IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v18y2021i16p8838-d619347.html
   My bibliography  Save this article

Alzheimer’s Disease Caregiver Characteristics and Their Relationship with Anticipatory Grief

Author

Listed:
  • Alba Pérez-González

    (Faculty of Psychology and Education Sciences, Universitat Oberta de Catalunya (UOC), 08018 Barcelona, Spain
    Department of Clinical Psychology and Psychobiology, Faculty of Psychology, University of Barcelona, 08035 Barcelona, Spain)

  • Josep Vilajoana-Celaya

    (Alzheimer Catalunya Fundació, 08006 Barcelona, Spain)

  • Joan Guàrdia-Olmos

    (Department of Social Psychology and Quantitative Psychology, Faculty of Psychology, University of Barcelona, 08035 Barcelona, Spain
    Institute of Neuroscience, University of Barcelona, 08035 Barcelona, Spain
    Institute of Complex Systems, University of Barcelona, 08028 Barcelona, Spain)

Abstract

In Alzheimer’s disease, two fundamental aspects become important for caregivers: ambiguity and ambivalence. Thus, anticipatory grief is considered an active psychological process that is very different from the mere anticipation of death. The present study aims to determine which characteristics of family caregivers of people with dementia, such as age, gender, educational level, relationship with the person with dementia, years with dementia or years as a caregiver, are related to the presence of anticipatory grief. A cross-sectional design was employed. The sample consisted of a total of 129 subjects who cared for a family member with dementia. A sociodemographic data sheet and a battery of tests measure the presence of anticipatory grief, caregiver burden and/or psychopathology. The results obtained allowed us to confirm some of the hypotheses regarding the anticipatory grief construct, the importance of the care time factor, in years and per day, as well as the relevance of the previous demographic and psychopathological profile (being female, spouse function and possible depressive symptomatology). Likewise, from the prediction analyzes performed, it seems that these variables can predict anticipatory grief. These results propose interesting opportunities to formulate care proposals to professionals and family caregivers in relation to care tasks and caregiver skills.

Suggested Citation

  • Alba Pérez-González & Josep Vilajoana-Celaya & Joan Guàrdia-Olmos, 2021. "Alzheimer’s Disease Caregiver Characteristics and Their Relationship with Anticipatory Grief," IJERPH, MDPI, vol. 18(16), pages 1-15, August.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:16:p:8838-:d:619347
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/18/16/8838/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/1660-4601/18/16/8838/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Eve Wittenberg & Lisa Prosser, 2013. "Disutility of Illness for Caregivers and Families: A Systematic Review of the Literature," PharmacoEconomics, Springer, vol. 31(6), pages 489-500, June.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Alon Goldberg, 2022. "Filial Maturity, Resolution of a Parent’s Disease, and Well-Being in Offspring of Parents Diagnosed with Alzheimer’s Disease," IJERPH, MDPI, vol. 20(1), pages 1-10, December.
    2. Sally C. Duplantier & Francesca A. Williamson, 2023. "Barriers and Facilitators of Health and Well-Being in Informal Caregivers of Dementia Patients: A Qualitative Study," IJERPH, MDPI, vol. 20(5), pages 1-17, February.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Cristian Bortes & Mattias Strandh & Karina Nilsson, 2020. "Parental Illness and Young People’s Education," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 13(6), pages 2069-2091, December.
    2. Hareth Al-Janabi & Nikki McCaffrey & Julie Ratcliffe, 2013. "Carer Preferences in Economic Evaluation and Healthcare Decision Making," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 6(4), pages 235-239, December.
    3. Christopher Wai Hung Yau & Erik Lenguerrand & Steve Morris & Tim Draycott & Elena Pizzo, 2021. "A model-based cost-utility analysis of multi-professional simulation training in obstetric emergencies," PLOS ONE, Public Library of Science, vol. 16(3), pages 1-18, March.
    4. María Inmaculada Fernández-Ávalos & María Nieves Pérez-Marfil & Rosario Ferrer-Cascales & Francisco Cruz-Quintana & Violeta Clement-Carbonell & Manuel Fernández-Alcántara, 2020. "Quality of Life and Concerns in Parent Caregivers of Adult Children Diagnosed with Intellectual Disability: A Qualitative Study," IJERPH, MDPI, vol. 17(22), pages 1-19, November.
    5. Hareth Al‐Janabi & Job Van Exel & Werner Brouwer & Caroline Trotter & Linda Glennie & Laurie Hannigan & Joanna Coast, 2016. "Measuring Health Spillovers for Economic Evaluation: A Case Study in Meningitis," Health Economics, John Wiley & Sons, Ltd., vol. 25(12), pages 1529-1544, December.
    6. Henry, Edward & Cullinan, John, 2021. "Mental health spillovers from serious family illness: Doubly robust estimation using EQ-5D-5L population normative data," Social Science & Medicine, Elsevier, vol. 279(C).
    7. Hareth Al-Janabi & Andrea Manca & Joanna Coast, 2017. "Predicting carer health effects for use in economic evaluation," PLOS ONE, Public Library of Science, vol. 12(9), pages 1-18, September.
    8. Oladele Atoyebi & Janice J. Eng & François Routhier & Marie-Louise Bird & W. Ben Mortenson, 2022. "A systematic review of systematic reviews of needs of family caregivers of older adults with dementia," European Journal of Ageing, Springer, vol. 19(3), pages 381-396, September.
    9. Álvaro León-Campos & Silvia García-Mayor & Celia Martí-García & Juan Carlos Morilla-Herrera & José Miguel Morales-Asencio & Inmaculada Lupiáñez-Pérez & Bibiana Pérez-Ardanaz & Magdalena Cuevas Fernand, 2023. "Quality of Life, Physical and Mental Health, and Economic Evaluation of Family Caregivers of Chronic Dependent Children: INFAPRINT Cohort Study Protocol," IJERPH, MDPI, vol. 20(6), pages 1-10, March.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:18:y:2021:i:16:p:8838-:d:619347. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.