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Health professionals' perspectives on children's and young people's participation in health care: a qualitative multihospital study

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  • Inge Schalkers
  • Cathleen S Parsons
  • Joske FG Bunders
  • Christine Dedding

Abstract

Aims and objectives To investigate healthcare professionals' perspectives on child participation in paediatric hospital care and their opinions on improving participation practices. Background Some scholars argue that the decision‐making capacities of children largely depend on the attitudes of healthcare professionals rather than on the children's own competences. Healthcare professionals' perspectives on children's participation in hospital care remain largely unexplored. Design Qualitative descriptive design. Methods Healthcare professionals (n = 32) from 10 paediatric wards in the Netherlands participated in semi‐structured interviews. Shier's Pathways to Participation model (2001) was used to guide the interviews. Results Participation is not a term that is frequently used by professionals; however, they feel familiar with the ideas underlying the term, and it is perceived as being at the core of their work. Professionals believe that high levels of participation are possible in basic care for children. Participation in medical decision‐making is considered to be more complex and subject to a number of reservations and restrictions. The participants expressed a strong need to enhance child participation in service evaluation and to increase the respect for and understanding of the rights of children to participate outside of the paediatric unit, including in the surgery and emergency departments. Conclusion Children do not currently participate in the assessment of hospital services. Creative methods that support the role of children in evaluating and improving the quality of paediatric hospital care and services should be developed. Hospital‐wide policies could help to promote understanding of child participation among all professionals caring for children in hospitals. Relevance to clinical practice Based on international agreements that the Netherlands has ratified, professionals have the duty to facilitate child participation in hospital care. Concrete opportunities and ideas on how to accomplish this goal in practice are provided, and areas for improvement are identified.

Suggested Citation

  • Inge Schalkers & Cathleen S Parsons & Joske FG Bunders & Christine Dedding, 2016. "Health professionals' perspectives on children's and young people's participation in health care: a qualitative multihospital study," Journal of Clinical Nursing, John Wiley & Sons, vol. 25(7-8), pages 1035-1044, April.
    • Handle: RePEc:wly:jocnur:v:25:y:2016:i:7-8:p:1035-1044
    DOI: 10.1111/jocn.13152
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    References listed on IDEAS

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    1. Lucie Moore & Susan Kirk, 2010. "A literature review of children’s and young people’s participation in decisions relating to health care," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(15‐16), pages 2215-2225, August.
    2. Roger A. Hart, 1992. "Children's Participation: From tokenism to citizenship," Papers inness92/6, Innocenti Essay.
    3. Alderson, Priscilla, 2007. "Competent children? Minors' consent to health care treatment and research," Social Science & Medicine, Elsevier, vol. 65(11), pages 2272-2283, December.
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    Cited by:

    1. Britt‐Mari Gilljam & Susann Arvidsson & Jens M. Nygren & Petra Svedberg, 2020. "Child participation in health care (ChiPaC)—Development and psychometric evaluation of a self‐report instrument for children's participation in health care," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(1-2), pages 107-118, January.

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