IDEAS home Printed from https://ideas.repec.org/a/wly/jintdv/v21y2009i2p271-290.html
   My bibliography  Save this article

Barriers to managing chronic illness among urban households in coastal Kenya

Author

Listed:
  • Thomas Porter

    (Oxford Deanery Public Health, Oxford, UK)

  • Jane Chuma

    (Kenya Medical Research Institute (KEMRI) Wellcome Trust Research Programme, Kilifi, Kenya)

  • Catherine Molyneux

Abstract

The burden of chronic illnesses is rising throughout the world but information on barriers to managing such diseases in developing countries is scarce. Qualitative data from focus group discussions and interview transcripts from a longitudinal study involving 22 households in urban, coastal Kenya were analysed. Themes around barriers to chronic illness care were identified and a conceptual framework developed which described relationships between these themes. The main barrier to chronic illness management was the cost of care. Other barriers identified were patient knowledge and beliefs, stigma, quality and trust in providers and long care pathways. Household resilience was adversely affected by chronic illness, further reducing households' ability to cope with illness. Policy options to address the barriers identified are discussed. Copyright © 2009 John Wiley & Sons, Ltd.

Suggested Citation

  • Thomas Porter & Jane Chuma & Catherine Molyneux, 2009. "Barriers to managing chronic illness among urban households in coastal Kenya," Journal of International Development, John Wiley & Sons, Ltd., vol. 21(2), pages 271-290.
    • Handle: RePEc:wly:jintdv:v:21:y:2009:i:2:p:271-290
    DOI: 10.1002/jid.1552
    as

    Download full text from publisher

    File URL: http://hdl.handle.net/10.1002/jid.1552
    File Function: Link to full text; subscription required
    Download Restriction: no
    File URL: https://libkey.io/10.1002/jid.1552?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Tibandebage, Paula & Mackintosh, Maureen, 2005. "The market shaping of charges, trust and abuse: health care transactions in Tanzania," Social Science & Medicine, Elsevier, vol. 61(7), pages 1385-1395, October.
    2. Parker, Richard & Aggleton, Peter, 2003. "HIV and AIDS-related stigma and discrimination: a conceptual framework and implications for action," Social Science & Medicine, Elsevier, vol. 57(1), pages 13-24, July.
    3. Nyamongo, I. K., 2002. "Health care switching behaviour of malaria patients in a Kenyan rural community," Social Science & Medicine, Elsevier, vol. 54(3), pages 377-386, February.
    4. Berman, Peter A. & Gwatkin, Davidson R. & Burger, Susan E., 1987. "Community-based health workers: Head start or false start towards health for all?," Social Science & Medicine, Elsevier, vol. 25(5), pages 443-459, January.
    5. McIntyre, Diane & Thiede, Michael & Dahlgren, Göran & Whitehead, Margaret, 2006. "What are the economic consequences for households of illness and of paying for health care in low- and middle-income country contexts?," Social Science & Medicine, Elsevier, vol. 62(4), pages 858-865, February.
    6. Oyaya, Charles O. & Rifkin, Susan B., 2003. "Health sector reforms in Kenya: an examination of district level planning," Health Policy, Elsevier, vol. 64(1), pages 113-127, April.
    7. Stekelenburg, Jelle & Kyanamina, Sindele Simasiku & Wolffers, Ivan, 2003. "Poor performance of community health workers in Kalabo District, Zambia," Health Policy, Elsevier, vol. 65(2), pages 109-118, August.
    8. Liefooghe, R. & Michiels, N. & Habib, S. & Moran, M. B. & De Muynck, A., 1995. "Perception and social consequences of tuberculosis: A focus group study of tuberculosis patients in Sialkot, Pakistan," Social Science & Medicine, Elsevier, vol. 41(12), pages 1685-1692, December.
    9. Gilson, Lucy, 2003. "Trust and the development of health care as a social institution," Social Science & Medicine, Elsevier, vol. 56(7), pages 1453-1468, April.
    10. Berman, Peter & Kendall, Carl & Bhattacharyya, Karabi, 1994. "The household production of health: Integrating social science perspectives on micro-level health determinants," Social Science & Medicine, Elsevier, vol. 38(2), pages 205-215, January.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Maryam Bigdeli & Bart Jacobs & Chean Rithy Men & Kristine Nilsen & Wim Van Damme & Bruno Dujardin, 2016. "Access to Treatment for Diabetes and Hypertension in Rural Cambodia: Performance of Existing Social Health Protection Schemes," PLOS ONE, Public Library of Science, vol. 11(1), pages 1-18, January.
    2. Brent, Robert J., 2016. "The value of reducing HIV stigma," Social Science & Medicine, Elsevier, vol. 151(C), pages 233-240.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Coast, Joanna, 2018. "A history that goes hand in hand: Reflections on the development of health economics and the role played by Social Science & Medicine, 1967–2017," Social Science & Medicine, Elsevier, vol. 196(C), pages 227-232.
    2. Patrick Sakdapolrak & Thomas Seyler & Christina Ergler, 2013. "Burden of direct and indirect costs of illness: Empirical findings from slum settlements in Chennai, South India," Progress in Development Studies, , vol. 13(2), pages 135-151, April.
    3. Syed Mustafa Ali & Naveed Anjum & Muhammad Ishaq & Farah Naureen & Arif Noor & Aamna Rashid & Syed Muslim Abbas & Kerri Viney, 2019. "Community Knowledge about Tuberculosis and Perception about Tuberculosis-Associated Stigma in Pakistan," Societies, MDPI, vol. 9(1), pages 1-12, January.
    4. Kamat, Vinay R., 2006. ""I thought it was only ordinary fever!" cultural knowledge and the micropolitics of therapy seeking for childhood febrile illness in Tanzania," Social Science & Medicine, Elsevier, vol. 62(12), pages 2945-2959, June.
    5. Leonard, Kenneth L. & Adelman, Sarah W. & Essam, Timothy, 2009. "Idle chatter or learning? Evidence of social learning about clinicians and the health system from rural Tanzania," Social Science & Medicine, Elsevier, vol. 69(2), pages 183-190, July.
    6. Valerie Møller & Ida Erstad & Dalinyebo Zani, 2010. "Drinking, Smoking, and Morality: Do ‘Drinkers and Smokers’ Constitute a Stigmatised Stereotype or a Real TB Risk Factor in the Time of HIV/AIDS?," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 98(2), pages 217-238, September.
    7. Maureen Mackintosh, 2006. "Commercialisation, inequality and the limits to transition in health care: a Polanyian framework for policy analysis," Journal of International Development, John Wiley & Sons, Ltd., vol. 18(3), pages 393-406.
    8. Megan M McLaughlin & Louis Simonson & Xia Zou & Li Ling & Joseph D Tucker, 2015. "African Migrant Patients’ Trust in Chinese Physicians: A Social Ecological Approach to Understanding Patient-Physician Trust," PLOS ONE, Public Library of Science, vol. 10(5), pages 1-13, May.
    9. Bloom, Gerald & Standing, Hilary & Lloyd, Robert, 2008. "Markets, information asymmetry and health care: Towards new social contracts," Social Science & Medicine, Elsevier, vol. 66(10), pages 2076-2087, May.
    10. Kruk, Margaret E. & Freedman, Lynn P. & Anglin, Grace A. & Waldman, Ronald J., 2010. "Rebuilding health systems to improve health and promote statebuilding in post-conflict countries: A theoretical framework and research agenda," Social Science & Medicine, Elsevier, vol. 70(1), pages 89-97, January.
    11. Mohseni, Mohabbat & Lindstrom, Martin, 2007. "Social capital, trust in the health-care system and self-rated health: The role of access to health care in a population-based study," Social Science & Medicine, Elsevier, vol. 64(7), pages 1373-1383, April.
    12. Hampshire, Kate & Hamill, Heather & Mariwah, Simon & Mwanga, Joseph & Amoako-Sakyi, Daniel, 2017. "The application of Signalling Theory to health-related trust problems: The example of herbal clinics in Ghana and Tanzania," Social Science & Medicine, Elsevier, vol. 188(C), pages 109-118.
    13. Standing, H. & Chowdhury, A. Mushtaque R., 2008. "Producing effective knowledge agents in a pluralistic environment: What future for community health workers?," Social Science & Medicine, Elsevier, vol. 66(10), pages 2096-2107, May.
    14. Druetz, Thomas & Kadio, Kadidiatou & Haddad, Slim & Kouanda, Seni & Ridde, Valéry, 2015. "Do community health workers perceive mechanisms associated with the success of community case management of malaria? A qualitative study from Burkina Faso," Social Science & Medicine, Elsevier, vol. 124(C), pages 232-240.
    15. Hamill, Heather & Hampshire, Kate & Mariwah, Simon & Amoako-Sakyi, Daniel & Kyei, Abigail & Castelli, Michele, 2019. "Managing uncertainty in medicine quality in Ghana: The cognitive and affective basis of trust in a high-risk, low-regulation context," Social Science & Medicine, Elsevier, vol. 234(C), pages 1-1.
    16. Mazanderani, Fadhila & Paparini, Sara, 2015. "The stories we tell: Qualitative research interviews, talking technologies and the ‘normalisation’ of life with HIV," Social Science & Medicine, Elsevier, vol. 131(C), pages 66-73.
    17. Chen Zhang & Xiaoming Li & Yu Liu & Shan Qiao & Liying Zhang & Yuejiao Zhou & Zhenzhu Tang & Zhiyong Shen & Yi Chen, 2016. "Stigma against People Living with HIV/AIDS in China: Does the Route of Infection Matter?," PLOS ONE, Public Library of Science, vol. 11(3), pages 1-15, March.
    18. de Menil, Victoria & Knapp, Martin & McDaid, David & Njenga, Frank Gitau, 2014. "Service use, charge, and access to mental healthcare in a private Kenyan inpatient setting: the effects of insurance," LSE Research Online Documents on Economics 56444, London School of Economics and Political Science, LSE Library.
    19. Leonard, David K. & Bloom, Gerald & Hanson, Kara & O’Farrell, Juan & Spicer, Neil, 2013. "Institutional Solutions to the Asymmetric Information Problem in Health and Development Services for the Poor," World Development, Elsevier, vol. 48(C), pages 71-87.
    20. Winskell, Kate & Sabben, Gaëlle, 2016. "Sexual stigma and symbolic violence experienced, enacted, and counteracted in young Africans’ writing about same-sex attraction," Social Science & Medicine, Elsevier, vol. 161(C), pages 143-150.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:wly:jintdv:v:21:y:2009:i:2:p:271-290. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Wiley Content Delivery (email available below). General contact details of provider: http://www3.interscience.wiley.com/journal/5102/home .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.