IDEAS home Printed from https://ideas.repec.org/a/wly/jocnur/v26y2017i5-6p648-657.html
   My bibliography  Save this article

Stress, coping and support needs of patients with ulcerative colitis or Crohn's disease: a qualitative descriptive study

Author

Listed:
  • Kjerstin Larsson
  • Lars Lööf
  • Karin Nordin

Abstract

Aims and objectives To examine disease‐related stress, coping strategies and the need for information and support in patients with inflammatory bowel disease (ulcerative colitis or Crohn's disease). Background Psychological stress is an important factor in ulcerative colitis and Crohn's disease, and therefore, coping strategies and support needs should be considered in routine clinical practice. Design This is a qualitative study using a descriptive interview‐based approach. Method Fifteen patients with ulcerative colitis (n = 7) or Crohn's disease (n = 8) were interviewed. The interviews were analysed with content analysis. Results The informants largely focused on disease‐related stress (e.g. access to a toilet, symptoms and worries) and relations to other people (various reactions from others and social situations). Behavioural strategies (i.e. taking actions and the need for making plans, prepare and adapt), social strategies (seeking help and information and sharing feelings about the disease with others) and emotional strategies (distraction, positive attitude and acceptance) were adopted to cope with the stress associated with the disease. The need for information and support concerned instrumental support (disease‐related information) and emotional support (to talk about disease management). Conclusion Faecal urgency and the fear of losing bowel control are important stressors for patients with inflammatory bowel disease. The patients handle this problem using various coping strategies depending on the type of stressful events. Both instrumental and emotional support were requested which primarily occurred at the time of diagnosis and disease flare‐ups. Relevance to clinical practice Patients with ulcerative colitis or Crohn's disease ask for information and psychosocial support that are tailored to their individual needs and at different stages in the disease trajectory to improve everyday life and strengthen self‐management strategies.

Suggested Citation

  • Kjerstin Larsson & Lars Lööf & Karin Nordin, 2017. "Stress, coping and support needs of patients with ulcerative colitis or Crohn's disease: a qualitative descriptive study," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(5-6), pages 648-657, March.
    • Handle: RePEc:wly:jocnur:v:26:y:2017:i:5-6:p:648-657
    DOI: 10.1111/jocn.13581
    as

    Download full text from publisher

    File URL: https://doi.org/10.1111/jocn.13581
    Download Restriction: no
    File URL: https://libkey.io/10.1111/jocn.13581?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Dorothy N Sykes & Paula C Fletcher & Margaret A Schneider, 2015. "Balancing my disease: women's perspectives of living with inflammatory bowel disease," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(15-16), pages 2133-2142, August.
    2. Jacqueline Sammut & Josianne Scerri & Rita Borg Xuereb, 2015. "The lived experience of adults with ulcerative colitis," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(17-18), pages 2659-2667, September.
    3. Folkman, Susan, 1997. "Positive psychological states and coping with severe stress," Social Science & Medicine, Elsevier, vol. 45(8), pages 1207-1221, October.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Kimina Lyall & George Youssef & Antonina Mikocka-Walus & Subhadra Evans & Robert A. Cummins, 2023. "Exploring Evidence for Mindfulness and Subjective Wellbeing Homeostatic Resilience Buffering Depression and Stress Symptoms Associated with Inflammatory Bowel Disease," Journal of Happiness Studies, Springer, vol. 24(5), pages 1663-1682, June.
    2. Clodagh Byron & Nicola Cornally & Aileen Burton & Eileen Savage, 2020. "Challenges of living with and managing inflammatory bowel disease: A meta‐synthesis of patients’ experiences," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(3-4), pages 305-319, February.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Clodagh Byron & Nicola Cornally & Aileen Burton & Eileen Savage, 2020. "Challenges of living with and managing inflammatory bowel disease: A meta‐synthesis of patients’ experiences," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(3-4), pages 305-319, February.
    2. Mäntymäki, Matti & Najmul Islam, A.K.M. & Turel, Ofir & Dhir, Amandeep, 2022. "Coping with pandemics using social network sites: A psychological detachment perspective to COVID-19 stressors," Technological Forecasting and Social Change, Elsevier, vol. 179(C).
    3. Marcin Rzeszutek & Ewa Gruszczyńska, 2022. "Trajectories of Posttraumatic Growth Following HIV Infection: Does One PTG Pattern Exist?," Journal of Happiness Studies, Springer, vol. 23(4), pages 1653-1668, April.
    4. Shadi Dehghanzadeh & Nahid Dehghan Nayeri & Shokoh Varaei & Jalal Kheirkhah, 2017. "Living with cardiac resynchronization therapy: Challenges for people with heart failure," Nursing & Health Sciences, John Wiley & Sons, vol. 19(1), pages 112-118, March.
    5. Fekadu Aga & Merja Nikkonen & Jari Kylmä, 2014. "Caregiving actions: Outgrowths of the family caregiver's conceptions of care," Nursing & Health Sciences, John Wiley & Sons, vol. 16(2), pages 149-156, June.
    6. Khayal, Inas S. & Barnato, Amber E., 2022. "What is in the palliative care ‘syringe’? A systems perspective," Social Science & Medicine, Elsevier, vol. 305(C).
    7. Kate, Natasha & Grover, Sandeep & Kulhara, Parmanand & Nehra, Ritu, 2013. "Caregiving appraisal in schizophrenia: A study from India," Social Science & Medicine, Elsevier, vol. 98(C), pages 135-140.
    8. Agbaria, Qutaiba & Ronen, Tammie & Hamama, Liat, 2012. "The link between developmental components (age and gender), need to belong and resources of self-control and feelings of happiness, and frequency of symptoms among Arab adolescents in Israel," Children and Youth Services Review, Elsevier, vol. 34(10), pages 2018-2027.
    9. Dorota Ortenburger & Dariusz Mosler & Jarosław Cholewa & Jacek Wąsik, 2023. "Relationship of Sense of Coherence to Healthy Behavior in Taekwon-Do Athletes," Sustainability, MDPI, vol. 15(3), pages 1-10, January.
    10. Jinya Wang & Tsingan Li & Kenneth Wang & Cuiying Wang, 2019. "Patience as a Mediator Between the Dark Triad and Meaning in Life," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 14(2), pages 527-543, April.
    11. Nasir Javed Awan, 2024. "Unveiling Charismatic Leadership: Catalysts of Positive Work Attitude, Job Involvement, and Work Engagement," Bulletin of Business and Economics (BBE), Research Foundation for Humanity (RFH), vol. 13(2), pages 532-545.
    12. Tammie Ronen & Liat Hamama & Michael Rosenbaum & Ayla Mishely-Yarlap, 2016. "Subjective Well-Being in Adolescence: The Role of Self-Control, Social Support, Age, Gender, and Familial Crisis," Journal of Happiness Studies, Springer, vol. 17(1), pages 81-104, February.
    13. Fife, Betsy L., 2005. "The role of constructed meaning in adaptation to the onset of life-threatening illness," Social Science & Medicine, Elsevier, vol. 61(10), pages 2132-2143, November.
    14. Jenny J W Liu & Natalie Ein & Julia Gervasio & Kristin Vickers, 2019. "The efficacy of stress reappraisal interventions on stress responsivity: A meta-analysis and systematic review of existing evidence," PLOS ONE, Public Library of Science, vol. 14(2), pages 1-22, February.
    15. Chia‐Chien Li & Shiow‐Ru Chang & Shiow‐Ching Shun, 2019. "The self‐care coping process in patients with chronic heart failure: A qualitative study," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(3-4), pages 509-519, February.
    16. Eleonora Gullone, 2000. "The Biophilia Hypothesis and Life in the 21st Century: Increasing Mental Health or Increasing Pathology?," Journal of Happiness Studies, Springer, vol. 1(3), pages 293-322, September.
    17. Faiza Iqbal & Madya Yahya Don & Muhammad Dzahir Bin Kasa, 2019. "The Impact of Self-Acceptance of stuttering on In-Role Performance by Self-Efficiency: Moderating role of Transformational Leadership," Pakistan Journal of Humanities and Social Sciences, International Research Alliance for Sustainable Development (iRASD), vol. 7(3), pages :325-341, September.
    18. Antonio Chirumbolo & Antonino Callea & Flavio Urbini, 2022. "Living in Liquid Times: The Relationships among Job Insecurity, Life Uncertainty, and Psychosocial Well-Being," IJERPH, MDPI, vol. 19(22), pages 1-20, November.
    19. Ian Whiteley & Janice Gullick, 2018. "The embodied experience of pregnancy with an ileostomy," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(21-22), pages 3931-3944, November.
    20. Xiaolin Hu & Mary A. Dolansky & Xiuying Hu & Fengying Zhang & Moying Qu, 2016. "Factors associated with the caregiver burden among family caregivers of patients with heart failure in southwest China," Nursing & Health Sciences, John Wiley & Sons, vol. 18(1), pages 105-112, March.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:wly:jocnur:v:26:y:2017:i:5-6:p:648-657. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Wiley Content Delivery (email available below). General contact details of provider: https://doi.org/10.1111/(ISSN)1365-2702 .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.