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Quality of Life, Physical and Mental Health, and Economic Evaluation of Family Caregivers of Chronic Dependent Children: INFAPRINT Cohort Study Protocol

Author

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  • Álvaro León-Campos

    (Department of Nursing, Faculty of Health Sciences, University of Malaga, 29071 Malaga, Spain
    Institute of Biomedical Research in Malaga (IBIMA), 29590 Malaga, Spain)

  • Silvia García-Mayor

    (Department of Nursing, Faculty of Health Sciences, University of Malaga, 29071 Malaga, Spain
    Institute of Biomedical Research in Malaga (IBIMA), 29590 Malaga, Spain)

  • Celia Martí-García

    (Department of Nursing, Faculty of Health Sciences, University of Malaga, 29071 Malaga, Spain)

  • Juan Carlos Morilla-Herrera

    (Department of Nursing, Faculty of Health Sciences, University of Malaga, 29071 Malaga, Spain
    Institute of Biomedical Research in Malaga (IBIMA), 29590 Malaga, Spain
    Andalusian Health Service, District Malaga-Guadalhorce, 29004 Malaga, Spain)

  • José Miguel Morales-Asencio

    (Department of Nursing, Faculty of Health Sciences, University of Malaga, 29071 Malaga, Spain
    Institute of Biomedical Research in Malaga (IBIMA), 29590 Malaga, Spain)

  • Inmaculada Lupiáñez-Pérez

    (Department of Nursing, Faculty of Health Sciences, University of Malaga, 29071 Malaga, Spain
    Institute of Biomedical Research in Malaga (IBIMA), 29590 Malaga, Spain
    Andalusian Health Service, District Malaga-Guadalhorce, 29004 Malaga, Spain)

  • Bibiana Pérez-Ardanaz

    (Department of Nursing, Faculty of Health Sciences, University of Malaga, 29071 Malaga, Spain
    Institute of Biomedical Research in Malaga (IBIMA), 29590 Malaga, Spain)

  • Magdalena Cuevas Fernandez-Gallego

    (Department of Nursing, Faculty of Health Sciences, University of Malaga, 29071 Malaga, Spain
    Institute of Biomedical Research in Malaga (IBIMA), 29590 Malaga, Spain
    Andalusian Health Service, District Malaga-Guadalhorce, 29004 Malaga, Spain)

Abstract

Background: Caregivers for children with complex chronic illnesses may experience emotional and physical strain, especially as concerns attention overload and the perceptions of their own psychosocial situation. These concerns, together with the additional financial cost and the socioeconomic inequalities that arise from caregiving responsibilities, create major challenges to the health status of this population group. Methods: A prospective analytical longitudinal study will be conducted, based on an exposed cohort of adult caregivers (parents or guardians) for children with complex chronic processes, to evaluate the impact of caregiving responsibilities on the health status of this population group. Conclusions and implications: The practical implications of this study are of great significance for clinical practice. The results of this study have the potential to inform the decision-making process in the healthcare sector and guide future research initiatives. The findings of this study will provide crucial insights into the health-related quality of life of caregivers of children with complex chronic illnesses, which will be valuable in addressing the challenges faced by this population group. This information can be used to improve the availability and accessibility of appropriate health services and to facilitate the development of more equitable health outcomes for caregivers of children with complex chronic illnesses. By highlighting the extent to which this population is affected both physically and mentally, the study can contribute to the development of clinical practices that prioritize the health and well-being of caregivers in the care of children with complex chronic illnesses.

Suggested Citation

  • Álvaro León-Campos & Silvia García-Mayor & Celia Martí-García & Juan Carlos Morilla-Herrera & José Miguel Morales-Asencio & Inmaculada Lupiáñez-Pérez & Bibiana Pérez-Ardanaz & Magdalena Cuevas Fernand, 2023. "Quality of Life, Physical and Mental Health, and Economic Evaluation of Family Caregivers of Chronic Dependent Children: INFAPRINT Cohort Study Protocol," IJERPH, MDPI, vol. 20(6), pages 1-10, March.
    • Handle: RePEc:gam:jijerp:v:20:y:2023:i:6:p:5081-:d:1096383
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    References listed on IDEAS

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    1. Goodman, E., 1999. "The role of socioeconomic status gradients in explaining differences in US adolescents' health," American Journal of Public Health, American Public Health Association, vol. 89(10), pages 1522-1528.
    2. Tara Lavelle & Eve Wittenberg & Kara Lamarand & Lisa Prosser, 2014. "Variation in the Spillover Effects of Illness on Parents, Spouses, and Children of the Chronically Ill," Applied Health Economics and Health Policy, Springer, vol. 12(2), pages 117-124, April.
    3. Eve Wittenberg & Lisa Prosser, 2013. "Disutility of Illness for Caregivers and Families: A Systematic Review of the Literature," PharmacoEconomics, Springer, vol. 31(6), pages 489-500, June.
    4. Eve Wittenberg & Grant A. Ritter & Lisa A. Prosser, 2013. "Evidence of Spillover of Illness among Household Members," Medical Decision Making, , vol. 33(2), pages 235-243, February.
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