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Digital Health Literacy and Person-Centred Care: Co-Creation of a Massive Open Online Course for Women with Breast Cancer

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Listed:
  • Yolanda Álvarez-Pérez

    (Canary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain
    Network for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), 38109 Tenerife, Spain
    The Spanish Network of Agencies for Health Technology Assessment and Services of the National Health System (RedETS), 28029 Madrid, Spain)

  • Andrea Duarte-Díaz

    (Canary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain
    Network for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), 38109 Tenerife, Spain
    The Spanish Network of Agencies for Health Technology Assessment and Services of the National Health System (RedETS), 28029 Madrid, Spain)

  • Ana Toledo-Chávarri

    (Canary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain
    Network for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), 38109 Tenerife, Spain
    The Spanish Network of Agencies for Health Technology Assessment and Services of the National Health System (RedETS), 28029 Madrid, Spain)

  • Analía Abt-Sacks

    (Canary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain
    Network for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), 38109 Tenerife, Spain
    The Spanish Network of Agencies for Health Technology Assessment and Services of the National Health System (RedETS), 28029 Madrid, Spain)

  • Vanesa Ramos-García

    (Canary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain
    Network for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), 38109 Tenerife, Spain
    The Spanish Network of Agencies for Health Technology Assessment and Services of the National Health System (RedETS), 28029 Madrid, Spain)

  • Alezandra Torres-Castaño

    (Canary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain
    Network for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), 38109 Tenerife, Spain
    The Spanish Network of Agencies for Health Technology Assessment and Services of the National Health System (RedETS), 28029 Madrid, Spain)

  • Amado Rivero-Santana

    (Canary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain
    Network for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), 38109 Tenerife, Spain
    The Spanish Network of Agencies for Health Technology Assessment and Services of the National Health System (RedETS), 28029 Madrid, Spain)

  • Lilisbeth Perestelo-Pérez

    (Network for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), 38109 Tenerife, Spain
    The Spanish Network of Agencies for Health Technology Assessment and Services of the National Health System (RedETS), 28029 Madrid, Spain
    Evaluation Unit (SESCS), Canary Islands Health Service (SCS), 38109 Tenerife, Spain)

Abstract

The diagnosis of breast cancer (BC) can make the affected person vulnerable to suffering the possible consequences of the use of low-quality health information. Massive open online courses (MOOCs) may be a useful and efficient resource to improve digital health literacy and person-centred care in this population. The aim of this study is to co-create a MOOC for women with BC, using a modified design approach based on patients’ experience. Co-creation was divided into three sequential phases: exploratory, development and evaluation. Seventeen women in any stage of BC and two healthcare professionals participated. In the exploratory phase, a patient journey map was carried out and empowerment needs related to emotional management strategies and self-care guidelines were identified, as well as information needs related to understanding medical terminology. In the development phase, participants designed the structure and contents of the MOOC through a Moodle platform. A MOOC with five units was developed. In the evaluation phase, participants strongly agreed that their participation was useful for the MOOC’s development and participating in the co-creation process made the content more relevant to them (experience in the co-creation); most of the participants positively evaluated the content or interface of the MOOC (acceptability pilot). Educational interventions designed by women with BC is a viable strategy to generate higher-quality, useful resources for this population.

Suggested Citation

  • Yolanda Álvarez-Pérez & Andrea Duarte-Díaz & Ana Toledo-Chávarri & Analía Abt-Sacks & Vanesa Ramos-García & Alezandra Torres-Castaño & Amado Rivero-Santana & Lilisbeth Perestelo-Pérez, 2023. "Digital Health Literacy and Person-Centred Care: Co-Creation of a Massive Open Online Course for Women with Breast Cancer," IJERPH, MDPI, vol. 20(5), pages 1-14, February.
    • Handle: RePEc:gam:jijerp:v:20:y:2023:i:5:p:3922-:d:1077158
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    References listed on IDEAS

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    1. DonHee Lee, 2019. "Effects of key value co-creation elements in the healthcare system: focusing on technology applications," Service Business, Springer;Pan-Pacific Business Association, vol. 13(2), pages 389-417, June.
    2. Lilisbeth Perestelo-Perez & Alezandra Torres-Castaño & Carina González-González & Yolanda Alvarez-Perez & Ana Toledo-Chavarri & Ana Wagner & Michelle Perello & Stephan Van Der Broucke & Gonzalo Díaz-M, 2020. "IC-Health Project: Development of MOOCs to Promote Digital Health Literacy: First Results and Future Challenges," Sustainability, MDPI, vol. 12(16), pages 1-17, August.
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