IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v18y2021i2p696-d480660.html
   My bibliography  Save this article

Twenty Years of Leading the Way among Cohort Studies in Community-Driven Outreach and Engagement: Jackson State University/Jackson Heart Study

Author

Listed:
  • Clifton Addison

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Brenda W. Campbell Jenkins

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Monique White

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Darcel Thigpen Odom

    (Jackson Heart Study, University of Mississippi Medical Center, Jackson, MS 39213, USA)

  • Marty Fortenberry

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Gregory Wilson

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Pamela McCoy

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Lavon Young

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Clevette Woodberry

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Kathryn Herron

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Jermal Clark

    (Jackson Heart Study, Community Outreach Center, Community Representative, Jackson State University, Jackson, MS 39213, USA)

  • Marinelle Payton

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

  • Donna Antoine LaVigne

    (Jackson Heart Study, School of Public Health, Jackson State University, 350 West Woodrow Wilson Drive, Suite 2900B, Jackson, MS 39213, USA)

Abstract

Background: History has recorded the tremendous concerns and apprehension expressed by African Americans about participating in research studies. This review enumerates the collaborative techniques that were utilized by the Jackson State University (JSU) Jackson Heart Study (JHS) community-focused team to facilitate recruitment and retention of the JHS cohort and to implement health education and health promotion in the JHS communities. Methods: This review describes the evolution of the JSU JHS community initiatives, an innovative community-driven operation, during the period 1999–2018. Results: JSU JHS community-focused investigators published approximately 20 manuscripts, including community-led research and publications with community lead authors and co-authors, research and publications in collaboration with other JHS staff, through other JSU-funded projects. The JSU JHS community-focused unit also initiated the JHS Community Training Activities, developed the Community Health Advisory Network (CHAN), and trained and certified 137 Community Health Advisors. In addition, the JSU JHS community-focused unit developed the Collaborative Community Science Model (CCSM) that symbolized its approach to community engagement and outreach, and a Trust Scale for ascertaining African Americans’ willingness to engage in biomedical research collaborations. Conclusion: This review offers educators, public health professionals, and research investigators a useful starting point for the development, selection, or improvement of techniques to motivate, inspire, and engage community residents in a community–academia partnership that yielded maximum benefits in the areas of health education, health promotion and interventions, and biomedical research. Substantial, meaningful community engagement is possible when prioritizing elimination of health disparities and long-term improvement in health care access in the target populations.

Suggested Citation

  • Clifton Addison & Brenda W. Campbell Jenkins & Monique White & Darcel Thigpen Odom & Marty Fortenberry & Gregory Wilson & Pamela McCoy & Lavon Young & Clevette Woodberry & Kathryn Herron & Jermal Clar, 2021. "Twenty Years of Leading the Way among Cohort Studies in Community-Driven Outreach and Engagement: Jackson State University/Jackson Heart Study," IJERPH, MDPI, vol. 18(2), pages 1-18, January.
  • Handle: RePEc:gam:jijerp:v:18:y:2021:i:2:p:696-:d:480660
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/18/2/696/pdf
    Download Restriction: no

    File URL: https://www.mdpi.com/1660-4601/18/2/696/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Clifton C. Addison & Brenda W. Campbell-Jenkins & Daniel F. Sarpong & Jeffery Kibler & Madhu Singh & Patricia Dubbert & Gregory Wilson & Thomas Payne & Herman Taylor, 2007. "Psychometric Evaluation of a Coping Strategies Inventory Short-Form ( CSI-SF ) in the Jackson Heart Study Cohort," IJERPH, MDPI, vol. 4(4), pages 1-7, December.
    2. Julia Díez & Pedro Gullón & María Sandín Vázquez & Belén Álvarez & María Del Prado Martín & María Urtasun & Maite Gamarra & Joel Gittelsohn & Manuel Franco, 2018. "A Community-Driven Approach to Generate Urban Policy Recommendations for Obesity Prevention," IJERPH, MDPI, vol. 15(4), pages 1-15, March.
    3. Brenda W. Campbell-Jenkins & Clifton C. Addison & Lavon Young & Pramod Anugu & Gregory Wilson & Daniel Sarpong, 2009. "Development of the Jackson Heart Study Coordinating Center," IJERPH, MDPI, vol. 6(5), pages 1-12, May.
    4. Clifton C. Addison & Brenda W. Jenkins & Daniel Sarpong & Gregory Wilson & Cora Champion & Jeraline Sims & Monique S. White, 2011. "Relationship between Medication Use and Cardiovascular Disease Health Outcomes in the Jackson Heart Study," IJERPH, MDPI, vol. 8(6), pages 1-11, June.
    5. George, S. & Duran, N. & Norris, K., 2014. "A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders," American Journal of Public Health, American Public Health Association, vol. 104(2), pages 16-31.
    6. Israel, B.A. & Coombe, C.M. & Cheezum, R.R. & Schulz, A.J. & McGranaghan, R.J. & Lichtenstein, R. & Reyes, A.G. & Clement, J. & Burris, A., 2010. "Community-based participatory research: A capacity-building approach for policy advocacy aimed at eliminating health disparities," American Journal of Public Health, American Public Health Association, vol. 100(11), pages 2094-2102.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Donna Antoine-LaVigne & Traci Hayes & Marty Fortenberry & Evidence Ohikhuai & Clifton Addison & Sam Mozee & Dorothy McGill & Mangle L. Shanks & Christopher Roby & Brenda W. Campbell Jenkins & Paul B. , 2023. "Trust and Biomedical Research Engagement of Minority and Under-Represented Communities in Mississippi, USA," IJERPH, MDPI, vol. 20(2), pages 1-12, January.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Rogério M. Pinto & Anya Y. Spector & Rahbel Rahman, 2019. "Nurturing Practitioner-Researcher Partnerships to Improve Adoption and Delivery of Research-Based Social and Public Health Services Worldwide," IJERPH, MDPI, vol. 16(5), pages 1-13, March.
    2. Clifton C. Addison & Brenda W. Campbell Jenkins & Darcel Odom & Marty Fortenberry & Gregory Wilson & Lavon Young & Donna Antoine-LaVigne, 2015. "Building Collaborative Health Promotion Partnerships: The Jackson Heart Study," IJERPH, MDPI, vol. 13(1), pages 1-9, December.
    3. Pedro Gullón & Julia Díez & Paloma Conde & Carmen Ramos & Valentín Márquez & Hannah Badland & Francisco Escobar & Manuel Franco, 2019. "Using Photovoice to Examine Physical Activity in the Urban Context and Generate Policy Recommendations: The Heart Healthy Hoods Study," IJERPH, MDPI, vol. 16(5), pages 1-16, March.
    4. Nina Margrethe Kynoe & Drude Fugelseth & Ingrid Hanssen, 2020. "When a common language is missing: Nurse–mother communication in the NICU. A qualitative study," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(13-14), pages 2221-2230, July.
    5. Crooks, Natasha & Yates, Latrice & Sosina, Wuraola & Johnson, Juquita & Strong, Alexis & Griggs, Brianna & Shipp, Kentrele & Green, Betty & Matthews, Alicia & Johnson, Waldo, 2024. "Strategies for engaging Black male caregivers in family-based research," Children and Youth Services Review, Elsevier, vol. 157(C).
    6. Amelia S Knopf & Peter Krombach & Amy J Katz & Rebecca Baker & Gregory Zimet, 2021. "Measuring research mistrust in adolescents and adults: Validity and reliability of an adapted version of the Group-Based Medical Mistrust Scale," PLOS ONE, Public Library of Science, vol. 16(1), pages 1-9, January.
    7. Dana H. Z. Williamson & Sheryl Good & Daphne Wilson & Na’Taki Osborne Jelks & Dayna A. Johnson & Kelli A. Komro & Michelle C. Kegler, 2023. "Using the Collaborative Problem-Solving Model: Findings from an Evaluation of U.S. EPA’s Environmental Justice Academy," Sustainability, MDPI, vol. 15(20), pages 1-24, October.
    8. Monica Webb Hooper & Charlene Mitchell & Vanessa J. Marshall & Chesley Cheatham & Kristina Austin & Kimberly Sanders & Smitha Krishnamurthi & Lena L. Grafton, 2019. "Understanding Multilevel Factors Related to Urban Community Trust in Healthcare and Research," IJERPH, MDPI, vol. 16(18), pages 1-16, September.
    9. Britni L. Ayers & Rachel S. Purvis & Jennifer Callaghan-Koru & Sharon Reece & Sheena CarlLee & Nirvana Manning & Krista Langston & Sheldon Riklon & Pearl A. McElfish, 2023. "Marshallese Mothers’ and Marshallese Maternal Healthcare Providers’ Perspectives on Contraceptive Use and Reproductive Life Planning Practices and Influences," IJERPH, MDPI, vol. 20(5), pages 1-14, February.
    10. Rohini Chakravarthy & Sarah C Stallings & Michael Williams & Megan Hollister & Mario Davidson & Juan Canedo & Consuelo H Wilkins, 2020. "Factors influencing precision medicine knowledge and attitudes," PLOS ONE, Public Library of Science, vol. 15(11), pages 1-14, November.
    11. Lisa M. Vaughn & MaryAnn Lohmueller, 2014. "Calling All Stakeholders," Evaluation Review, , vol. 38(4), pages 336-355, August.
    12. Kim, Hyerang & Shon, Soonyoung & Shin, Hyunsook, 2020. "Exploring the unmet needs for creating an enabling environment for nurturing care to promote migrant child health in Bishkek, Kyrgyzstan: A theory-guided community-based participatory action research," Evaluation and Program Planning, Elsevier, vol. 80(C).
    13. Monique White & Clifton Addison & Brenda W. Campbell Jenkins & Frances Henderson & Dorothy McGill & Marinelle Payton & Donna Antoine‐LaVigne, 2017. "Factors Affecting Dietary Practices in a Mississippi African American Community," IJERPH, MDPI, vol. 14(7), pages 1-14, July.
    14. Collins, Cyleste & Dolata, Jacqueline & Pike, Earl & Sehgal, Ashwini, 2023. "Increasing research capacity in community organizations: Findings from the Community Research Scholars Initiative," Evaluation and Program Planning, Elsevier, vol. 96(C).
    15. Brubacher, Laura Jane & Dewey, Cate E. & Cunsolo, Ashlee & Humphries, Sally & Healey Akearok, Gwen K. & Gong, Crystal & Harper, Sherilee L., 2020. "Mapping the maternal health research landscape in Nunavut: A systematic search & critical review of methodology," Social Science & Medicine, Elsevier, vol. 262(C).
    16. Nicole Ackermann & Sarah Humble & Jacquelyn V. Coats & Carlette Lewis Rhone & Craig Schmid & Vetta Sanders Thompson & Kia L. Davis, 2023. "Community Research Fellows Training Program: Evaluation of a COVID-19-Precipitated Virtual Adaptation," IJERPH, MDPI, vol. 20(4), pages 1-14, February.
    17. Peter Henley & Tanimola Martins & Reza Zamani, 2023. "Assessing Ethnic Minority Representation in Fibromyalgia Clinical Trials: A Systematic Review of Recruitment Demographics," IJERPH, MDPI, vol. 20(24), pages 1-14, December.
    18. Bruce, Marta M. & Ulrich, Connie M. & Webster, Jessica & Richmond, Therese S., 2022. "Injured black men's perceptions of the recovery environment," Social Science & Medicine, Elsevier, vol. 292(C).
    19. William D. Barta & Deborah Shelton & Cheryl Cepelak & Colleen Gallagher, 2016. "Promoting a Sustainable Academic–Correctional Health Partnership: Lessons for Systemic Action Research," Systemic Practice and Action Research, Springer, vol. 29(1), pages 27-50, February.
    20. Charlene S. Aaron, 2016. "Recruitment of African Americans With Type 2 Diabetes Who Care For Persons With Dementia," Clinical Nursing Research, , vol. 25(1), pages 3-8, February.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:18:y:2021:i:2:p:696-:d:480660. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.