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Child participation in health care (ChiPaC)—Development and psychometric evaluation of a self‐report instrument for children's participation in health care

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  • Britt‐Mari Gilljam
  • Susann Arvidsson
  • Jens M. Nygren
  • Petra Svedberg

Abstract

Aims and objectives To develop and evaluate the psychometric properties of a self‐report instrument measuring 6‐ to 12‐year‐old children's own experiences of participation in health care. Background Validated measures to evaluate children's participation in health care can play a critical role in strategic work towards supporting children's participation at an individual level and in working towards quality improvements at an organisational level. There are, however, no available instruments to achieve this. Methods An instrument development design was used, together with the TRIPOD checklist. Item construction was based on research about children's perspectives on participation in health care and Shier's model for participation. The face and content validity was evaluated by 14 healthy children, 9 paediatric nurses and 8 children with different diseases. The construct validity, internal consistency and stability reliability were evaluated based on data from 138 children visiting a paediatric clinic. Results The testing of the face and content validity resulted in an instrument with child‐friendly language, additional instructions and visual attractive presentation. The principle component analysis resulted in the four‐factor solution: “To be included,” “To trust professionals,” “To take control,” and “To understand information.” Internal consistency and intraclass correlation coefficients were acceptable. Conclusion We conclude that the child participation in health care (ChiPaC) instrument has adequate reliability and validity when used to evaluate children's participation in health care. The involvement of children in the development of ChiPaC resulted in a brief, colourful and user‐friendly instrument for use in paediatric health care. Relevance to clinical practice This new questionnaire, ChiPaC, is adapted for children between 6–12 years measuring participation in health care from a child perspective. ChiPaC can be used in the practical work of supporting individual children's participation in health care as well as in the strategical work towards quality improvements on an organisational level.

Suggested Citation

  • Britt‐Mari Gilljam & Susann Arvidsson & Jens M. Nygren & Petra Svedberg, 2020. "Child participation in health care (ChiPaC)—Development and psychometric evaluation of a self‐report instrument for children's participation in health care," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(1-2), pages 107-118, January.
    • Handle: RePEc:wly:jocnur:v:29:y:2020:i:1-2:p:107-118
    DOI: 10.1111/jocn.15063
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    References listed on IDEAS

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    1. Carina Sjöberg & Helene Amhliden & Jens M Nygren & Susann Arvidsson & Petra Svedberg, 2015. "The perspective of children on factors influencing their participation in perioperative care," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(19-20), pages 2945-2953, October.
    2. Inge Schalkers & Cathleen S Parsons & Joske FG Bunders & Christine Dedding, 2016. "Health professionals' perspectives on children's and young people's participation in health care: a qualitative multihospital study," Journal of Clinical Nursing, John Wiley & Sons, vol. 25(7-8), pages 1035-1044, April.
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