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Negotiating mothering against the odds: Gastrostomy tube feeding, stigma, governmentality and disabled children

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  • Craig, Gillian M.
  • Scambler, Graham

Abstract

Using the findings of a small-scale qualitative investigation based on in-depth interviews with mothers attending a tertiary paediatric referral centre in London, this paper explores professional and parental discourses in relation to gastrostomy tube feeding and disabled children. Detailed accounts are given of women's struggles to negotiate their identities, and those of their children, within dominant discourses of mothering and child-centredness. Constructions of feeding practices as coercive conflict with normative expectations of 'good mothering' and the 'idealised autonomous' child. Although notions of 'stigmatised identities' featured in women's accounts of feeding children, both orally and by tube, stigma fails to explain why mothers are rendered culpable within expert discourses. Prevailing theories of stigma and coping are interrogated and judged to be more descriptive than explanatory. Felt stigma is posited as an aspect of governmentality.

Suggested Citation

  • Craig, Gillian M. & Scambler, Graham, 2006. "Negotiating mothering against the odds: Gastrostomy tube feeding, stigma, governmentality and disabled children," Social Science & Medicine, Elsevier, vol. 62(5), pages 1115-1125, March.
    • Handle: RePEc:eee:socmed:v:62:y:2006:i:5:p:1115-1125
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    References listed on IDEAS

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    1. Crane, Johanna & Quirk, Kathleen & van der Straten, Ariane, 2002. ""Come back when you're dying:" the commodification of AIDS among California's urban poor," Social Science & Medicine, Elsevier, vol. 55(7), pages 1115-1127, October.
    2. Parker, Richard & Aggleton, Peter, 2003. "HIV and AIDS-related stigma and discrimination: a conceptual framework and implications for action," Social Science & Medicine, Elsevier, vol. 57(1), pages 13-24, July.
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    1. van Amsterdam, Noortje & van Eck, Dide, 2019. "“I have to go the extra mile”. How fat female employees manage their stigmatized identity at work," Scandinavian Journal of Management, Elsevier, vol. 35(1), pages 46-55.
    2. Amy L. Wright & Susan M. Jack & Marilyn Ballantyne & Chelsea Gabel & Rachel Bomberry & Olive Wahoush, 2019. "Indigenous mothers' experiences of using acute care health services for their infants," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(21-22), pages 3935-3948, November.
    3. Timmermans, Stefan & Tietbohl, Caroline, 2018. "Fifty years of sociological leadership at Social Science and Medicine," Social Science & Medicine, Elsevier, vol. 196(C), pages 209-215.

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