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Health-Related Stigma, Social Support, Self-Efficacy, and Self-Care Actions Among Adults With Sickle Cell Disease in Oman

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  • Huda Al Raqaishi
  • Mohammad Al Qadire
  • Omar Alzaabi
  • Omar Al Omari

Abstract

Stigma contributes to the burden of individuals and families affected by Sickle cell disease (SCD) and causes delay in appropriate care seeking. The aim of this study is to examine the levels and associations between stigma, social support, self-efficacy, and self-care actions among adult patients with SCD in Oman using a cross-sectional, correlational design. Of the 264 participants, 56.1% ( n  = 148) were males, with mean age of 30.1 years ( SD 7.7). Half of the participants were married, and 88.3% had no other associated diseases. The results demonstrate that patients in Oman suffer from health-related stigma. However, social support, self-efficacy, and self-care actions were reported to be high and correlated with several clinical and demographic variables. Based on the results, effective, low-cost interventions such as psycho-educational groups, individual counseling, or group therapies might be developed. They can promote belief in enhanced efficacy and improved SCD adaptation, thereby increasing patient, and provider satisfaction.

Suggested Citation

  • Huda Al Raqaishi & Mohammad Al Qadire & Omar Alzaabi & Omar Al Omari, 2022. "Health-Related Stigma, Social Support, Self-Efficacy, and Self-Care Actions Among Adults With Sickle Cell Disease in Oman," Clinical Nursing Research, , vol. 31(5), pages 803-811, June.
    • Handle: RePEc:sae:clnure:v:31:y:2022:i:5:p:803-811
    DOI: 10.1177/10547738211046731
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    References listed on IDEAS

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    1. Coretta M. Jenerette & Cheryl Brewer & Ashley N. Leak, 2011. "Self-Care Recommendations of Middle-Aged and Older Adults with Sickle Cell Disease," Nursing Research and Practice, Hindawi, vol. 2011, pages 1-5, August.
    2. Ola, Bolanle A. & Yates, Scott J. & Dyson, Simon M., 2016. "Living with sickle cell disease and depression in Lagos, Nigeria: A mixed methods study," Social Science & Medicine, Elsevier, vol. 161(C), pages 27-36.
    3. Harrell, J.P. & Hall, S. & Taliaferro, J., 2003. "Physiological responses to racism and discrimination: An assessment of the evidence," American Journal of Public Health, American Public Health Association, vol. 93(2), pages 243-248.
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