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Moving forward: Breaking the cycle of mistrust between American Indians and researchers

Author

Listed:
  • Pacheco, C.M.
  • Daley, S.M.
  • Brown, T.
  • Filippi, M.
  • Greiner, K.A.
  • Daley, C.M.

Abstract

American Indians (AIs) have some of the poorest documented health outcomes of any racial/ethnic group. Research plays a vital role in addressing these health disparities. Historical and recent instances of unethical research, specifically the Havasupai diabetes project, have generated mistrust in AI communities. To address the concerns about unethical research held by some AIs in the Heartland (Midwest), the Center for American Indian Community Health (CAICH) has launched a series of efforts to inform AIs about research participants' rights. CAICH educates health researchers about the importance of learning and respecting a community's history, culture, values, and wishes when engaging in research with that community. Through community-based participatory research, CAICH is also empowering AIs to assert their rights as research participants.

Suggested Citation

  • Pacheco, C.M. & Daley, S.M. & Brown, T. & Filippi, M. & Greiner, K.A. & Daley, C.M., 2013. "Moving forward: Breaking the cycle of mistrust between American Indians and researchers," American Journal of Public Health, American Public Health Association, vol. 103(12), pages 2152-2159.
    • Handle: RePEc:aph:ajpbhl:10.2105/ajph.2013.301480_1
    DOI: 10.2105/AJPH.2013.301480
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    Citations

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    Cited by:

    1. Jonathan Credo & Jani C. Ingram, 2021. "Perspective Developing Successful Collaborative Research Partnerships with AI/AN Communities," IJERPH, MDPI, vol. 18(17), pages 1-10, August.
    2. Melissa E. Lewis & Hannah I. Volpert-Esmond & Jason F. Deen & Elizabeth Modde & Donald Warne, 2021. "Stress and Cardiometabolic Disease Risk for Indigenous Populations throughout the Lifespan," IJERPH, MDPI, vol. 18(4), pages 1-24, February.
    3. Vanessa Y. Hiratsuka & Julie A. Beans & Renee F. Robinson & Jennifer L. Shaw & Ileen Sylvester & Denise A. Dillard, 2017. "Self-Determination in Health Research: An Alaska Native Example of Tribal Ownership and Research Regulation," IJERPH, MDPI, vol. 14(11), pages 1-11, October.
    4. Julie A. Beans & Bobby Saunkeah & R. Brian Woodbury & Terry S. Ketchum & Paul G. Spicer & Vanessa Y. Hiratsuka, 2019. "Community Protections in American Indian and Alaska Native Participatory Research—A Scoping Review," Social Sciences, MDPI, vol. 8(4), pages 1-18, April.
    5. Katherine Leggat-Barr & Fumiya Uchikoshi & Noreen Goldman, 2021. "COVID-19 risk factors and mortality among Native Americans," Demographic Research, Max Planck Institute for Demographic Research, Rostock, Germany, vol. 45(39), pages 1185-1218.
    6. Charles R. Rogers & David G. Perdue & Kenneth Boucher & Kevin M. Korous & Ellen Brooks & Ethan Petersen & John M. Inadomi & Fa Tuuhetaufa & Ronald F. Levant & Electra D. Paskett, 2022. "Masculinity Barriers to Ever Completing Colorectal Cancer Screening among American Indian/Alaska Native, Black, and White Men (Ages 45–75)," IJERPH, MDPI, vol. 19(5), pages 1-12, March.
    7. Joseph A. Pacheco & Christina M. Pacheco & Charley Lewis & Chandler Williams & Charles Barnes & Lanny Rosenwasser & Won S. Choi & Christine M. Daley, 2015. "Ensuring Healthy American Indian Generations for Tomorrow through Safe and Healthy Indoor Environments," IJERPH, MDPI, vol. 12(3), pages 1-13, March.

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