IDEAS home Printed from https://ideas.repec.org/a/plo/pone00/0245783.html
   My bibliography  Save this article

Measuring research mistrust in adolescents and adults: Validity and reliability of an adapted version of the Group-Based Medical Mistrust Scale

Author

Listed:
  • Amelia S Knopf
  • Peter Krombach
  • Amy J Katz
  • Rebecca Baker
  • Gregory Zimet

Abstract

Mistrust of health care providers among persons of color is a significant barrier to engaging them in research studies. Underrepresentation of persons of color is particularly problematic when the health problem under study disproportionately affects minoritized communities. The purpose of this study was to test the validity and reliability of an abbreviated and adapted version of the Group Based Medical Mistrust Scale. The GBMMS is a 12-item scale with three subscales that assess suspicion, experiences of discrimination, and lack of support in the health care setting. To adapt for use in the research setting, we shortened the scale to six items, and replaced “health care workers” and “health care” with “medical researchers” and “medical research,” respectively. Using panelists from a market research firm, we recruited and enrolled a racially and ethnically diverse sample of American adults (N = 365) and adolescents aged 14–17 (N = 250). We administered the adapted scale in a web-based survey. We used Cronbach’s alpha to evaluate measure internal reliability of the scale and external factor analysis to evaluate the relationships between the revised scale items. Five of the six items loaded onto a single factor, with (α = 0.917) for adolescents and (α = 0.912) for adults. Mean scores for each item ranged from 2.5–2.9, and the mean summary score (range 6–25) was 13.3 for adults and 13.1 for adolescents. Among adults, Black respondents had significantly higher mean summary scores compared to whites and those in other racia/ethnic groups (p

Suggested Citation

  • Amelia S Knopf & Peter Krombach & Amy J Katz & Rebecca Baker & Gregory Zimet, 2021. "Measuring research mistrust in adolescents and adults: Validity and reliability of an adapted version of the Group-Based Medical Mistrust Scale," PLOS ONE, Public Library of Science, vol. 16(1), pages 1-9, January.
  • Handle: RePEc:plo:pone00:0245783
    DOI: 10.1371/journal.pone.0245783
    as

    Download full text from publisher

    File URL: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0245783
    Download Restriction: no

    File URL: https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0245783&type=printable
    Download Restriction: no

    File URL: https://libkey.io/10.1371/journal.pone.0245783?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Neil F. Johnson & Nicolas Velásquez & Nicholas Johnson Restrepo & Rhys Leahy & Nicholas Gabriel & Sara El Oud & Minzhang Zheng & Pedro Manrique & Stefan Wuchty & Yonatan Lupu, 2020. "The online competition between pro- and anti-vaccination views," Nature, Nature, vol. 582(7811), pages 230-233, June.
    2. Gamble, V.N., 1997. "Under the Shadow of Tuskegee: African Americans and Health Care," American Journal of Public Health, American Public Health Association, vol. 87(11), pages 1773-1778.
    3. George, S. & Duran, N. & Norris, K., 2014. "A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders," American Journal of Public Health, American Public Health Association, vol. 104(2), pages 16-31.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Alana Smith & Gregory A. Vidal & Elizabeth Pritchard & Ryan Blue & Michelle Y. Martin & LaShanta J. Rice & Gwendolynn Brown & Athena Starlard-Davenport, 2018. "Sistas Taking a Stand for Breast Cancer Research (STAR) Study: A Community-Based Participatory Genetic Research Study to Enhance Participation and Breast Cancer Equity among African American Women in ," IJERPH, MDPI, vol. 15(12), pages 1-12, December.
    2. Joniqua Ceasar & Marlene H. Peters-Lawrence & Valerie Mitchell & Tiffany M. Powell-Wiley, 2017. "The Communication, Awareness, Relationships and Empowerment (C.A.R.E.) Model: An Effective Tool for Engaging Urban Communities in Community-Based Participatory Research," IJERPH, MDPI, vol. 14(11), pages 1-12, November.
    3. Buechel, Berno & Klößner, Stefan & Meng, Fanyuan & Nassar, Anis, 2023. "Misinformation due to asymmetric information sharing," Journal of Economic Dynamics and Control, Elsevier, vol. 150(C).
    4. Wang, Jianwei & Xu, Wenshu & Chen, Wei & Yu, Fengyuan & He, Jialu, 2021. "Information sharing can suppress the spread of epidemics: Voluntary vaccination game on two-layer networks," Physica A: Statistical Mechanics and its Applications, Elsevier, vol. 583(C).
    5. Bruce, Marta M. & Ulrich, Connie M. & Webster, Jessica & Richmond, Therese S., 2022. "Injured black men's perceptions of the recovery environment," Social Science & Medicine, Elsevier, vol. 292(C).
    6. Charlene S. Aaron, 2016. "Recruitment of African Americans With Type 2 Diabetes Who Care For Persons With Dementia," Clinical Nursing Research, , vol. 25(1), pages 3-8, February.
    7. Stephen Amoah & Ruth Ennin & Karen Sagoe & Astrid Steinbrecher & Tobias Pischon & Frank P. Mockenhaupt & Ina Danquah, 2021. "Feasibility of a Culturally Adapted Dietary Weight-Loss Intervention among Ghanaian Migrants in Berlin, Germany: The ADAPT Study," IJERPH, MDPI, vol. 18(2), pages 1-13, January.
    8. Margarita Echeverri & David Anderson & Anna María Nápoles & Jacqueline M. Haas & Marc E. Johnson & Friar Sergio A. Serrano, 2018. "Cancer Health Literacy and Willingness to Participate in Cancer Research and Donate Bio-Specimens," IJERPH, MDPI, vol. 15(10), pages 1-18, September.
    9. Paula M. Frew & Jay T. Schamel & Kelli A. O’Connell & Laura A. Randall & Sahithi Boggavarapu, 2015. "Results of a Community Randomized Study of a Faith-Based Education Program to Improve Clinical Trial Participation among African Americans," IJERPH, MDPI, vol. 13(1), pages 1-12, December.
    10. Peek, Monica E. & Odoms-Young, Angela & Quinn, Michael T. & Gorawara-Bhat, Rita & Wilson, Shannon C. & Chin, Marshall H., 2010. "Race and shared decision-making: Perspectives of African-Americans with diabetes," Social Science & Medicine, Elsevier, vol. 71(1), pages 1-9, July.
    11. Richmond, Jennifer & Boynton, Marcella H. & Ozawa, Sachiko & Muessig, Kathryn E. & Cykert, Samuel & Ribisl, Kurt M., 2022. "Development and Validation of the Trust in My Doctor, Trust in Doctors in General, and Trust in the Health Care Team Scales," Social Science & Medicine, Elsevier, vol. 298(C).
    12. Kolotylo-Kulkarni, Malgorzata & Marakas, George M. & Xia, Weidong, 2024. "Understanding protective behavior and vaccination adoption among US individuals during the COVID-19 pandemic: A four-wave longitudinal study," Journal of Business Research, Elsevier, vol. 179(C).
    13. Wei Fu & Shin-Yi Chou & Li-San Wang, 2022. "NIH Grant Expansion, Ancestral Diversity and Scientific Discovery in Genomics Research," NBER Working Papers 30155, National Bureau of Economic Research, Inc.
    14. Josh Bullock & Justin E. Lane & F. LeRon Shults, 2022. "What causes COVID-19 vaccine hesitancy? Ignorance and the lack of bliss in the United Kingdom," Palgrave Communications, Palgrave Macmillan, vol. 9(1), pages 1-7, December.
    15. Pritzker, Suzanne & Moreno, Dennise & Nicotera, Nicole & Saenz, Rebecca & Clancy, Helen & Avila, Katherine & Ruiz, Alexis & Campos, Sophia, 2024. "Promoting good trouble: Latinx youth-driven change strategies for civic engagement and activism," Children and Youth Services Review, Elsevier, vol. 164(C).
    16. Matteo Bizzarri & Fabrizio Panebianco & Paolo Pin, 2020. "Epidemic dynamics with homophily, vaccination choices, and pseudoscience attitudes," Papers 2007.08523, arXiv.org, revised Jun 2021.
    17. Dalnim Cho & Beverly Gor & Hyunsoo Hwang & Xuemei Wang & Mike Hernandez & Lovell A. Jones & Jacqueline Frost & Pamela Roberson & Curtis A. Pettaway, 2024. "A Community-Based Prostate Cancer Screening and Education Program for Asian American Men in Medically Underserved Communities," IJERPH, MDPI, vol. 21(4), pages 1-11, March.
    18. Zamil Khadija & Alsharqi Omar, 2019. "The Effect of Information Technology on the Recruitment Process in Healthcare Organization in Makkah City," Global Journal of Health Science, Canadian Center of Science and Education, vol. 11(2), pages 123-123, February.
    19. Bogart, Laura M. & Wagner, Glenn J. & Green, Harold D. & Mutchler, Matt G. & Klein, David J. & McDavitt, Bryce & Lawrence, Sean J. & Hilliard, Charles L., 2016. "Medical mistrust among social network members may contribute to antiretroviral treatment nonadherence in African Americans living with HIV," Social Science & Medicine, Elsevier, vol. 164(C), pages 133-140.
    20. Julia A Dalton & Dianne Rodger & Michael Wilmore & Sal Humphreys & Andrew Skuse & Claire T Roberts & Vicki L Clifton, 2018. "The Health-e Babies App for antenatal education: Feasibility for socially disadvantaged women," PLOS ONE, Public Library of Science, vol. 13(5), pages 1-18, May.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:plo:pone00:0245783. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: plosone (email available below). General contact details of provider: https://journals.plos.org/plosone/ .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.