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The use of evidence-based outcomes in systems and organizations providing services and supports to persons with intellectual disability

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  • van Loon, Jos H.M.
  • Bonham, Gordon S.
  • Peterson, Dale D.
  • Schalock, Robert L.
  • Claes, Claudia
  • Decramer, Adelien E.M.

Abstract

This article describes how evidence-based outcomes (EBOs) can be used to improve clinical, managerial, and policy decisions. As a component of evidence-based practices, EBOs are defined as measures obtained from the assessment of quality of life-related indicators that are based on a cross-culturally validated quality of life conceptual and measurement model, have utility in that they can be used for multiple purposes, and have robustness in reference to reliability and validity of the assessment strategy employed. A 5-component EBO model is described that provides a framework for the activities involved in selecting, developing, and implementing evidence-based outcomes. Three international examples based on the reliable, valid, and standardized assessment of individual quality of life outcomes are presented that demonstrate how EBOs can be used to improve clinical, managerial, and policy decision making. The article concludes with a discussion of guidelines for developing and using EBOs, and the challenges involved in their use.

Suggested Citation

  • van Loon, Jos H.M. & Bonham, Gordon S. & Peterson, Dale D. & Schalock, Robert L. & Claes, Claudia & Decramer, Adelien E.M., 2013. "The use of evidence-based outcomes in systems and organizations providing services and supports to persons with intellectual disability," Evaluation and Program Planning, Elsevier, vol. 36(1), pages 80-87.
    • Handle: RePEc:eee:epplan:v:36:y:2013:i:1:p:80-87
    DOI: 10.1016/j.evalprogplan.2012.08.002
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    References listed on IDEAS

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    1. Schalock, Robert L. & Bonham, Gordon S., 2003. "Measuring outcomes and managing for results," Evaluation and Program Planning, Elsevier, vol. 26(3), pages 229-235, August.
    2. Schalock, Robert L. & Verdugo, Miguel Angel & Gomez, Laura E., 2011. "Evidence-based practices in the field of intellectual and developmental disabilities: An international consensus approach," Evaluation and Program Planning, Elsevier, vol. 34(3), pages 273-282, August.
    3. Pollitt, Christopher & Bouckaert, Geert, 2004. "Public Management Reform: A Comparative Analysis," OUP Catalogue, Oxford University Press, edition 2, number 9780199268498.
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    Cited by:

    1. Audenaert, Mieke & Decramer, Adelien & George, Bert, 2021. "How to foster employee quality of life: The role of employee performance management and authentic leadership," Evaluation and Program Planning, Elsevier, vol. 85(C).
    2. Jos H M van Loon & Remco Mostert, 2020. "Guidelines in Supporting People with Intellectual Disabilities.It’s all About Values," Global Journal of Intellectual & Developmental Disabilities, Juniper Publishers Inc., vol. 7(1), pages 13-17, October.
    3. Saskia Crucke & Adelien Decramer, 2016. "The Development of a Measurement Instrument for the Organizational Performance of Social Enterprises," Sustainability, MDPI, vol. 8(2), pages 1-30, February.
    4. Gómez, Laura E. & Verdugo, Miguel Ángel & Arias, Benito & Navas, Patricia & Schalock, Robert L., 2013. "The development and use of Provider Profiles at the organizational and systems level," Evaluation and Program Planning, Elsevier, vol. 40(C), pages 17-26.
    5. Schalock, Robert L. & Lee, Tim & Verdugo, Miguel & Swart, Kees & Claes, Claudia & van Loon, Jos & Lee, Chun-Shin, 2014. "An evidence-based approach to organization evaluation and change in human service organizations evaluation and program planning," Evaluation and Program Planning, Elsevier, vol. 45(C), pages 110-118.
    6. Nele Van Hecke & Claudia Claes & Wouter Vanderplasschen & Jessica De Maeyer & Nico De Witte & Stijn Vandevelde, 2018. "Conceptualisation and Measurement of Quality of Life Based on Schalock and Verdugo’s Model: A Cross-Disciplinary Review of the Literature," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 137(1), pages 335-351, May.
    7. Claes, Claudia & van Loon, Jos & Vandevelde, Stijn & Schalock, Robert, 2015. "An integrative approach to evidence based practices," Evaluation and Program Planning, Elsevier, vol. 48(C), pages 132-136.
    8. Schalock, Robert L. & Verdugo, Miguel Angel & van Loon, Jos, 2018. "Understanding organization transformation in evaluation and program planning," Evaluation and Program Planning, Elsevier, vol. 67(C), pages 53-60.
    9. Chris Swerts & Jessica De Maeyer & Marco Lombardi & Inge Waterschoot & Wouter Vanderplasschen & Claudia Claes, 2019. "“You Shouldn’t Look at Us Strangely”: An Exploratory Study on Personal Perspectives on Quality of Life of Adolescents with Emotional and Behavioral Disorders in Residential Youth Care," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 14(4), pages 867-889, September.
    10. María Fernández & Miguel Ángel Verdugo & Laura E. Gómez & Virginia Aguayo & Benito Arias, 2018. "Core Indicators to Assess Quality of Life in Population with Brain Injury," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 137(2), pages 813-828, June.

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