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Trust and Biomedical Research Engagement of Minority and Under-Represented Communities in Mississippi, USA

Author

Listed:
  • Donna Antoine-LaVigne

    (RCMI Center for Health Disparities Research, Jackson State University, Jackson, MS 39217, USA)

  • Traci Hayes

    (School of Health Professions, University of Southern Mississippi, Hattiesburg, MS 39406, USA)

  • Marty Fortenberry

    (RCMI Center for Health Disparities Research, Jackson State University, Jackson, MS 39217, USA)

  • Evidence Ohikhuai

    (RCMI Center for Health Disparities Research, Jackson State University, Jackson, MS 39217, USA)

  • Clifton Addison

    (Jackson Heart Study Graduate Training and Education Center, School of Public Health, Jackson State University, Jackson, MS 39213, USA)

  • Sam Mozee

    (Mississippi Urban Research Center, Jackson State University, Jackson, MS 39201, USA)

  • Dorothy McGill

    (Innovative Behavioral Services, Ridgeland, MS 39157, USA)

  • Mangle L. Shanks

    (Shanks Health Housing, Employment, Education & Training Services, Inc., Jackson, MS 39289, USA)

  • Christopher Roby

    (Mississippi Health Alliance, Byram, MS 39272, USA)

  • Brenda W. Campbell Jenkins

    (Jackson Heart Study Graduate Training and Education Center, School of Public Health, Jackson State University, Jackson, MS 39213, USA)

  • Paul B. Tchounwou

    (RCMI Center for Health Disparities Research, Jackson State University, Jackson, MS 39217, USA)

Abstract

Trust is critical to the development and maintenance of effective research collaborations and community engagement. The purpose of this study was to assess the current attitudes and level of trust pertaining to health research among residents of Central Mississippi, the priority health region for the Research Centers in Minority Institutions (RCMI) Center for Health Disparities Research (RCHDR) at Jackson State University. The cross-sectional study was conducted from November 2021 to April 2022. The data were analyzed using descriptive statistics carried out by SPSS statistical software. A total of 146 participants responded to the survey. The participants were predominately African American (99%) and female (75%). Historical research studies, the researchers’ qualities, and potential benefits from participation were factors affecting the level of trust in the research process. Ninety percent ( n = 131) expressed that it was important to be involved in the research process, and 98.5% ( n = 144) agreed that discussing the research findings with the participants was important for establishing trust in the research process. While trust in the research process does not guarantee participation, trust is a precursor for those who decide to engage in health disparities research. Key findings will be integrated into the RCHDR research agenda to foster further development and implementation of innovative community-based participatory research toward the control and/or prevention of diseases that disproportionately affect minority and under-represented populations in Mississippi.

Suggested Citation

  • Donna Antoine-LaVigne & Traci Hayes & Marty Fortenberry & Evidence Ohikhuai & Clifton Addison & Sam Mozee & Dorothy McGill & Mangle L. Shanks & Christopher Roby & Brenda W. Campbell Jenkins & Paul B. , 2023. "Trust and Biomedical Research Engagement of Minority and Under-Represented Communities in Mississippi, USA," IJERPH, MDPI, vol. 20(2), pages 1-12, January.
    • Handle: RePEc:gam:jijerp:v:20:y:2023:i:2:p:1592-:d:1036970
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    References listed on IDEAS

    as
    1. Matthew K Wynia & Vanessa Northington Gamble, 2006. "Mistrust among Minorities and the Trustworthiness of Medicine," PLOS Medicine, Public Library of Science, vol. 3(5), pages 1-1, May.
    2. Clifton Addison & Brenda W. Campbell Jenkins & Monique White & Darcel Thigpen Odom & Marty Fortenberry & Gregory Wilson & Pamela McCoy & Lavon Young & Clevette Woodberry & Kathryn Herron & Jermal Clar, 2021. "Twenty Years of Leading the Way among Cohort Studies in Community-Driven Outreach and Engagement: Jackson State University/Jackson Heart Study," IJERPH, MDPI, vol. 18(2), pages 1-18, January.
    3. George, S. & Duran, N. & Norris, K., 2014. "A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders," American Journal of Public Health, American Public Health Association, vol. 104(2), pages 16-31.
    4. Freimuth, Vicki S. & Quinn, Sandra Crouse & Thomas, Stephen B. & Cole, Galen & Zook, Eric & Duncan, Ted, 2001. "African Americans' views on research and the Tuskegee Syphilis study," Social Science & Medicine, Elsevier, vol. 52(5), pages 797-808, March.
    5. Ammerman, A. & Corbie-Smith, G. & St. George, D.M.M. & Washington, C. & Weathers, B. & Jackson-Christian, B., 2003. "Research Expectations among African American Church Leaders in the PRAISE! Project: A Randomized Trial Guided by Community-Based Participatory Research," American Journal of Public Health, American Public Health Association, vol. 93(10), pages 1720-1727.
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