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Privacy, Personhood, and Property in the Age of Genomics

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  • Wendy Bonython

    (School of Law, Faculty of Business Government and Law, University of Canberra, Canberra 2601, Australia)

  • Bruce Baer Arnold

    (School of Law, Faculty of Business Government and Law, University of Canberra, Canberra 2601, Australia)

Abstract

Revolutions in genetic technology have heralded the age of population-scale genomic metadata. This article analyzes the tensions and gaps between traditional conceptions of personhood and international legal responses to a person’s right over disembodied data obtained from his/her body. The opportunities for breakthroughs in healthcare by interrogating population-scale genomic databases are accompanied by questions about privacy, property, dignity, and the nature of information regulation in a global economy. This article highlights instances where law and policy makers have grappled with these challenges, and foreshadows some emerging future challenges. It also highlights differences between jurisdictions, and calls for greater global participation in the development of a coherent framework, rather than continued reliance on a small number of stakeholders, to develop that framework.

Suggested Citation

  • Wendy Bonython & Bruce Baer Arnold, 2015. "Privacy, Personhood, and Property in the Age of Genomics," Laws, MDPI, vol. 4(3), pages 1-36, July.
    • Handle: RePEc:gam:jlawss:v:4:y:2015:i:3:p:377-412:d:53460
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    References listed on IDEAS

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    Keywords

    genomic; privacy; bioethics; law;
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