IDEAS home Printed from https://ideas.repec.org/a/wly/jocnur/v24y2015i17-18p2659-2667.html
   My bibliography  Save this article

The lived experience of adults with ulcerative colitis

Author

Listed:
  • Jacqueline Sammut
  • Josianne Scerri
  • Rita Borg Xuereb

Abstract

Aims and objectives The purpose of this study was to explore the experiences of adults living with ulcerative colitis. Background Research to date has focused on the impact of inflammatory bowel disease, by analysing the responses of persons with ulcerative colitis and Crohn's disease collectively. This article addresses the dearth in literature by exploring the experiences of adults living with ulcerative colitis. Design An exploratory qualitative phenomenological design was used. Method Semi‐structured interviews were conducted with a purposive sample of 10 adults with ulcerative colitis. Verbatim transcripts were analysed using Interpretative Phenomenological Analysis. Results Three super‐ordinate themes emerged from the analysis: ‘living with physical discomfort’, ‘emotional turmoil in living the experience’ and ‘social interactions’. Conclusion The participants described a fundamental change in their lifestyle, as a result of physical discomfort and emotional turmoil. Misconceptions held regarding the causes of their disease, further compounded their negative emotional experience. Relevance to clinical practice It is of importance that health care professionals understand and explore the unique perspectives of individuals with ulcerative colitis. These perspectives relate to both physical and psychosocial issues. The needs and concerns of persons with ulcerative colitis can then guide the formulation and development of an individualised care plan.

Suggested Citation

  • Jacqueline Sammut & Josianne Scerri & Rita Borg Xuereb, 2015. "The lived experience of adults with ulcerative colitis," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(17-18), pages 2659-2667, September.
    • Handle: RePEc:wly:jocnur:v:24:y:2015:i:17-18:p:2659-2667
    DOI: 10.1111/jocn.12892
    as

    Download full text from publisher

    File URL: https://doi.org/10.1111/jocn.12892
    Download Restriction: no
    File URL: https://libkey.io/10.1111/jocn.12892?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Yunxian Zhou & Weihong Ren & Elizabeth Jan Irvine & Dagan Yang, 2010. "Assessing health‐related quality of life in patients with inflammatory bowel disease in Zhejiang, China," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(1‐2), pages 79-88, January.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Kate Muse & Emma Johnson & Annabel L. David, 2021. "A Feeling of Otherness: A Qualitative Research Synthesis Exploring the Lived Experiences of Stigma in Individuals with Inflammatory Bowel Disease," IJERPH, MDPI, vol. 18(15), pages 1-28, July.
    2. Ian Whiteley & Janice Gullick, 2018. "The embodied experience of pregnancy with an ileostomy," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(21-22), pages 3931-3944, November.
    3. Clodagh Byron & Nicola Cornally & Aileen Burton & Eileen Savage, 2020. "Challenges of living with and managing inflammatory bowel disease: A meta‐synthesis of patients’ experiences," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(3-4), pages 305-319, February.
    4. Kjerstin Larsson & Lars Lööf & Karin Nordin, 2017. "Stress, coping and support needs of patients with ulcerative colitis or Crohn's disease: a qualitative descriptive study," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(5-6), pages 648-657, March.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.

      More about this item

      Statistics

      Access and download statistics

      Corrections

      All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:wly:jocnur:v:24:y:2015:i:17-18:p:2659-2667. See general information about how to correct material in RePEc.

      If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

      If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

      If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

      For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Wiley Content Delivery (email available below). General contact details of provider: https://doi.org/10.1111/(ISSN)1365-2702 .

      Please note that corrections may take a couple of weeks to filter through the various RePEc services.

      IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.