney & Stephen Goodall, 2021. "Exploring the Trade-Off Between Economic and Health Outcomes During a Pandemic: A Discrete Choice Experiment of Lockdown Policies in Australia," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 14(3), pages 359-371, May.
    3. Saima May Sidik, 2022. "How COVID has deepened inequality — in six stark graphics," Nature, Nature, vol. 606(7915), pages 638-639, June.
    4. George, S. & Duran, N. & Norris, K., 2014. "A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders," American Journal of Public Health, American Public Health Association, vol. 104(2), pages 16-31.
    Full references (including those not matched with items on IDEAS)

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