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The relative contributions of disease label and disease prognosis to Alzheimer's stigma: A vignette-based experiment

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  • Johnson, Rebecca
  • Harkins, Kristin
  • Cary, Mark
  • Sankar, Pamela
  • Karlawish, Jason

Abstract

The classification of Alzheimer's disease is undergoing a significant transformation. Researchers have created the category of “preclinical Alzheimer's,” characterized by biomarker pathology rather than observable symptoms. Diagnosis and treatment at this stage could allow preventing Alzheimer's cognitive decline. While many commentators have worried that persons given a preclinical Alzheimer's label will be subject to stigma, little research exists to inform whether the stigma attached to the label of clinical Alzheimer's will extend to a preclinical disorder that has the label of “Alzheimer's” but lacks the symptoms or expected prognosis of the clinical form.

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  • Johnson, Rebecca & Harkins, Kristin & Cary, Mark & Sankar, Pamela & Karlawish, Jason, 2015. "The relative contributions of disease label and disease prognosis to Alzheimer's stigma: A vignette-based experiment," Social Science & Medicine, Elsevier, vol. 143(C), pages 117-127.
    • Handle: RePEc:eee:socmed:v:143:y:2015:i:c:p:117-127
    DOI: 10.1016/j.socscimed.2015.08.031
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    Cited by:

    1. Stites, Shana D. & Gill, Jeanine & Largent, Emily A. & Harkins, Kristin & Sankar, Pamela & Krieger, Abba & Karlawish, Jason, 2022. "The relative contributions of biomarkers, disease modifying treatment, and dementia severity to Alzheimer's stigma: A vignette-based experiment," Social Science & Medicine, Elsevier, vol. 292(C).
    2. Hye Won Kwon, 2021. "Are Gritty People Happier than Others?: Evidence from the United States and South Korea," Journal of Happiness Studies, Springer, vol. 22(7), pages 2937-2959, October.

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