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Preference-Based Health-Related Quality-of-Life Outcomes in Children with Autism Spectrum Disorders

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  • J. Tilford
  • Nalin Payakachat
  • Erica Kovacs
  • Jeffrey Pyne
  • Werner Brouwer
  • Todd Nick
  • Jayne Bellando
  • Karen Kuhlthau

Abstract

The HUI3 was more sensitive to clinical measures used to characterize children with autism compared with the QWB-SA score. The findings provide a benchmark to compare scores obtained by alternative methods and instruments. Researchers should consider incorporating the HUI3 in clinical trials and other longitudinal research studies to build the evidence base for describing the cost effectiveness of services provided to this important population. Copyright Springer International Publishing AG 2012

Suggested Citation

  • J. Tilford & Nalin Payakachat & Erica Kovacs & Jeffrey Pyne & Werner Brouwer & Todd Nick & Jayne Bellando & Karen Kuhlthau, 2012. "Preference-Based Health-Related Quality-of-Life Outcomes in Children with Autism Spectrum Disorders," PharmacoEconomics, Springer, vol. 30(8), pages 661-679, August.
    • Handle: RePEc:spr:pharme:v:30:y:2012:i:8:p:661-679
    DOI: 10.2165/11597200-000000000-00000
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    References listed on IDEAS

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    1. Feeny, David & Furlong, William & Saigal, Saroj & Sun, Jian, 2004. "Comparing directly measured standard gamble scores to HUI2 and HUI3 utility scores: group- and individual-level comparisons," Social Science & Medicine, Elsevier, vol. 58(4), pages 799-809, February.
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    3. Stavros Petrou & Emil Kupek, 2009. "Estimating Preference-Based Health Utilities Index Mark 3 Utility Scores for Childhood Conditions in England and Scotland," Medical Decision Making, , vol. 29(3), pages 291-303, May.
    4. Basu, Anirban & Meltzer, David, 2005. "Implications of spillover effects within the family for medical cost-effectiveness analysis," Journal of Health Economics, Elsevier, vol. 24(4), pages 751-773, July.
    5. John Brazier & Jennifer Roberts & Aki Tsuchiya & Jan Busschbach, 2004. "A comparison of the EQ‐5D and SF‐6D across seven patient groups," Health Economics, John Wiley & Sons, Ltd., vol. 13(9), pages 873-884, September.
    6. Hirsch Ruchlin & Ralph Insinga, 2008. "A Review of Health-Utility Data for Osteoarthritis," PharmacoEconomics, Springer, vol. 26(11), pages 925-935, November.
    7. Lisa Prosser & James Hammitt & Ron Keren, 2007. "Measuring Health Preferences for Use in Cost-Utility and Cost-Benefit Analyses of Interventions in Children," PharmacoEconomics, Springer, vol. 25(9), pages 713-726, September.
    8. Louise B. Russell, 2010. "Comment on Petrou and Kupek: Use Unadjusted HUI3 Scores, Not Adjusted Disutilities," Medical Decision Making, , vol. 30(1), pages 143-143, January.
    9. Bobinac, Ana & van Exel, N. Job A. & Rutten, Frans F.H. & Brouwer, Werner B.F., 2010. "Caring for and caring about: Disentangling the caregiver effect and the family effect," Journal of Health Economics, Elsevier, vol. 29(4), pages 549-556, July.
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    1. Kamran Khan & Stavros Petrou & Oliver Rivero-Arias & Stephen Walters & Spencer Boyle, 2014. "Mapping EQ-5D Utility Scores from the PedsQL™ Generic Core Scales," PharmacoEconomics, Springer, vol. 32(7), pages 693-706, July.

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