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Caregiving actions: Outgrowths of the family caregiver's conceptions of care

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  • Fekadu Aga
  • Merja Nikkonen
  • Jari Kylmä

Abstract

Caregiving actions emanate from the family caregiver's care meanings. Therefore, this article presents caregiving actions as outgrowths of the family caregiver's cultural conceptions of care and as situated within constraining sociocultural factors. Qualitative data were collected through interviews and participant observations from 18 purposively selected family caregivers of people living with HIV/AIDS (PLWAs) in Addis Ababa, Ethiopia. Three lines of caregiving actions performed by the participating family caregivers are presented: nutritional and medication care actions, physical care actions, and psychological and spiritual care actions. We have also explicated the problematic situations and sociocultural factors constraining the family caregivers in performing the caregiving actions. This study underlines the significance of addressing such problematic situations as are raised, as well as the sociocultural issues that constrain the family caregivers' agentic scope for planning and executing caregiving actions.

Suggested Citation

  • Fekadu Aga & Merja Nikkonen & Jari Kylmä, 2014. "Caregiving actions: Outgrowths of the family caregiver's conceptions of care," Nursing & Health Sciences, John Wiley & Sons, vol. 16(2), pages 149-156, June.
    • Handle: RePEc:wly:nuhsci:v:16:y:2014:i:2:p:149-156
    DOI: 10.1111/nhs.12077
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    References listed on IDEAS

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    1. Leblanc, Allen J. & London, Andrew S. & Aneshensel, Carol S., 1997. "The physical costs of AIDS caregiving," Social Science & Medicine, Elsevier, vol. 45(6), pages 915-923, September.
    2. Powell-Cope, Gail M. & Brown, Marie Annette, 1992. "Going public as an AIDS family caregiver," Social Science & Medicine, Elsevier, vol. 34(5), pages 571-580, March.
    3. Folkman, Susan, 1997. "Positive psychological states and coping with severe stress," Social Science & Medicine, Elsevier, vol. 45(8), pages 1207-1221, October.
    4. Christensen, Pia, 2004. "The health-promoting family: a conceptual framework for future research," Social Science & Medicine, Elsevier, vol. 59(2), pages 377-387, July.
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    1. Marianne Saragosa & Melissa Frew & Shoshana Hahn-Goldberg & Ani Orchanian-Cheff & Howard Abrams & Karen Okrainec, 2022. "The Young Carers’ Journey: A Systematic Review and Meta Ethnography," IJERPH, MDPI, vol. 19(10), pages 1-25, May.
    2. Sibel Sevinç & Mohammad Ajghif & Özge Uzun & Uğur Gülbil, 2016. "Expectations of relatives of Syrian patients in intensive care units in a state hospital in Turkey," Journal of Clinical Nursing, John Wiley & Sons, vol. 25(15-16), pages 2232-2241, August.
    3. Ya‐Fen Lien & Hui‐Man Huang, 2017. "Challenges in intergenerational caregiving for frail older people: A multiple case study," Nursing & Health Sciences, John Wiley & Sons, vol. 19(1), pages 81-87, March.

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