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Twenty Years of Leading the Way among Cohort Studies in Community-Driven Outreach and Engagement: Jackson State University/Jackson Heart Study

Author

Listed:
  • Clifton Addison

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Brenda W. Campbell Jenkins

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Monique White

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Darcel Thigpen Odom

    (Jackson Heart Study, University of Mississippi Medical Center, Jackson, MS 39213, USA)

  • Marty Fortenberry

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Gregory Wilson

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Pamela McCoy

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Lavon Young

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Clevette Woodberry

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Kathryn Herron

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Jermal Clark

    (Jackson Heart Study, Community Outreach Center, Community Representative, Jackson State University, Jackson, MS 39213, USA)

  • Marinelle Payton

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Donna Antoine LaVigne

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

Abstract

Background: History has recorded the tremendous concerns and apprehension expressed by African Americans about participating in research studies. This review enumerates the collaborative techniques that were utilized by the Jackson State University (JSU) Jackson Heart Study (JHS) community-focused team to facilitate recruitment and retention of the JHS cohort and to implement health education and health promotion in the JHS communities. Methods: This review describes the evolution of the JSU JHS community initiatives, an innovative community-driven operation, during the period 1999–2018. Results: JSU JHS community-focused investigators published approximately 20 manuscripts, including community-led research and publications with community lead authors and co-authors, research and publications in collaboration with other JHS staff, through other JSU-funded projects. The JSU JHS community-focused unit also initiated the JHS Community Training Activities, developed the Community Health Advisory Network (CHAN), and trained and certified 137 Community Health Advisors. In addition, the JSU JHS community-focused unit developed the Collaborative Community Science Model (CCSM) that symbolized its approach to community engagement and outreach, and a Trust Scale for ascertaining African Americans’ willingness to engage in biomedical research collaborations. Conclusion: This review offers educators, public health professionals, and research investigators a useful starting point for the development, selection, or improvement of techniques to motivate, inspire, and engage community residents in a community–academia partnership that yielded maximum benefits in the areas of health education, health promotion and interventions, and biomedical research. Substantial, meaningful community engagement is possible when prioritizing elimination of health disparities and long-term improvement in health care access in the target populations.

Suggested Citation

  • Clifton Addison & Brenda W. Campbell Jenkins & Monique White & Darcel Thigpen Odom & Marty Fortenberry & Gregory Wilson & Pamela McCoy & Lavon Young & Clevette Woodberry & Kathryn Herron & Jermal Clar, 2021. "Twenty Years of Leading the Way among Cohort Studies in Community-Driven Outreach and Engagement: Jackson State University/Jackson Heart Study," IJERPH, MDPI, vol. 18(2), pages 1-18, January.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:2:p:696-:d:480660
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    References listed on IDEAS

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    1. Clifton C. Addison & Brenda W. Campbell-Jenkins & Daniel F. Sarpong & Jeffery Kibler & Madhu Singh & Patricia Dubbert & Gregory Wilson & Thomas Payne & Herman Taylor, 2007. "Psychometric Evaluation of a Coping Strategies Inventory Short-Form ( CSI-SF ) in the Jackson Heart Study Cohort," IJERPH, MDPI, vol. 4(4), pages 1-7, December.
    2. Julia Díez & Pedro Gullón & María Sandín Vázquez & Belén Álvarez & María Del Prado Martín & María Urtasun & Maite Gamarra & Joel Gittelsohn & Manuel Franco, 2018. "A Community-Driven Approach to Generate Urban Policy Recommendations for Obesity Prevention," IJERPH, MDPI, vol. 15(4), pages 1-15, March.
    3. Brenda W. Campbell-Jenkins & Clifton C. Addison & Lavon Young & Pramod Anugu & Gregory Wilson & Daniel Sarpong, 2009. "Development of the Jackson Heart Study Coordinating Center," IJERPH, MDPI, vol. 6(5), pages 1-12, May.
    4. Clifton C. Addison & Brenda W. Jenkins & Daniel Sarpong & Gregory Wilson & Cora Champion & Jeraline Sims & Monique S. White, 2011. "Relationship between Medication Use and Cardiovascular Disease Health Outcomes in the Jackson Heart Study," IJERPH, MDPI, vol. 8(6), pages 1-11, June.
    5. Israel, B.A. & Coombe, C.M. & Cheezum, R.R. & Schulz, A.J. & McGranaghan, R.J. & Lichtenstein, R. & Reyes, A.G. & Clement, J. & Burris, A., 2010. "Community-based participatory research: A capacity-building approach for policy advocacy aimed at eliminating health disparities," American Journal of Public Health, American Public Health Association, vol. 100(11), pages 2094-2102.
    6. George, S. & Duran, N. & Norris, K., 2014. "A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders," American Journal of Public Health, American Public Health Association, vol. 104(2), pages 16-31.
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    1. Donna Antoine-LaVigne & Traci Hayes & Marty Fortenberry & Evidence Ohikhuai & Clifton Addison & Sam Mozee & Dorothy McGill & Mangle L. Shanks & Christopher Roby & Brenda W. Campbell Jenkins & Paul B. , 2023. "Trust and Biomedical Research Engagement of Minority and Under-Represented Communities in Mississippi, USA," IJERPH, MDPI, vol. 20(2), pages 1-12, January.

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