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Perspective Developing Successful Collaborative Research Partnerships with AI/AN Communities

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  • Jonathan Credo

    (College of Medicine, University of Arizona, Tucson, AZ 85721, USA)

  • Jani C. Ingram

    (Department of Chemistry & Biochemistry, Northern Arizona University, Flagstaff, AZ 86011, USA)

Abstract

In the United States, American Indian and Alaska Native (AI/AN) people are frequently under- or misrepresented in research and health statistics. A principal reason for this disparity is the lack of collaborative partnerships between researchers and tribes. There are hesitations from both academic Western scientists and tribal communities to establish new partnerships due to differences in cultural and scientific understanding, from data ownership and privacy to dissemination and project expansion. An infamous example is the mishandling of samples collected from the Havasupai Tribe by Arizona State University (ASU) scientists, leading to a legal battle between the tribe and ASU and ending in a moratorium of research with the Havasupai people. This paper will explore three successful and positive collaborations with a large and small tribe, including how the partnerships were established and the outcomes of the collaboration. In addition, the paper will provide perspective of what needs to be addressed by Western scientists if productive collaborations with tribal groups are to be established.

Suggested Citation

  • Jonathan Credo & Jani C. Ingram, 2021. "Perspective Developing Successful Collaborative Research Partnerships with AI/AN Communities," IJERPH, MDPI, vol. 18(17), pages 1-10, August.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:17:p:9089-:d:624174
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    References listed on IDEAS

    as
    1. Yuan, N.P. & Bartgis, J. & Demers, D., 2014. "Promoting ethical research with American Indian and Alaska native people living in urban areas," American Journal of Public Health, American Public Health Association, vol. 104(11), pages 2085-2091.
    2. Kelley, A. & Belcourt-Dittloff, A. & Belcourt, C. & Belcourt, G., 2013. "Research ethics and indigenous communities," American Journal of Public Health, American Public Health Association, vol. 103(12), pages 2146-2152.
    3. Jonathan Credo & Jaclyn Torkelson & Tommy Rock & Jani C. Ingram, 2019. "Quantification of Elemental Contaminants in Unregulated Water across Western Navajo Nation," IJERPH, MDPI, vol. 16(15), pages 1-15, July.
    4. Beth Rose Middleton & Sabine Talaugon & Thomas M. Young & Luann Wong & Suzanne Fluharty & Kaitlin Reed & Christine Cosby & Richard Myers, 2019. "Bi-Directional Learning: Identifying Contaminants on the Yurok Indian Reservation," IJERPH, MDPI, vol. 16(19), pages 1-18, September.
    5. Carter, Brian T.G. & Nielsen, Erik A., 2011. "Exploring ecological changes in Cook Inlet beluga whale habitat though traditional and local ecological knowledge of contributing factors for population decline," Marine Policy, Elsevier, vol. 35(3), pages 299-308, May.
    6. George, S. & Duran, N. & Norris, K., 2014. "A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders," American Journal of Public Health, American Public Health Association, vol. 104(2), pages 16-31.
    7. Brandy M Mapes & Christopher S Foster & Sheila V Kusnoor & Marcia I Epelbaum & Mona AuYoung & Gwynne Jenkins & Maria Lopez-Class & Dara Richardson-Heron & Ahmed Elmi & Karl Surkan & Robert M Cronin & , 2020. "Diversity and inclusion for the All of Us research program: A scoping review," PLOS ONE, Public Library of Science, vol. 15(7), pages 1-14, July.
    8. Pacheco, C.M. & Daley, S.M. & Brown, T. & Filippi, M. & Greiner, K.A. & Daley, C.M., 2013. "Moving forward: Breaking the cycle of mistrust between American Indians and researchers," American Journal of Public Health, American Public Health Association, vol. 103(12), pages 2152-2159.
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    Cited by:

    1. Kalinda Griffiths & Abbey Diaz & Lisa J. Whop & Joan Cunningham, 2021. "The Health and Wellbeing of Indigenous and Tribal Peoples around the Globe: Ensuring and Promoting Best Practice in Research," IJERPH, MDPI, vol. 19(1), pages 1-9, December.

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