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Research ethics and indigenous communities

Author

Listed:
  • Kelley, A.
  • Belcourt-Dittloff, A.
  • Belcourt, C.
  • Belcourt, G.

Abstract

Institutional review boards (IRBs) function to regulate research for the protection of human participants. We share lessons learned from the development of an intertribal IRB in the Rocky Mountain/Great Plains Tribal region of the United States. We describe the process through which a consortium of Tribes collaboratively developed an intertribal board to promote community-level protection and participation in the research process. In addition, we examine the challenges of research regulation from a Tribal perspective and explore the future of Tribally regulated research that honors indigenous knowledge and promotes community accountability and transparency. We offer recommendations for researchers, funding agencies, and Tribal communities to consider in the review and regulation of research.

Suggested Citation

  • Kelley, A. & Belcourt-Dittloff, A. & Belcourt, C. & Belcourt, G., 2013. "Research ethics and indigenous communities," American Journal of Public Health, American Public Health Association, vol. 103(12), pages 2146-2152.
    • Handle: RePEc:aph:ajpbhl:10.2105/ajph.2013.301522_8
    DOI: 10.2105/AJPH.2013.301522
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    Citations

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    Cited by:

    1. Jonathan Credo & Jani C. Ingram, 2021. "Perspective Developing Successful Collaborative Research Partnerships with AI/AN Communities," IJERPH, MDPI, vol. 18(17), pages 1-10, August.
    2. Vanessa Y. Hiratsuka & Julie A. Beans & Renee F. Robinson & Jennifer L. Shaw & Ileen Sylvester & Denise A. Dillard, 2017. "Self-Determination in Health Research: An Alaska Native Example of Tribal Ownership and Research Regulation," IJERPH, MDPI, vol. 14(11), pages 1-11, October.
    3. Melissa Gonzales & Elanda King & Jeanette Bobelu & Donica M. Ghahate & Teresa Madrid & Sheri Lesansee & Vallabh Shah, 2018. "Perspectives on Biological Monitoring in Environmental Health Research: A Focus Group Study in a Native American Community," IJERPH, MDPI, vol. 15(6), pages 1-8, May.
    4. Jeffrey J. Brooks, 2022. "Genuine tribal and Indigenous representation in the United States," Palgrave Communications, Palgrave Macmillan, vol. 9(1), pages 1-6, December.
    5. Diana Rohlman & Jamie Donatuto & Myk Heidt & Michael Barton & Larry Campbell & Kim A. Anderson & Molly L. Kile, 2019. "A Case Study Describing a Community-Engaged Approach for Evaluating Polycyclic Aromatic Hydrocarbon Exposure in a Native American Community," IJERPH, MDPI, vol. 16(3), pages 1-18, January.
    6. Parker, Tassy & Kelley, Allyson & Cooeyate, Norman & Tsosie, Nathania, 2024. "Participatory training evaluation: Steps from the Center for Native American Health Native-CHART symposium," Evaluation and Program Planning, Elsevier, vol. 103(C).

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