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A Systematic Review of the Assessment of Support Needs in People with Intellectual and Developmental Disabilities

Author

Listed:
  • Miguel A. Verdugo

    (Institute on Community Integration, University of Salamanca, 37005 Salamanca, Spain)

  • Virginia Aguayo

    (Institute on Community Integration, University of Salamanca, 37005 Salamanca, Spain)

  • Victor B. Arias

    (Institute on Community Integration, University of Salamanca, 37005 Salamanca, Spain)

  • Laura García-Domínguez

    (Institute on Community Integration, University of Salamanca, 37005 Salamanca, Spain)

Abstract

An evaluation of support needs is fundamental to the provision of services to people with intellectual and developmental disabilities. Services should be organized by considering the support that people need to improve their quality of life and enforce their rights as citizens. This systematic review is conducted to analyze the rigor and usefulness of the available standardized tools for assessing support needs, as well as the uses of their results. Several databases were consulted, including Web of Sciences, Scopus, PubMed, ProQuest Central, PsycInfo, ERIC, and CINAHL, and the 86 documents that met the review criteria were organized into four sections: (a) measurement tools, (b) descriptive/correlational studies, (c) predictive studies, and (d) interventions. The results showed that age, level of intellectual disability, adaptive behavior skills, the number and type of associated disabilities, and medical and behavioral needs affected the support needs of people with disabilities. Quality of life outcomes have been predicted by the individual’s support needs, explaining a significant percentage of their variability. The findings are useful in guiding assessments and planning interventions. Further research should address the effectiveness of specific support strategies and the development of social policies and indicators for inclusion that involve assessing support needs.

Suggested Citation

  • Miguel A. Verdugo & Virginia Aguayo & Victor B. Arias & Laura García-Domínguez, 2020. "A Systematic Review of the Assessment of Support Needs in People with Intellectual and Developmental Disabilities," IJERPH, MDPI, vol. 17(24), pages 1-26, December.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:24:p:9494-:d:464403
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    References listed on IDEAS

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    1. Schalock, Robert L. & Verdugo, Miguel Angel & Gomez, Laura E., 2011. "Evidence-based practices in the field of intellectual and developmental disabilities: An international consensus approach," Evaluation and Program Planning, Elsevier, vol. 34(3), pages 273-282, August.
    2. Alessandro Liberati & Douglas G Altman & Jennifer Tetzlaff & Cynthia Mulrow & Peter C Gøtzsche & John P A Ioannidis & Mike Clarke & P J Devereaux & Jos Kleijnen & David Moher, 2009. "The PRISMA Statement for Reporting Systematic Reviews and Meta-Analyses of Studies That Evaluate Health Care Interventions: Explanation and Elaboration," PLOS Medicine, Public Library of Science, vol. 6(7), pages 1-28, July.
    3. Fabian A. Davis & Jan Burns, 2015. "The Development and Properties of the Support Needs Questionnaire," Social Inclusion, Cogitatio Press, vol. 3(4), pages 63-75.
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    1. Kiah Evans & Andrew J. O. Whitehouse & Emily D’Arcy & Maya Hayden-Evans & Kerry Wallace & Rebecca Kuzminski & Rebecca Thorpe & Sonya Girdler & Benjamin Milbourn & Sven Bölte & Angela Chamberlain, 2022. "Perceived Support Needs of School-Aged Young People on the Autism Spectrum and Their Caregivers," IJERPH, MDPI, vol. 19(23), pages 1-24, November.

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