IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v16y2019i16p2969-d258683.html
   My bibliography  Save this article

Health-Related Participatory Research in American Indian and Alaska Native Communities: A Scoping Review

Author

Listed:
  • R. Brian Woodbury

    (Southcentral Foundation Research Department, 4085 Tudor Centre Dr., Anchorage, AK 99508, USA)

  • Scott Ketchum

    (University of Oklahoma, 5 Partners Place, Stephenson Pkwy, Suite 4100, Norman, OK 73019, USA)

  • Vanessa Y. Hiratsuka

    (Southcentral Foundation Research Department, 4085 Tudor Centre Dr., Anchorage, AK 99508, USA)

  • Paul Spicer

    (Department of Anthropology, University of Oklahoma, 5 Partners Place, 201 Stephenson Pkwy, Suite 4100, Norman, OK 73019, USA)

Abstract

A scoping review was conducted to assess the state of the literature on health-related participatory research involving American Indian and Alaska Native communities. Online databases were searched for relevant articles published between 1/1/2000 and 5/31/2017. 10,000+ data points relevant to community-level engagement in and regulation of research, community research capacity and cultural adaptation were extracted from 178 articles. Community engagement varied across study components: 136 (76%) articles reported community participation in research-related meetings and other events and 49 (27%) articles reported community involvement in initiation of research. 156 (88%) articles reported use of community-level tools to guide or regulate research. 93 (52%) articles reported that community members received research-related training. 147 (82%) articles described some type of cultural adaptation. Across all articles, data points on community engagement were not reported in 3061 (40%) out of 7740 cases. Findings suggest a need for increased community engagement in early stages of the research process and for reporting guidelines for participatory research involving American Indian and Alaska Native communities. There is also need to further existing research on the impact of different components of participatory research on process and outcome measures and to develop funding mechanisms that account for the time and resource intensive nature of participatory research.

Suggested Citation

  • R. Brian Woodbury & Scott Ketchum & Vanessa Y. Hiratsuka & Paul Spicer, 2019. "Health-Related Participatory Research in American Indian and Alaska Native Communities: A Scoping Review," IJERPH, MDPI, vol. 16(16), pages 1-26, August.
  • Handle: RePEc:gam:jijerp:v:16:y:2019:i:16:p:2969-:d:258683
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/16/16/2969/pdf
    Download Restriction: no

    File URL: https://www.mdpi.com/1660-4601/16/16/2969/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Christopher, S. & Watts, V. & McCormick, A.K.H.G. & Young, S., 2008. "Building and maintaining trust in a community-based participatory research partnership," American Journal of Public Health, American Public Health Association, vol. 98(8), pages 1398-1406.
    2. Kaufman, C.E. & Whitesell, N.R. & Keane, E.M. & Desserich, J.A. & Giago, C. & Sam, A. & Mitchell, C.M., 2014. "Effectiveness of circle of life, an HIV-preventive intervention for American Indian middle school youths: A group randomized trial in a northern plains tribe," American Journal of Public Health, American Public Health Association, vol. 104(6), pages 106-112.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Carmella B. Kahn & Brianna John & Sonya S. Shin & Rachel Whitman & Asia Soleil Yazzie & Renee Goldtooth-Halwood & Ken Hecht & Christina Hecht & Laura Vollmer & Malyssa Egge & Nora Nelson & Kerlissa Bi, 2023. "Teacher and Caregiver Perspectives on Water Is K’é: An Early Child Education Program to Promote Healthy Beverages among Navajo Children," IJERPH, MDPI, vol. 20(17), pages 1-18, August.
    2. Neha A. John-Henderson & Benjamin J. Oosterhoff & Lester R. Johnson & Mary Ellen Lafromboise & Melveena Malatare & Emily Salois, 2022. "COVID-19 and food insecurity in the Blackfeet Tribal Community," Food Security: The Science, Sociology and Economics of Food Production and Access to Food, Springer;The International Society for Plant Pathology, vol. 14(5), pages 1337-1346, October.
    3. Orly Stampfer & Gillian Mittelstaedt & Victoria Breckwich Vásquez & Catherine J. Karr, 2019. "Guidance for Genuine Collaboration: Insights from Academic, Tribal, and Community Partner Interviews on a New Research Partnership," IJERPH, MDPI, vol. 16(24), pages 1-14, December.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Ooms, Tahnee & Klaser, Klaudijo & Ishkanian, Armine, 2023. "The role of academia practice partnerships in the well-being economy: Retracing synergies between health and social sciences using bibliometric analysis," Health Policy, Elsevier, vol. 138(C).
    2. Jeffrey G. Cox & Minwoong Chung & Joseph A. Hamm & Adam Zwickle & Shannon M. Cruz & James W. Dearing, 2019. "Working with Institutional Stakeholders: Propositions for Alternative Approaches to Community Engagement," IJERPH, MDPI, vol. 16(20), pages 1-11, October.
    3. Amy E. Lesen & Chloe Tucker & M. G. Olson & Regardt J. Ferreira, 2019. "‘Come Back at Us’: Reflections on Researcher-Community Partnerships during a Post-Oil Spill Gulf Coast Resilience Study," Social Sciences, MDPI, vol. 8(1), pages 1-26, January.
    4. Vicki Baard, 2010. "A critical review of interventionist research," Qualitative Research in Accounting & Management, Emerald Group Publishing Limited, vol. 7(1), pages 13-45, April.
    5. Emee Vida Estacio & Mike Oliver & Beth Downing & Judy Kurth & Joanne Protheroe, 2017. "Effective Partnership in Community-Based Health Promotion: Lessons from the Health Literacy Partnership," IJERPH, MDPI, vol. 14(12), pages 1-8, December.
    6. Joe F. Bozeman & Shauhrat S. Chopra & Philip James & Sajjad Muhammad & Hua Cai & Kangkang Tong & Maya Carrasquillo & Harold Rickenbacker & Destenie Nock & Weslynne Ashton & Oliver Heidrich & Sybil Der, 2023. "Three research priorities for just and sustainable urban systems: Now is the time to refocus," Journal of Industrial Ecology, Yale University, vol. 27(2), pages 382-394, April.
    7. Arif Jameel & Muhammad Asif & Abid Hussain & Jinsoo Hwang & Noman Sahito & Mussawar Hussain Bukhari, 2019. "Assessing the Moderating Effect of Corruption on the E-Government and Trust Relationship: An Evidence of an Emerging Economy," Sustainability, MDPI, vol. 11(23), pages 1-14, November.
    8. Rebecca L. Vidra & Deborah R. Gallagher & Victoria Wilson, 2019. "Acknowledging the challenges of pedagogical innovation: the case of integrating research, teaching, and the practice of environmental leadership," Journal of Environmental Studies and Sciences, Springer;Association of Environmental Studies and Sciences, vol. 9(3), pages 270-275, September.
    9. Dave, Gaurav & Frerichs, Leah & Jones, Jennifer & Kim, Mimi & Schaal, Jennifer & Vassar, Stefanie & Varma, Deepthi & Striley, Catherine & Ruktanonchai, Corrine & Black, Adina & Hankins, Jennifer & Lov, 2018. "Conceptualizing trust in community-academic research partnerships using concept mapping approach: A multi-CTSA study," Evaluation and Program Planning, Elsevier, vol. 66(C), pages 70-78.
    10. Patricia Harrison & Helen Collins & Alexandra Bahor, 2022. "‘We Don’t Have the Same Opportunities as Others’: Shining Bourdieu’s Lens on UK Roma Migrants’ Precarious (Workers’) Habitus," Work, Employment & Society, British Sociological Association, vol. 36(2), pages 217-234, April.
    11. Orly Stampfer & Gillian Mittelstaedt & Victoria Breckwich Vásquez & Catherine J. Karr, 2019. "Guidance for Genuine Collaboration: Insights from Academic, Tribal, and Community Partner Interviews on a New Research Partnership," IJERPH, MDPI, vol. 16(24), pages 1-14, December.
    12. Nicolette I. Teufel-Shone & Anna L. Schwartz & Lisa J. Hardy & Hendrik D. De Heer & Heather J. Williamson & Dorothy J. Dunn & Kellen Polingyumptewa & Carmenlita Chief, 2018. "Supporting New Community-Based Participatory Research Partnerships," IJERPH, MDPI, vol. 16(1), pages 1-12, December.
    13. Ana T. Alcorin & Richelle H. Verdeprado, 2022. "Implementation, benefits, and challenges of the community development program of a Non-Government Organization in Negros Occidental," Technium Social Sciences Journal, Technium Science, vol. 30(1), pages 639-650, April.
    14. Velez, Christine & Nuechterlein, Bridget & Connors, Susan & RedShirt Tyon, Grace & Roane, Timberley M. & Mays, David C., 2022. "Application of the Indigenous evaluation framework to a university certificate program for building cultural awareness in science, technology, engineering, and mathematics," Evaluation and Program Planning, Elsevier, vol. 92(C).
    15. Paul R. Lachapelle & Tim Dunnagan & James Real Bird, 2011. "Applying innovative approaches to address health disparities in native populations: an assessment of the Crow Men's Health Project," Community Development, Taylor & Francis Journals, vol. 42(2), pages 240-254, April.
    16. Jennifer S. Carrera & Kent Key & Sarah Bailey & Joseph A. Hamm & Courtney A. Cuthbertson & E. Yvonne Lewis & Susan J. Woolford & E. Hill DeLoney & Ella Greene-Moton & Kaneesha Wallace & DeWaun E. Robi, 2019. "Community Science as a Pathway for Resilience in Response to a Public Health Crisis in Flint, Michigan," Social Sciences, MDPI, vol. 8(3), pages 1-25, March.
    17. Richard F Armenta & Daniel Kellogg & Jessica L Montoya & Rick Romero & Shandiin Armao & Daniel Calac & Tommi L Gaines, 2021. "“There Is a Lot of Practice in Not Thinking about That”: Structural, Interpersonal, and Individual-Level Barriers to HIV/STI Prevention among Reservation Based American Indians," IJERPH, MDPI, vol. 18(7), pages 1-12, March.
    18. Marisa Torres-Ruiz & Kaitlynn Robinson-Ector & Dionna Attinson & Jamie Trotter & Ayodola Anise & Steven Clauser, 2018. "A Portfolio Analysis of Culturally Tailored Trials to Address Health and Healthcare Disparities," IJERPH, MDPI, vol. 15(9), pages 1-14, August.
    19. Áron Perényi & Rowan E. Bedggood & Denny Meyer & Phillip Bedggood & Karen Farquharson & Clare Johansson & Gina Milgate, 2019. "Exploring the Effectiveness of an Energy Efficiency Behaviour Change Project on Well-Being Outcomes for Indigenous Households in Australia," Sustainability, MDPI, vol. 11(8), pages 1-18, April.
    20. Wenndt, Anthony J. & Sudini, Hari Kishan & Pingali, Prabhu & Nelson, Rebecca, 2021. "Farmer research networks enable community-based mycotoxin management in rural Indian villages," Agricultural Systems, Elsevier, vol. 192(C).

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:16:y:2019:i:16:p:2969-:d:258683. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.