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Stress, coping and support needs of patients with ulcerative colitis or Crohn's disease: a qualitative descriptive study

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  • Kjerstin Larsson
  • Lars Lööf
  • Karin Nordin

Abstract

Aims and objectives To examine disease‐related stress, coping strategies and the need for information and support in patients with inflammatory bowel disease (ulcerative colitis or Crohn's disease). Background Psychological stress is an important factor in ulcerative colitis and Crohn's disease, and therefore, coping strategies and support needs should be considered in routine clinical practice. Design This is a qualitative study using a descriptive interview‐based approach. Method Fifteen patients with ulcerative colitis (n = 7) or Crohn's disease (n = 8) were interviewed. The interviews were analysed with content analysis. Results The informants largely focused on disease‐related stress (e.g. access to a toilet, symptoms and worries) and relations to other people (various reactions from others and social situations). Behavioural strategies (i.e. taking actions and the need for making plans, prepare and adapt), social strategies (seeking help and information and sharing feelings about the disease with others) and emotional strategies (distraction, positive attitude and acceptance) were adopted to cope with the stress associated with the disease. The need for information and support concerned instrumental support (disease‐related information) and emotional support (to talk about disease management). Conclusion Faecal urgency and the fear of losing bowel control are important stressors for patients with inflammatory bowel disease. The patients handle this problem using various coping strategies depending on the type of stressful events. Both instrumental and emotional support were requested which primarily occurred at the time of diagnosis and disease flare‐ups. Relevance to clinical practice Patients with ulcerative colitis or Crohn's disease ask for information and psychosocial support that are tailored to their individual needs and at different stages in the disease trajectory to improve everyday life and strengthen self‐management strategies.

Suggested Citation

  • Kjerstin Larsson & Lars Lööf & Karin Nordin, 2017. "Stress, coping and support needs of patients with ulcerative colitis or Crohn's disease: a qualitative descriptive study," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(5-6), pages 648-657, March.
    • Handle: RePEc:wly:jocnur:v:26:y:2017:i:5-6:p:648-657
    DOI: 10.1111/jocn.13581
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    References listed on IDEAS

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    1. Jacqueline Sammut & Josianne Scerri & Rita Borg Xuereb, 2015. "The lived experience of adults with ulcerative colitis," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(17-18), pages 2659-2667, September.
    2. Folkman, Susan, 1997. "Positive psychological states and coping with severe stress," Social Science & Medicine, Elsevier, vol. 45(8), pages 1207-1221, October.
    3. Dorothy N Sykes & Paula C Fletcher & Margaret A Schneider, 2015. "Balancing my disease: women's perspectives of living with inflammatory bowel disease," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(15-16), pages 2133-2142, August.
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    1. Kimina Lyall & George Youssef & Antonina Mikocka-Walus & Subhadra Evans & Robert A. Cummins, 2023. "Exploring Evidence for Mindfulness and Subjective Wellbeing Homeostatic Resilience Buffering Depression and Stress Symptoms Associated with Inflammatory Bowel Disease," Journal of Happiness Studies, Springer, vol. 24(5), pages 1663-1682, June.
    2. Clodagh Byron & Nicola Cornally & Aileen Burton & Eileen Savage, 2020. "Challenges of living with and managing inflammatory bowel disease: A meta‐synthesis of patients’ experiences," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(3-4), pages 305-319, February.

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