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Core Indicators to Assess Quality of Life in Population with Brain Injury

Author

Listed:
  • María Fernández

    (INICO-University of Salamanca)

  • Miguel Ángel Verdugo

    (INICO-University of Salamanca)

  • Laura E. Gómez

    (INICO-University of Oviedo)

  • Virginia Aguayo

    (INICO-University of Salamanca)

  • Benito Arias

    (INICO-University of Valladolid)

Abstract

Assessing quality of life of people with brain injury has a relevant role for developing strategies focused on personal outcomes that allow us to guide good practices and rehabilitation. So far, assessment of quality of life for this population has been restricted to an evaluation of personal outcomes from a health-related quality of life perspective. This approach it is mostly centered on physical health, however, quality of life needs to be addressed from a holistic and multidimensional perspective. The goal of this study is to identify core indicators of quality of life in brain injury based on a comprehensive theoretical model focused on the most relevant aspects of this population functioning. A Delphi study was carried out to obtain the specific core indicators of quality of life for this population. The methodology used to reach a consensus about the best indicators and items to measure quality of life involved four rounds and 14 experts on rehabilitation of people with brain injury. The Delphi study provided evidence of content validity for the field-test version of a new scale that will be applied to a wide sample in order to empirically check its suitability for this population.

Suggested Citation

  • María Fernández & Miguel Ángel Verdugo & Laura E. Gómez & Virginia Aguayo & Benito Arias, 2018. "Core Indicators to Assess Quality of Life in Population with Brain Injury," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 137(2), pages 813-828, June.
    • Handle: RePEc:spr:soinre:v:137:y:2018:i:2:d:10.1007_s11205-017-1612-6
    DOI: 10.1007/s11205-017-1612-6
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    References listed on IDEAS

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    1. Gómez, Laura E. & Verdugo, Miguel Ángel & Arias, Benito & Navas, Patricia & Schalock, Robert L., 2013. "The development and use of Provider Profiles at the organizational and systems level," Evaluation and Program Planning, Elsevier, vol. 40(C), pages 17-26.
    2. Schalock, Robert L. & Verdugo, Miguel Angel & Gomez, Laura E., 2011. "Evidence-based practices in the field of intellectual and developmental disabilities: An international consensus approach," Evaluation and Program Planning, Elsevier, vol. 34(3), pages 273-282, August.
    3. Laura Gomez & Benito Arias & Miguel Verdugo & Patricia Navas, 2012. "An Outcomes-Based Assessment of Quality of Life in Social Services," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 106(1), pages 81-93, March.
    4. Norman Dalkey & Olaf Helmer, 1963. "An Experimental Application of the DELPHI Method to the Use of Experts," Management Science, INFORMS, vol. 9(3), pages 458-467, April.
    5. Schalock, Robert L. & Bonham, Gordon S. & Verdugo, Miguel A., 2008. "The conceptualization and measurement of quality of life: Implications for program planning and evaluation in the field of intellectual disabilities," Evaluation and Program Planning, Elsevier, vol. 31(2), pages 181-190, May.
    6. van Loon, Jos H.M. & Bonham, Gordon S. & Peterson, Dale D. & Schalock, Robert L. & Claes, Claudia & Decramer, Adelien E.M., 2013. "The use of evidence-based outcomes in systems and organizations providing services and supports to persons with intellectual disability," Evaluation and Program Planning, Elsevier, vol. 36(1), pages 80-87.
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    Cited by:

    1. Mª Lucía Morán & Laura E. Gómez & Giulia Balboni & Alice Bacherini & Asunción Monsalve, 2024. "Quality of Life in Children and Adolescents with Cerebral Palsy and Intellectual Disability: Predictors and Personal Outcomes," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 17(1), pages 123-143, February.
    2. Chris Swerts & Laura E. Gómez & Jessica Maeyer & Goedele Nil & Wouter Vanderplasschen, 2022. "Development of the Quality of Life in Youth Services Scale (QOLYSS): Content-Related Validity Evidence Based on Adolescents’ and Expert Reviewers’ Perspectives," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 17(2), pages 593-612, April.

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