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Interviewing people with dementia in hospital: recommendations for researchers

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  • Robin Digby
  • Susan Lee
  • Allison Williams

Abstract

Aims and objectives This article aims to: Discuss the inclusion of the perspectives of people with dementia in research. Consider the major challenges involved in the process of interviewing people with dementia. Provide recommendations for those involved in interviewing people with dementia in hospital. Background People with dementia are frequent consumers of health care and often have a poor experience in hospital but have been largely excluded from direct participation in research until recently. Limited understanding of the specific communication needs of people with dementia restricts access to the person's viewpoint. Recommendations for interviewers which consider the specific requirements of people with dementia are presented. Design/Method This is a discursive article drawing on the experience of interviewing people with dementia in three separate studies. The conclusions that will be discussed are recommendations for researchers which were formulated following examination of the reflective journals written during the data collection phases of the studies and analysis of the data from the perspective of interviewer performance. Results Six main issues have been identified and discussed with reference to Habermas's theory of communicative action. Conclusions Interviewing people with dementia requires specific skills including an ability to be emotionally sensitive and respectful of the person. This engagement can be challenging and complex for the interviewer. It is vital that genuine engagement and mutual recognition are established before the interview is attempted. A more meaningful research outcome is likely to be the result. Relevance to clinical practice The suggestions outlined here are relevant to a variety of people who are in contact with people with dementia in clinical settings. Developing the skills of researchers in this area needs a commitment by organisations to promote the inclusion of the perceptions of people with dementia in research and in discussions about their own care.

Suggested Citation

  • Robin Digby & Susan Lee & Allison Williams, 2016. "Interviewing people with dementia in hospital: recommendations for researchers," Journal of Clinical Nursing, John Wiley & Sons, vol. 25(7-8), pages 1156-1165, April.
  • Handle: RePEc:wly:jocnur:v:25:y:2016:i:7-8:p:1156-1165
    DOI: 10.1111/jocn.13141
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    References listed on IDEAS

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    1. Jane McKeown & Amanda Clarke & Christine Ingleton & Julie Repper, 2010. "Actively involving people with dementia in qualitative research," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(13‐14), pages 1935-1943, July.
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    Cited by:

    1. Angela Schnelli & Julian Hirt & Adelheid Zeller, 2021. "Persons with dementia as internet users: what are their needs? A qualitative study," Journal of Clinical Nursing, John Wiley & Sons, vol. 30(5-6), pages 849-860, March.

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