Psychosocial Factors That Shape Patient and Carer Experiences of Dementia Diagnosis and Treatment: A Systematic Review of Qualitative Studies
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DOI: 10.1371/journal.pmed.1001331
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- Hutchinson, Sally A. & Leger-Krall, Sue & Wilson, Holly Skodol, 1997. "Early probable Alzheimer's Disease and Awareness Context Theory," Social Science & Medicine, Elsevier, vol. 45(9), pages 1399-1409, November.
- Clare, Linda, 2003. "Managing threats to self: awareness in early stage Alzheimer's disease," Social Science & Medicine, Elsevier, vol. 57(6), pages 1017-1029, September.
- Li‐Min Kuo & Yea‐Ing L Shyu, 2010. "Process of ambivalent normalisation: experience of family caregivers of elders with mild cognitive impairment in Taiwan," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(23‐24), pages 3477-3484, December.
- Marston, Cicely, 2004. "Gendered communication among young people in Mexico: implications for sexual health interventions," Social Science & Medicine, Elsevier, vol. 59(3), pages 445-456, August.
- Campbell, Rona & Pound, Pandora & Pope, Catherine & Britten, Nicky & Pill, Roisin & Morgan, Myfanwy & Donovan, Jenny, 2003. "Evaluating meta-ethnography: a synthesis of qualitative research on lay experiences of diabetes and diabetes care," Social Science & Medicine, Elsevier, vol. 56(4), pages 671-684, February.
- Karen A. Roberto & Rosemary Blieszner & Brandy Renee McCann & Marya C. McPherson, 2011. "Family Triad Perceptions of Mild Cognitive Impairment," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 66(6), pages 756-768.
- Beard, Renée L. & Fox, Patrick J., 2008. "Resisting social disenfranchisement: Negotiating collective identities and everyday life with memory loss," Social Science & Medicine, Elsevier, vol. 66(7), pages 1509-1520, April.
- Langdon, Shani A. & Eagle, Andrew & Warner, James, 2007. "Making sense of dementia in the social world: A qualitative study," Social Science & Medicine, Elsevier, vol. 64(4), pages 989-1000, February.
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