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How Illness Affects Family Members: A Qualitative Interview Survey

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  • Eve Wittenberg
  • Adrianna Saada
  • Lisa Prosser

Abstract

Spillover of illness onto family members encompasses a wide range of domains of health and well-being, extending beyond those included in many existing health-related quality of life measures. Outcomes measurement efforts should be expanded to adequately capture these health and well-being outcomes for analysis, to ensure that the benefits of interventions are accurately estimated and conclusions are valid. Copyright Springer International Publishing Switzerland 2013

Suggested Citation

  • Eve Wittenberg & Adrianna Saada & Lisa Prosser, 2013. "How Illness Affects Family Members: A Qualitative Interview Survey," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 6(4), pages 257-268, December.
    • Handle: RePEc:spr:patien:v:6:y:2013:i:4:p:257-268
    DOI: 10.1007/s40271-013-0030-3
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    References listed on IDEAS

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    1. Martin Pinquart & Silvia Sörensen, 2007. "Correlates of Physical Health of Informal Caregivers: A Meta-Analysis," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 62(2), pages 126-137.
    2. Basu, Anirban & Meltzer, David, 2005. "Implications of spillover effects within the family for medical cost-effectiveness analysis," Journal of Health Economics, Elsevier, vol. 24(4), pages 751-773, July.
    3. Bobinac, Ana & van Exel, N. Job A. & Rutten, Frans F.H. & Brouwer, Werner B.F., 2010. "Caring for and caring about: Disentangling the caregiver effect and the family effect," Journal of Health Economics, Elsevier, vol. 29(4), pages 549-556, July.
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    Cited by:

    1. Silke Wiegand-Grefe & Hannah Warkentin & Bonnie Adema & Anne Daubmann & Reinhold Kilian & Sibylle M. Winter & Martin Lambert & Karl Wegscheider & Mareike Busmann, 2023. "Families with Mentally Ill Parents and Their Partners: Overlaps in Psychiatric Symptoms and Symptom Coping," IJERPH, MDPI, vol. 20(7), pages 1-13, March.
    2. Gregorius Abanit Asa & Nelsensius Klau Fauk & Paul Russell Ward & Lillian Mwanri, 2020. "The psychosocial and economic impacts on female caregivers and families caring for children with a disability in Belu District, Indonesia," PLOS ONE, Public Library of Science, vol. 15(11), pages 1-16, November.
    3. Al-Janabi, Hareth & Wittenberg, Eve & Donaldson, Cam & Brouwer, Werner, 2022. "The relative value of carer and patient quality of life: A person trade-off (PTO) study," Social Science & Medicine, Elsevier, vol. 292(C).
    4. Renske J. Hoefman & Job Exel & Werner B. F. Brouwer, 2019. "The Monetary Value of Informal Care: Obtaining Pure Time Valuations Using a Discrete Choice Experiment," PharmacoEconomics, Springer, vol. 37(4), pages 531-540, April.
    5. Bibhuti K. Sar, 2023. "Refugee Family Health Brokers’ (FHBs’) Experiences with Health Care Providers: A Thematic Analysis," IJERPH, MDPI, vol. 20(7), pages 1-14, April.
    6. Tara A. Lavelle & Brittany N. D’Cruz & Babak Mohit & Wendy J. Ungar & Lisa A. Prosser & Kate Tsiplova & Montserrat Vera-Llonch & Pei-Jung Lin, 2019. "Family Spillover Effects in Pediatric Cost-Utility Analyses," Applied Health Economics and Health Policy, Springer, vol. 17(2), pages 163-174, April.
    7. Henry, Edward & Cullinan, John, 2021. "Mental health spillovers from serious family illness: Doubly robust estimation using EQ-5D-5L population normative data," Social Science & Medicine, Elsevier, vol. 279(C).

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