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Disutility of Illness for Caregivers and Families: A Systematic Review of the Literature

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  • Eve Wittenberg
  • Lisa Prosser

Abstract

There is a limited literature on the spillover disutility of illness on family members and caregivers, providing some specific estimates of a generally small, negative effect for particular conditions and individuals. Measurement methods vary across studies and a consensus approach has not yet been reached. Evidence suggests that the inclusion of spillover effects in economic evaluations would increase the relative effectiveness of interventions that address conditions with spillover compared to those without, though such differential benefits may be limited to such specific circumstances. Copyright Springer International Publishing Switzerland 2013

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  • Eve Wittenberg & Lisa Prosser, 2013. "Disutility of Illness for Caregivers and Families: A Systematic Review of the Literature," PharmacoEconomics, Springer, vol. 31(6), pages 489-500, June.
    • Handle: RePEc:spr:pharme:v:31:y:2013:i:6:p:489-500
    DOI: 10.1007/s40273-013-0040-y
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    References listed on IDEAS

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    1. Martin Pinquart & Silvia Sörensen, 2007. "Correlates of Physical Health of Informal Caregivers: A Meta-Analysis," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 62(2), pages 126-137.
    2. Basu, Anirban & Meltzer, David, 2005. "Implications of spillover effects within the family for medical cost-effectiveness analysis," Journal of Health Economics, Elsevier, vol. 24(4), pages 751-773, July.
    3. Bobinac, Ana & van Exel, N. Job A. & Rutten, Frans F.H. & Brouwer, Werner B.F., 2010. "Caring for and caring about: Disentangling the caregiver effect and the family effect," Journal of Health Economics, Elsevier, vol. 29(4), pages 549-556, July.
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    2. Alba Pérez-González & Josep Vilajoana-Celaya & Joan Guàrdia-Olmos, 2021. "Alzheimer’s Disease Caregiver Characteristics and Their Relationship with Anticipatory Grief," IJERPH, MDPI, vol. 18(16), pages 1-15, August.
    3. María Inmaculada Fernández-Ávalos & María Nieves Pérez-Marfil & Rosario Ferrer-Cascales & Francisco Cruz-Quintana & Violeta Clement-Carbonell & Manuel Fernández-Alcántara, 2020. "Quality of Life and Concerns in Parent Caregivers of Adult Children Diagnosed with Intellectual Disability: A Qualitative Study," IJERPH, MDPI, vol. 17(22), pages 1-19, November.
    4. Álvaro León-Campos & Silvia García-Mayor & Celia Martí-García & Juan Carlos Morilla-Herrera & José Miguel Morales-Asencio & Inmaculada Lupiáñez-Pérez & Bibiana Pérez-Ardanaz & Magdalena Cuevas Fernand, 2023. "Quality of Life, Physical and Mental Health, and Economic Evaluation of Family Caregivers of Chronic Dependent Children: INFAPRINT Cohort Study Protocol," IJERPH, MDPI, vol. 20(6), pages 1-10, March.
    5. Hareth Al-Janabi & Andrea Manca & Joanna Coast, 2017. "Predicting carer health effects for use in economic evaluation," PLOS ONE, Public Library of Science, vol. 12(9), pages 1-18, September.
    6. Hareth Al‐Janabi & Job Van Exel & Werner Brouwer & Caroline Trotter & Linda Glennie & Laurie Hannigan & Joanna Coast, 2016. "Measuring Health Spillovers for Economic Evaluation: A Case Study in Meningitis," Health Economics, John Wiley & Sons, Ltd., vol. 25(12), pages 1529-1544, December.
    7. Oladele Atoyebi & Janice J. Eng & François Routhier & Marie-Louise Bird & W. Ben Mortenson, 2022. "A systematic review of systematic reviews of needs of family caregivers of older adults with dementia," European Journal of Ageing, Springer, vol. 19(3), pages 381-396, September.
    8. Henry, Edward & Cullinan, John, 2021. "Mental health spillovers from serious family illness: Doubly robust estimation using EQ-5D-5L population normative data," Social Science & Medicine, Elsevier, vol. 279(C).
    9. Hareth Al-Janabi & Nikki McCaffrey & Julie Ratcliffe, 2013. "Carer Preferences in Economic Evaluation and Healthcare Decision Making," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 6(4), pages 235-239, December.
    10. Cristian Bortes & Mattias Strandh & Karina Nilsson, 2020. "Parental Illness and Young People’s Education," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 13(6), pages 2069-2091, December.

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