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Measurable Indicators of CRPD for People with Intellectual and Developmental Disabilities within the Quality of Life Framework

Author

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  • Laura E. Gómez

    (Department of Psychology, Universidad de Oviedo, 33003 Oviedo, Spain)

  • Asunción Monsalve

    (Department of Psychology, Universidad de Oviedo, 33003 Oviedo, Spain)

  • Mª Lucía Morán

    (Department of Psychology, Universidad de Oviedo, 33003 Oviedo, Spain)

  • Mª Ángeles Alcedo

    (Department of Psychology, Universidad de Oviedo, 33003 Oviedo, Spain)

  • Marco Lombardi

    (E-QUAL, University College Ghent, 9000 Gent, Belgium)

  • Robert L. Schalock

    (Department of Psychology, Hastings College, Hastings, NE 68901, USA)

Abstract

This article proposes the quality of life (QOL) construct as a framework from which to develop useful indicators to operationalize, measure, and implement the Articles of the Convention on the Rights of Persons with Disabilities (CRPD). A systematic review of the scientific literature on people with intellectual and developmental disabilities (IDD) was carried out, with the aim of identifying personal outcomes that can be translated into specific and measurable items for each of the CRPD Articles aligned to the eight QOL domains. Following Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines, the systematic review was conducted across the Web of Science Core Collection, Current Contents Connect (CCC), MEDLINE, KCI-Korean Journal Database, Russian Science Citation Index and SciELO Citation Index, for articles published between 2008 and 2020. A total of 65 articles focusing on people with IDD were selected. The results were grouped into four broad categories: conceptual frameworks used to monitor the CRPD; instruments used to assess the rights set out in the CRPD; recommendations on the use of inclusive research; and indicators or personal outcomes associated with specific rights contained in the CRPD.

Suggested Citation

  • Laura E. Gómez & Asunción Monsalve & Mª Lucía Morán & Mª Ángeles Alcedo & Marco Lombardi & Robert L. Schalock, 2020. "Measurable Indicators of CRPD for People with Intellectual and Developmental Disabilities within the Quality of Life Framework," IJERPH, MDPI, vol. 17(14), pages 1-24, July.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:14:p:5123-:d:385059
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    References listed on IDEAS

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    1. Schalock, Robert L. & Verdugo, Miguel Angel & Gomez, Laura E., 2011. "Evidence-based practices in the field of intellectual and developmental disabilities: An international consensus approach," Evaluation and Program Planning, Elsevier, vol. 34(3), pages 273-282, August.
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    Cited by:

    1. Pearse McCusker & Lauren Gillespie & Gavin Davidson & Sarah Vicary & Kevin Stone, 2023. "The United Nations Convention on the Rights of Persons with Disabilities and Social Work: Evidence for Impact?," IJERPH, MDPI, vol. 20(20), pages 1-18, October.
    2. Laura Esteban & Patricia Navas & Miguel Ángel Verdugo & Víctor B. Arias, 2021. "Community Living, Intellectual Disability and Extensive Support Needs: A Rights-Based Approach to Assessment and Intervention," IJERPH, MDPI, vol. 18(6), pages 1-19, March.
    3. Laufey Elísabet Löve, 2023. "Exclusion to Inclusion: Lived Experience of Intellectual Disabilities in National Reporting on the CRPD," Social Inclusion, Cogitatio Press, vol. 11(2), pages 94-103.

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