IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v17y2020i14p5245-d387331.html
   My bibliography  Save this article

Voices of Community Partners: Perspectives Gained from Conversations of Community-Based Participatory Research Experiences

Author

Listed:
  • Heather J. Williamson

    (Center for Health Equity Research, Northern Arizona University, Flagstaff, AZ 86011, USA
    Department of Occupational Therapy, Northern Arizona University, Phoenix, AZ 85004, USA)

  • Carmenlita Chief

    (Center for Health Equity Research, Northern Arizona University, Flagstaff, AZ 86011, USA)

  • Dulce Jiménez

    (Center for Health Equity Research, Northern Arizona University, Flagstaff, AZ 86011, USA)

  • Andria Begay

    (Center for Health Equity Research, Northern Arizona University, Flagstaff, AZ 86011, USA)

  • Trudie F. Milner

    (Yuma Regional Medical Center, Yuma, AZ 85364, USA)

  • Shevaun Sullivan

    (Opportunity, Community & Justice for Kids, Phoenix, AZ 85027, USA)

  • Emma Torres

    (Campesinos Sin Fronteras, Somerton, AZ 85350, USA)

  • Mark Remiker

    (Center for Health Equity Research, Northern Arizona University, Flagstaff, AZ 86011, USA)

  • Alexandra Elvira Samarron Longorio

    (Center for Health Equity Research, Northern Arizona University, Flagstaff, AZ 86011, USA)

  • Samantha Sabo

    (Center for Health Equity Research, Northern Arizona University, Flagstaff, AZ 86011, USA)

  • Nicolette I. Teufel-Shone

    (Center for Health Equity Research, Northern Arizona University, Flagstaff, AZ 86011, USA)

Abstract

Community-based participatory research (CBPR) has been documented as an effective approach to research with underserved communities, particularly with racial and ethnic minority groups. However, much of the literature promoting the use of CBPR with underserved communities is written from the perspective of the researchers and not from the perspective of the community partner. The purpose of this article is to capture lessons learned from the community partners’ insight gained through their experiences with CBPR. A multi-investigator consensus method was used to qualitatively code the transcripts of a CBPR story-telling video series. Seven major themes were identified: (1) expectations for engaging in research, (2) cultural humility, (3) respecting the partnership, (4) open communication, (5) genuine commitment, (6) valuing strengths and recognizing capacities, and (7) collaborating to yield meaningful results. The themes drawn from the community partner’s voice align with the tenets of CBPR advanced in the academic literature. More opportunities to include the community voice when promoting CBPR should be undertaken to help introduce the concepts to potential community partners who may be research cautious.

Suggested Citation

  • Heather J. Williamson & Carmenlita Chief & Dulce Jiménez & Andria Begay & Trudie F. Milner & Shevaun Sullivan & Emma Torres & Mark Remiker & Alexandra Elvira Samarron Longorio & Samantha Sabo & Nicole, 2020. "Voices of Community Partners: Perspectives Gained from Conversations of Community-Based Participatory Research Experiences," IJERPH, MDPI, vol. 17(14), pages 1-11, July.
  • Handle: RePEc:gam:jijerp:v:17:y:2020:i:14:p:5245-:d:387331
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/17/14/5245/pdf
    Download Restriction: no

    File URL: https://www.mdpi.com/1660-4601/17/14/5245/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Teufel-Shone, N.I. & Siyuja, T. & Watahomigie, H.J. & Irwin, S., 2006. "Community-based participatory research: Conducting a formative assessment of factors that influence youth wellness in the Hualapai community," American Journal of Public Health, American Public Health Association, vol. 96(9), pages 1623-1628.
    2. Cacari-Stone, L. & Wallerstein, N. & Garcia, A.P. & Minkler, M., 2014. "The promise of community-based participatory research for health equity: A conceptual model for bridging evidence with policy," American Journal of Public Health, American Public Health Association, vol. 104(9), pages 1615-1623.
    3. George, S. & Duran, N. & Norris, K., 2014. "A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders," American Journal of Public Health, American Public Health Association, vol. 104(2), pages 16-31.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Sonja Lindner & Kai Illing & Josef Sommer & Tatjana Krajnc-Nikolić & Johann Harer & Christoph Kurre & Karl Lautner & Mateja Hauser & Daniel Grabar & Robert Graf-Stelzl & Christian Korn & Klaus Pilz & , 2021. "Development of a Binational Framework for Active and Healthy Ageing (AHA) Bridging Austria and Slovenia in a Thermal Spa Region," IJERPH, MDPI, vol. 18(2), pages 1-11, January.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Nina Margrethe Kynoe & Drude Fugelseth & Ingrid Hanssen, 2020. "When a common language is missing: Nurse–mother communication in the NICU. A qualitative study," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(13-14), pages 2221-2230, July.
    2. Crooks, Natasha & Yates, Latrice & Sosina, Wuraola & Johnson, Juquita & Strong, Alexis & Griggs, Brianna & Shipp, Kentrele & Green, Betty & Matthews, Alicia & Johnson, Waldo, 2024. "Strategies for engaging Black male caregivers in family-based research," Children and Youth Services Review, Elsevier, vol. 157(C).
    3. Amelia S Knopf & Peter Krombach & Amy J Katz & Rebecca Baker & Gregory Zimet, 2021. "Measuring research mistrust in adolescents and adults: Validity and reliability of an adapted version of the Group-Based Medical Mistrust Scale," PLOS ONE, Public Library of Science, vol. 16(1), pages 1-9, January.
    4. Rohini Chakravarthy & Sarah C Stallings & Michael Williams & Megan Hollister & Mario Davidson & Juan Canedo & Consuelo H Wilkins, 2020. "Factors influencing precision medicine knowledge and attitudes," PLOS ONE, Public Library of Science, vol. 15(11), pages 1-14, November.
    5. Peter Henley & Tanimola Martins & Reza Zamani, 2023. "Assessing Ethnic Minority Representation in Fibromyalgia Clinical Trials: A Systematic Review of Recruitment Demographics," IJERPH, MDPI, vol. 20(24), pages 1-14, December.
    6. Bruce, Marta M. & Ulrich, Connie M. & Webster, Jessica & Richmond, Therese S., 2022. "Injured black men's perceptions of the recovery environment," Social Science & Medicine, Elsevier, vol. 292(C).
    7. Calheiros, Maria Manuela & Patrício, Joana Nunes & Graça, João, 2013. "Staff and youth views on autonomy and emancipation from residential care: A participatory research study," Evaluation and Program Planning, Elsevier, vol. 39(C), pages 57-66.
    8. Graça, João & Calheiros, Maria Manuela & Patrício, Joana Nunes & Magalhães, Eunice Vieira, 2018. "Emergency residential care settings: A model for service assessment and design," Evaluation and Program Planning, Elsevier, vol. 66(C), pages 89-101.
    9. Charlene S. Aaron, 2016. "Recruitment of African Americans With Type 2 Diabetes Who Care For Persons With Dementia," Clinical Nursing Research, , vol. 25(1), pages 3-8, February.
    10. William T. Hu & Stephanie M. Bergren & Dana K. Dychtwald & Yiming Ma & XinQi Dong, 2023. "Variations in racial and ethnic groups’ trust in researchers associated with willingness to participate in research," Palgrave Communications, Palgrave Macmillan, vol. 10(1), pages 1-10, December.
    11. Stephen Amoah & Ruth Ennin & Karen Sagoe & Astrid Steinbrecher & Tobias Pischon & Frank P. Mockenhaupt & Ina Danquah, 2021. "Feasibility of a Culturally Adapted Dietary Weight-Loss Intervention among Ghanaian Migrants in Berlin, Germany: The ADAPT Study," IJERPH, MDPI, vol. 18(2), pages 1-13, January.
    12. Margarita Echeverri & David Anderson & Anna María Nápoles & Jacqueline M. Haas & Marc E. Johnson & Friar Sergio A. Serrano, 2018. "Cancer Health Literacy and Willingness to Participate in Cancer Research and Donate Bio-Specimens," IJERPH, MDPI, vol. 15(10), pages 1-18, September.
    13. Jeni Hebert-Beirne & Jennifer K. Felner & Teresa Berumen & Sylvia Gonzalez & Melissa Mosley Chrusfield & Preethi Pratap & Lorraine M. Conroy, 2021. "Community Resident Perceptions of and Experiences with Precarious Work at the Neighborhood Level: The Greater Lawndale Healthy Work Project," IJERPH, MDPI, vol. 18(21), pages 1-18, October.
    14. Wei Fu & Shin-Yi Chou & Li-San Wang, 2022. "NIH Grant Expansion, Ancestral Diversity and Scientific Discovery in Genomics Research," NBER Working Papers 30155, National Bureau of Economic Research, Inc.
    15. Florence Samkange-Zeeb & Ronja Foraita & Stefan Rach & Tilman Brand, 2019. "Feasibility of using respondent-driven sampling to recruit participants in superdiverse neighbourhoods for a general health survey," International Journal of Public Health, Springer;Swiss School of Public Health (SSPH+), vol. 64(3), pages 451-459, April.
    16. Kristina W. Whitworth & Inkyu Han & Masoud Afshar & Yuan Mei & Pamela D. Berens & Shreela V. Sharma & Elaine Symanski, 2017. "Accessing Disadvantaged Pregnant Women in Houston, Texas, and Characterizing Biomarkers of Metal Exposure: A Feasibility Study," IJERPH, MDPI, vol. 14(5), pages 1-9, April.
    17. Alana M. W. LeBrón & Ivy R. Torres & Enrique Valencia & Miriam López Dominguez & Deyaneira Guadalupe Garcia-Sanchez & Michael D. Logue & Jun Wu, 2019. "The State of Public Health Lead Policies: Implications for Urban Health Inequities and Recommendations for Health Equity," IJERPH, MDPI, vol. 16(6), pages 1-28, March.
    18. Andrew Binet & Vedette Gavin & Leigh Carroll & Mariana Arcaya, 2019. "Designing and Facilitating Collaborative Research Design and Data Analysis Workshops: Lessons Learned in the Healthy Neighborhoods Study," IJERPH, MDPI, vol. 16(3), pages 1-15, January.
    19. Samerski, Silja, 2019. "Health literacy as a social practice: Social and empirical dimensions of knowledge on health and healthcare," Social Science & Medicine, Elsevier, vol. 226(C), pages 1-8.
    20. Dalnim Cho & Beverly Gor & Hyunsoo Hwang & Xuemei Wang & Mike Hernandez & Lovell A. Jones & Jacqueline Frost & Pamela Roberson & Curtis A. Pettaway, 2024. "A Community-Based Prostate Cancer Screening and Education Program for Asian American Men in Medically Underserved Communities," IJERPH, MDPI, vol. 21(4), pages 1-11, March.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:17:y:2020:i:14:p:5245-:d:387331. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.