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Diagnosis of dementia as a turning point among Finnish families: A qualitative study

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  • Hanna‐Mari Pesonen
  • Anne M. Remes
  • Arja Isola

Abstract

The experiences of receiving a diagnosis of dementia from the viewpoint of people with dementia and their family members were explored in this study. Purposive sampling was used to recruit people with newly‐diagnosed dementia (n = 8) and their family members (n = 8) from a university hospital's memory clinic in northern Finland. Data were collected using low‐structured interviews, and analyzed using the stages of grounded theory. The diagnosis of dementia was a mutual turning point in the family, and it was experienced and responded to in shared processes within the family. In a changing life situation, close ones became a significant resource, and focus on the present day was emphasized. Individuals with dementia and their family members aimed to live meaningful lives by being active agents. Understanding the individual and shared experiences of both those with dementia and their family members can help health professionals design and carry out tailored early psychosocial interventions for families to assist them to create a shared understanding of living with dementia.

Suggested Citation

  • Hanna‐Mari Pesonen & Anne M. Remes & Arja Isola, 2013. "Diagnosis of dementia as a turning point among Finnish families: A qualitative study," Nursing & Health Sciences, John Wiley & Sons, vol. 15(4), pages 489-496, December.
    • Handle: RePEc:wly:nuhsci:v:15:y:2013:i:4:p:489-496
    DOI: 10.1111/nhs.12059
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    References listed on IDEAS

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    1. Beard, Renée L. & Fox, Patrick J., 2008. "Resisting social disenfranchisement: Negotiating collective identities and everyday life with memory loss," Social Science & Medicine, Elsevier, vol. 66(7), pages 1509-1520, April.
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    4. Langdon, Shani A. & Eagle, Andrew & Warner, James, 2007. "Making sense of dementia in the social world: A qualitative study," Social Science & Medicine, Elsevier, vol. 64(4), pages 989-1000, February.
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