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Understandings of Participation in Behavioural Research: A Qualitative Study of Gay and Bisexual Men in Scotland

Author

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  • Nicola Boydell
  • Gillian May Fergie
  • Lisa Margaret McDaid
  • Shona Hilton

Abstract

An array of empirical research has emerged related to public participation in health research. To date, few studies have explored the particular perspectives of gay and bisexual men taking part in behavioural surveillance research, which includes the donation of saliva swabs to investigate HIV prevalence and rates of undiagnosed HIV. Semi-structured interviews were conducted with twenty-nine gay and bisexual men in Scotland who had participated in a bar-based survey. Thematic analysis of men’s accounts of their motives for participation and their perceptions of not receiving individual feedback on HIV status suggested a shared understanding of participation in research as a means of contributing to ‘community’ efforts to prevent the spread of HIV. Most men expressed sophisticated understandings of the purpose of behavioural research and distinguished between this and individual diagnostic testing. Despite calls for feedback on HIV results broadly, for these men feedback on HIV status was not deemed crucial.

Suggested Citation

  • Nicola Boydell & Gillian May Fergie & Lisa Margaret McDaid & Shona Hilton, 2015. "Understandings of Participation in Behavioural Research: A Qualitative Study of Gay and Bisexual Men in Scotland," PLOS ONE, Public Library of Science, vol. 10(8), pages 1-13, August.
    • Handle: RePEc:plo:pone00:0135001
    DOI: 10.1371/journal.pone.0135001
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    References listed on IDEAS

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    1. George, S. & Duran, N. & Norris, K., 2014. "A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders," American Journal of Public Health, American Public Health Association, vol. 104(2), pages 16-31.
    2. Dixon-Woods, Mary & Tarrant, Carolyn, 2009. "Why do people cooperate with medical research? Findings from three studies," Social Science & Medicine, Elsevier, vol. 68(12), pages 2215-2222, June.
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