IDEAS home Printed from https://ideas.repec.org/a/wly/jocnur/v25y2016i7-8p1035-1044.html
   My bibliography  Save this article

Health professionals' perspectives on children's and young people's participation in health care: a qualitative multihospital study

Author

Listed:
  • Inge Schalkers
  • Cathleen S Parsons
  • Joske FG Bunders
  • Christine Dedding

Abstract

Aims and objectives To investigate healthcare professionals' perspectives on child participation in paediatric hospital care and their opinions on improving participation practices. Background Some scholars argue that the decision‐making capacities of children largely depend on the attitudes of healthcare professionals rather than on the children's own competences. Healthcare professionals' perspectives on children's participation in hospital care remain largely unexplored. Design Qualitative descriptive design. Methods Healthcare professionals (n = 32) from 10 paediatric wards in the Netherlands participated in semi‐structured interviews. Shier's Pathways to Participation model (2001) was used to guide the interviews. Results Participation is not a term that is frequently used by professionals; however, they feel familiar with the ideas underlying the term, and it is perceived as being at the core of their work. Professionals believe that high levels of participation are possible in basic care for children. Participation in medical decision‐making is considered to be more complex and subject to a number of reservations and restrictions. The participants expressed a strong need to enhance child participation in service evaluation and to increase the respect for and understanding of the rights of children to participate outside of the paediatric unit, including in the surgery and emergency departments. Conclusion Children do not currently participate in the assessment of hospital services. Creative methods that support the role of children in evaluating and improving the quality of paediatric hospital care and services should be developed. Hospital‐wide policies could help to promote understanding of child participation among all professionals caring for children in hospitals. Relevance to clinical practice Based on international agreements that the Netherlands has ratified, professionals have the duty to facilitate child participation in hospital care. Concrete opportunities and ideas on how to accomplish this goal in practice are provided, and areas for improvement are identified.

Suggested Citation

  • Inge Schalkers & Cathleen S Parsons & Joske FG Bunders & Christine Dedding, 2016. "Health professionals' perspectives on children's and young people's participation in health care: a qualitative multihospital study," Journal of Clinical Nursing, John Wiley & Sons, vol. 25(7-8), pages 1035-1044, April.
    • Handle: RePEc:wly:jocnur:v:25:y:2016:i:7-8:p:1035-1044
    DOI: 10.1111/jocn.13152
    as

    Download full text from publisher

    File URL: https://doi.org/10.1111/jocn.13152
    Download Restriction: no
    File URL: https://libkey.io/10.1111/jocn.13152?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Alderson, Priscilla, 2007. "Competent children? Minors' consent to health care treatment and research," Social Science & Medicine, Elsevier, vol. 65(11), pages 2272-2283, December.
    2. Lucie Moore & Susan Kirk, 2010. "A literature review of children’s and young people’s participation in decisions relating to health care," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(15‐16), pages 2215-2225, August.
    3. Roger A. Hart, 1992. "Children's Participation: From tokenism to citizenship," Papers inness92/6, Innocenti Essay.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Britt‐Mari Gilljam & Susann Arvidsson & Jens M. Nygren & Petra Svedberg, 2020. "Child participation in health care (ChiPaC)—Development and psychometric evaluation of a self‐report instrument for children's participation in health care," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(1-2), pages 107-118, January.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Kristi Paron, 2024. "Exploring Child-Patient Autonomy: Findings from an Ethnographic Study of Clinic Visits by Children," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 17(1), pages 99-121, February.
    2. Donna Koller, 2017. "‘Kids need to talk too’: inclusive practices for children's healthcare education and participation," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(17-18), pages 2657-2668, September.
    3. Mona Treude & Ralf Schüle & Hans Haake, 2022. "Smart Sustainable Cities—Case Study Südwestfalen Germany," Sustainability, MDPI, vol. 14(10), pages 1-16, May.
    4. Bhana, Deevia, 2009. ""AIDS is rape!" gender and sexuality in children's responses to HIV and AIDS," Social Science & Medicine, Elsevier, vol. 69(4), pages 596-603, August.
    5. Richard Peter Bailey & Suria Angit, 2022. "Conceptualising Inclusion and Participation in the Promotion of Healthy Lifestyles," IJERPH, MDPI, vol. 19(16), pages 1-14, August.
    6. Richard Maclure, 2017. "Youth Reflexivity as Participatory Research in Senegal: A Field Study of Reciprocal Learning and Incremental Transformations," Social Inclusion, Cogitatio Press, vol. 5(3), pages 251-261.
    7. Gazit, Matan & Perry-Hazan, Lotem, 2020. "Disadvantaged youth’s participation in collective decision making," Children and Youth Services Review, Elsevier, vol. 110(C).
    8. Duramy, Benedetta Faedi & Gal, Tali, 2020. "Understanding and implementing child participation: Lessons from the Global South," Children and Youth Services Review, Elsevier, vol. 119(C).
    9. Matthew Morton & Paul Montgomery, 2010. "PROTOCOL: Youth empowerment programs for improving self‐efficacy and self‐esteem of adolescents," Campbell Systematic Reviews, John Wiley & Sons, vol. 6(1), pages 1-38.
    10. Nir, Tal & Perry-Hazan, Lotem, 2016. "The framed right to participate in municipal youth councils and its educational impact," Children and Youth Services Review, Elsevier, vol. 69(C), pages 174-183.
    11. Harriet Thew & Lucie Middlemiss & Jouni Paavola, 2022. "“You Need a Month’s Holiday Just to Get over It!” Exploring Young People’s Lived Experiences of the UN Climate Change Negotiations," Sustainability, MDPI, vol. 14(7), pages 1-21, April.
    12. Marta Estellés & Francisco José Amo & Jesús Romero, 2021. "The Consensus on Citizenship Education Purposes in Teacher Education," Social Sciences, MDPI, vol. 10(5), pages 1-19, May.
    13. Haarberg, Frøydis Lønborg, 2024. "What do we know about children’s representation in child protection decisions? A scoping review," Children and Youth Services Review, Elsevier, vol. 160(C).
    14. Bradbury-Jones, Caroline & Isham, Louise & Taylor, Julie, 2018. "The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review," Social Science & Medicine, Elsevier, vol. 215(C), pages 80-91.
    15. Sollis, Kate & Yap, Mandy & Campbell, Paul & Biddle, Nicholas, 2022. "Conceptualisations of wellbeing and quality of life: A systematic review of participatory studies," World Development, Elsevier, vol. 160(C).
    16. Lynne O. Cairns & Rongedzayi Fambasayi & Rejoice Shamiso Katsidzira & Predrag Milić & Jua Cilliers & Paula Barros, 2024. "Laying the Foundations for a Child-Focused Cities Analytical Framework: Reflections From an International, Interdisciplinary Collaboration," Urban Planning, Cogitatio Press, vol. 9.
    17. Ruff, Saralyn C. & Harrison, Kristi, 2020. "“Ask Me What I Want”: Community-based participatory research to explore transition-age foster Youth’s use of support services," Children and Youth Services Review, Elsevier, vol. 108(C).
    18. Marcus Bhargava & Lee Jerome, 2020. "Training Teachers for and through Citizenship: Learning from Citizenship Experiences," Societies, MDPI, vol. 10(2), pages 1-12, April.
    19. Putniņa, Aivita, 2013. "Bioethics and power: Informed consent procedures in post-socialist Latvia," Social Science & Medicine, Elsevier, vol. 98(C), pages 340-344.
    20. Perry-Hazan, Lotem, 2016. "Children's participation in national policymaking: “You're so adorable, adorable, adorable! I'm speechless; so much fun!”," Children and Youth Services Review, Elsevier, vol. 67(C), pages 105-113.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:wly:jocnur:v:25:y:2016:i:7-8:p:1035-1044. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Wiley Content Delivery (email available below). General contact details of provider: https://doi.org/10.1111/(ISSN)1365-2702 .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.