IDEAS home Printed from https://ideas.repec.org/a/wly/jocnur/v29y2020i13-14p2589-2601.html
   My bibliography  Save this article

Burden of living with multiple concurrent symptoms in patients with end‐stage renal disease

Author

Listed:
  • Marques Shek Nam Ng
  • Cho Lee Wong
  • Eva Hau Sim Ho
  • Yun Ho Hui
  • Christine Miaskowski
  • Winnie Kwok Wei So

Abstract

Aims and objectives To explore the experience of multiple concurrent symptoms over time and their impact on daily living in patients with end‐stage renal disease undergoing dialysis. Background Patients undergoing dialysis experienced multiple concurrent symptoms because of the disease and treatment. Evidence suggests that these symptoms cluster around and have a significant impact on quality of life. However, the experience of this impact remained not clear. Design A longitudinal descriptive qualitative study. Methods Ten patients were purposely selected from the cohort of a longitudinal quantitative study in Hong Kong. A total of 28 face‐to‐face semi‐structured interviews were conducted between July 2017 and July 2018. Interviews were audiotaped, transcribed and analysed using a thematic analysis approach. Findings were reported following the COREQ checklist. Results Four themes emerged from the data. The first theme “complex symptom experience” described a dynamic pattern of symptoms among patients. Although patients were unaware of the relationships among symptoms, a cluster of tiredness, breathlessness, dizziness and sleep disturbance was identified in the narratives of individual symptoms. The report of symptom experience and its change revealed a unique pattern of symptom perception. The three other themes illustrated the impact of multiple concurrent symptoms on daily living, namely “decreased physical functioning,” “changes in social functioning” and “diet and fluid restrictions.” Conclusions Patients perceived dynamic and complex symptom experiences. This perception appears to be modulated by a number of factors. In addition, these experiences had negative and positive effects on patients' daily living. Relevance to clinical practice Patients perceived unique impact of symptoms on daily living. Therefore, a nurse‐led person‐centred approach of care is warranted. In addition to routine symptom assessment, nurses need to capture the specific impact of symptoms on day‐to‐day life. Based on this assessment, symptom management interventions (e.g. health education, referral) can be tailor‐made and prioritised.

Suggested Citation

  • Marques Shek Nam Ng & Cho Lee Wong & Eva Hau Sim Ho & Yun Ho Hui & Christine Miaskowski & Winnie Kwok Wei So, 2020. "Burden of living with multiple concurrent symptoms in patients with end‐stage renal disease," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(13-14), pages 2589-2601, July.
    • Handle: RePEc:wly:jocnur:v:29:y:2020:i:13-14:p:2589-2601
    DOI: 10.1111/jocn.15282
    as

    Download full text from publisher

    File URL: https://doi.org/10.1111/jocn.15282
    Download Restriction: no
    File URL: https://libkey.io/10.1111/jocn.15282?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Chong-Cheng Chen & Yi Chen & Xia Liu & Yue Wen & Deng-Yan Ma & Yue-Yang Huang & Li Pu & Yong-Shu Diao & Kun Yang, 2016. "The Efficacy of a Nurse-Led Disease Management Program in Improving the Quality of Life for Patients with Chronic Kidney Disease: A Meta-Analysis," PLOS ONE, Public Library of Science, vol. 11(5), pages 1-16, May.
    2. Paul T E Cusack, 2020. "On Pain," Biomedical Journal of Scientific & Technical Research, Biomedical Research Network+, LLC, vol. 31(3), pages 24253-24254, October.
    3. Yang, Lawrence Hsin & Kleinman, Arthur & Link, Bruce G. & Phelan, Jo C. & Lee, Sing & Good, Byron, 2007. "Culture and stigma: Adding moral experience to stigma theory," Social Science & Medicine, Elsevier, vol. 64(7), pages 1524-1535, April.
    4. Xiaoyi Cao & Lang Tian & Chen Lin, 2017. "Symptom clusters in patients receiving haemodialysis: a systematic review of observational studies," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(17-18), pages 2545-2557, September.
    5. Julie Yun Chen & Eric Yuk Fai Wan & Edmond Pui Hang Choi & Anca Ka Chun Chan & Karina Hiu Yen Chan & Joyce Pui Yan Tsang & Cindy Lo Kuen Lam, 2017. "The Health-Related Quality of Life of Chinese Patients on Hemodialysis and Peritoneal Dialysis," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 10(6), pages 799-808, December.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Laura Llop-Medina & Yu Fu & Jorge Garcés-Ferrer & Ascensión Doñate-Martínez, 2022. "Palliative Care in Older People with Multimorbidities: A Scoping Review on the Palliative Care Needs of Patients, Carers, and Health Professionals," IJERPH, MDPI, vol. 19(6), pages 1-14, March.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Daniel Niederer & Juliane Mueller, 2020. "Sustainability effects of motor control stabilisation exercises on pain and function in chronic nonspecific low back pain patients: A systematic review with meta-analysis and meta-regression," PLOS ONE, Public Library of Science, vol. 15(1), pages 1-21, January.
    2. Sana Sadiq & Khadija Anasse & Najib Slimani, 2022. "The impact of mobile phones on high school students: connecting the research dots," Technium Social Sciences Journal, Technium Science, vol. 30(1), pages 252-270, April.
    3. Jitka Vseteckova, 2020. "Psychological Therapy for ICT Literate Older Adults in the Time of COVID-19 - Perceptions on the Acceptability of Online Versus Face to Face Versions of a Mindfulness for Later Life Group," Biomedical Journal of Scientific & Technical Research, Biomedical Research Network+, LLC, vol. 31(1), pages 23912-23916, October.
    4. Khalid Ahmed Al-Ansari & Ahmet Faruk Aysan, 2021. "More than ten years of Blockchain creation: How did we use the technology and which direction is the research heading? [Plus de dix ans de création Blockchain : Comment avons-nous utilisé la techno," Working Papers hal-03343048, HAL.
    5. Ling, Gabriel Hoh Teck & Suhud, Nur Amiera binti Md & Leng, Pau Chung & Yeo, Lee Bak & Cheng, Chin Tiong & Ahmad, Mohd Hamdan Haji & Matusin, AK Mohd Rafiq AK, 2021. "Factors Influencing Asia-Pacific Countries’ Success Level in Curbing COVID-19: A Review Using a Social–Ecological System (SES) Framework," SocArXiv b9f2w, Center for Open Science.
    6. Benedict E. DeDominicis, 2021. "Multinational Enterprises And Economic Nationalism: A Strategic Analysis Of Culture," Global Journal of Business Research, The Institute for Business and Finance Research, vol. 15(1), pages 19-66.
    7. Robert J. R. Elliott & Ingmar Schumacher & Cees Withagen, 2020. "Suggestions for a Covid-19 Post-Pandemic Research Agenda in Environmental Economics," Environmental & Resource Economics, Springer;European Association of Environmental and Resource Economists, vol. 76(4), pages 1187-1213, August.
    8. Song, Jieun & Mailick, Marsha R. & Greenberg, Jan S., 2018. "Health of parents of individuals with developmental disorders or mental health problems: Impacts of stigma," Social Science & Medicine, Elsevier, vol. 217(C), pages 152-158.
    9. Rafał Krupiński, 2020. "Virtual Reality System and Scientific Visualisation for Smart Designing and Evaluating of Lighting," Energies, MDPI, vol. 13(20), pages 1-17, October.
    10. Jong Won Min, 2019. "The Influence of Stigma and Views on Mental Health Treatment Effectiveness on Service Use by Age and Ethnicity: Evidence From the CDC BRFSS 2007, 2009, and 2012," SAGE Open, , vol. 9(3), pages 21582440198, September.
    11. Werner Hölzl & Michael Böheim & Klaus Friesenbichler & Agnes Kügler & Thomas Leoni, 2021. "Staatliche Hilfsmaßnahmen für Unternehmen in der COVID-19-Krise. Eine begleitende Analyse operativer Aspekte und Unternehmenseinschätzungen," WIFO Studies, WIFO, number 66624, January.
    12. Thorbecke, Willem & Chen, Chen & Salike, Nimesh, 2021. "China’s exports in a protectionist world," Journal of Asian Economics, Elsevier, vol. 77(C).
    13. Óscar Chiva-Bartoll & Honorato Morente-Oria & Francisco Tomás González-Fernández & Pedro Jesús Ruiz-Montero, 2020. "Anxiety and Bodily Pain in Older Women Participants in a Physical Education Program. A Multiple Moderated Mediation Analysis," Sustainability, MDPI, vol. 12(10), pages 1-12, May.
    14. Gigi Foster, 2020. "The behavioural economics of government responses to COVID-19," Journal of Behavioral Economics for Policy, Society for the Advancement of Behavioral Economics (SABE), vol. 4(S3), pages 11-43, December.
    15. Reza Salajegheh & Edward C Nemergut & Terran M Rice & Roy Joseph & Siny Tsang & Bethany M Sarosiek & C Paige Muthusubramanian & Katelyn M Hipwell & Kate B Horton & Bhiken I Naik, 2020. "Impact of a perioperative oral opioid substitution protocol during the nationwide intravenous opioid shortage: A single center, interrupted time series with segmented regression analysis," PLOS ONE, Public Library of Science, vol. 15(6), pages 1-13, June.
    16. Jaroslav Flegr & Radim Kuba & Robin Kopecký, 2020. "Rhesus-minus phenotype as a predictor of sexual desire and behavior, wellbeing, mental health, and fecundity," PLOS ONE, Public Library of Science, vol. 15(7), pages 1-11, July.
    17. Tonata Dengeingei & Laura Uusiku & Olivia N Tuhadeleni & Alice Lifalaza, 2020. "Assessing Knowledge and Practice Regarding the Management of Dysmenorrhea Among Students at University of Namibia Rundu Campus," Global Journal of Health Science, Canadian Center of Science and Education, vol. 12(9), pages 105-105, August.
    18. Kai Wei & Daniel Jacobson López & Shiyou Wu, 2019. "The Role of Language in Anti-Immigrant Prejudice: What Can We Learn from Immigrants’ Historical Experiences?," Social Sciences, MDPI, vol. 8(3), pages 1-18, March.
    19. Craig C Kage & Mohsen Akbari-Shandiz & Mary H Foltz & Rebekah L Lawrence & Taycia L Brandon & Nathaniel E Helwig & Arin M Ellingson, 2020. "Validation of an automated shape-matching algorithm for biplane radiographic spine osteokinematics and radiostereometric analysis error quantification," PLOS ONE, Public Library of Science, vol. 15(2), pages 1-15, February.
    20. Piotr Raźniak & György Csomós & Sławomir Dorocki & Anna Winiarczyk-Raźniak, 2021. "Exploring the Shifting Geographical Pattern of the Global Command-and-Control Function of Cities," Sustainability, MDPI, vol. 13(22), pages 1-15, November.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:wly:jocnur:v:29:y:2020:i:13-14:p:2589-2601. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Wiley Content Delivery (email available below). General contact details of provider: https://doi.org/10.1111/(ISSN)1365-2702 .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.