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Community Living, Intellectual Disability and Extensive Support Needs: A Rights-Based Approach to Assessment and Intervention

Author

Listed:
  • Laura Esteban

    (Institute on Community Inclusion and Department of Personality, Assessment and Psychological Treatments, University of Salamanca, 37005 Salamanca, Spain)

  • Patricia Navas

    (Institute on Community Inclusion and Department of Personality, Assessment and Psychological Treatments, University of Salamanca, 37005 Salamanca, Spain)

  • Miguel Ángel Verdugo

    (Institute on Community Inclusion and Department of Personality, Assessment and Psychological Treatments, University of Salamanca, 37005 Salamanca, Spain)

  • Víctor B. Arias

    (Institute on Community Inclusion and Department of Personality, Assessment and Psychological Treatments, University of Salamanca, 37005 Salamanca, Spain)

Abstract

People with intellectual disability (ID) and extensive support needs experience poorer quality of life than their peers whose disability is not as severe. Many of them live in residential settings that limit community participation and prevent them from exercising control over their lives. This work analyzes the extent to which professional practices are aimed at promoting the right to community living for people with ID and extensive support needs, as well as the rights that are particularly linked to it, such as the right to habilitation and rehabilitation and the right to privacy. A specific questionnaire was designed and administered to 729 adults with intellectual disability ( M = 37.05; DT = 12.79) living in different settings (family home, residential facilities and group homes). Measurement and structural models were estimated using exploratory structural equation modeling. Results obtained reveal that people with extensive support needs receive less support in terms of guaranteeing their right to independent living and privacy, especially when they live in disability-related services. This study highlights the need to implement and monitor, using valid and reliable indicators, mesosystem strategies that guarantee the right to live and participate in the community, especially for individuals with ID and extensive support needs.

Suggested Citation

  • Laura Esteban & Patricia Navas & Miguel Ángel Verdugo & Víctor B. Arias, 2021. "Community Living, Intellectual Disability and Extensive Support Needs: A Rights-Based Approach to Assessment and Intervention," IJERPH, MDPI, vol. 18(6), pages 1-19, March.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:6:p:3175-:d:520266
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    References listed on IDEAS

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    1. Laura E. Gómez & Asunción Monsalve & Mª Lucía Morán & Mª Ángeles Alcedo & Marco Lombardi & Robert L. Schalock, 2020. "Measurable Indicators of CRPD for People with Intellectual and Developmental Disabilities within the Quality of Life Framework," IJERPH, MDPI, vol. 17(14), pages 1-24, July.
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    Cited by:

    1. Pavlos Kapsalakis & Evdoxia Nteropoulou-Nterou, 2024. "Perspectives of Adults with Intellectual Disabilities on Quality of Life: A Qualitative Study," IJERPH, MDPI, vol. 21(9), pages 1-30, September.

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