IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v18y2021i7p3688-d528576.html
   My bibliography  Save this article

Examining Dementia Family Caregivers’ Forgone Care for General Practitioners and Medical Specialists during a COVID-19 Lockdown

Author

Listed:
  • Perla Werner

    (Department of Community Mental Health, University of Haifa, Mt. Carmel, Haifa 3498838, Israel)

  • Aviad Tur-Sinai

    (Department of Health Systems Management, The Max Stern Yezreel Valley College, Yezreel Valley 1930600, Israel
    School of Nursing, University of Rochester Medical Center, Rochester, NY 14627-0446, USA)

  • Hanan AboJabel

    (Department of Community Mental Health, University of Haifa, Mt. Carmel, Haifa 3498838, Israel)

Abstract

The present study aimed to assess dementia caregivers’ reports of the prevalence and correlates of forgone care regarding visits to a general practitioner (GP) and to a specialist during the COVID-19 lockdown in Israel, using Andersen’s Behavioral Model of Healthcare Utilization. A cross-sectional study using an online survey was conducted with 73 Israeli family caregivers of persons with dementia residing in the community (81% Jews, 86% female, mean age = 54). Overall, one out of two participants reported having to delay seeking needed help from a GP or a specialist for themselves, as well as for their relatives with dementia, during the COVID-19 lockdown period. Among the predisposing factor, education was associated with caregivers’ reports regarding forgone care for themselves as well as for their loved ones. Living with the care-receiver and income level were the enabling factors associated with forgone care for caregivers. Finally, feelings of burden were associated with caregivers’ forgone care and feelings of loneliness and perceptions of the care-receiver’s cognitive functioning were associated with care-receivers’ forgone care. Our findings show that it is essential that this population receive appropriate practical and emotional support at times of distress and crisis to enable them to continue with their caregiving role.

Suggested Citation

  • Perla Werner & Aviad Tur-Sinai & Hanan AboJabel, 2021. "Examining Dementia Family Caregivers’ Forgone Care for General Practitioners and Medical Specialists during a COVID-19 Lockdown," IJERPH, MDPI, vol. 18(7), pages 1-11, April.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:7:p:3688-:d:528576
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/18/7/3688/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/1660-4601/18/7/3688/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Rafael del-Pino-Casado & Marta Rodríguez Cardosa & Catalina López-Martínez & Vasiliki Orgeta, 2019. "The association between subjective caregiver burden and depressive symptoms in carers of older relatives: A systematic review and meta-analysis," PLOS ONE, Public Library of Science, vol. 14(5), pages 1-16, May.
    2. Röttger, Julia & Blümel, Miriam & Köppen, Julia & Busse, Reinhard, 2016. "Forgone care among chronically ill patients in Germany—Results from a cross-sectional survey with 15,565 individuals," Health Policy, Elsevier, vol. 120(2), pages 170-178.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Diego Montano & Richard Peter, 2022. "Informal care-giving and the intention to give up employment: the role of perceived supervisor behaviour in a cohort of German employees," European Journal of Ageing, Springer, vol. 19(3), pages 575-585, September.
    2. Ronald Kamoga & Vincent Mubangizi & Judith Owokuhaisa & Moses Muwanguzi & Sylivia Natakunda & Godfrey Zari Rukundo, 2023. "Behavioral and Psychological Symptoms of Dementia: Prevalence, Symptom Severity, and Caregiver Distress in South-Western Uganda—A Quantitative Cross-Sectional Study," IJERPH, MDPI, vol. 20(3), pages 1-12, January.
    3. Marie Agapitos & Graciela Muniz-Terrera & Annie Robitaille, 2024. "Older caregivers’ depressive symptomatology over time: evidence from the Survey of Health, Ageing and Retirement in Europe," European Journal of Ageing, Springer, vol. 21(1), pages 1-14, December.
    4. Lawrence B. Sacco & Stefanie König & Hugo Westerlund & Loretta G. Platts, 2022. "Informal Caregiving and Quality of Life Among Older Adults: Prospective Analyses from the Swedish Longitudinal Occupational Survey of Health (SLOSH)," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 160(2), pages 845-866, April.
    5. Veronika Kočiš Krůtilová & Lewe Bahnsen, 2021. "Cost-Induced Unmet Need for Health Care among Europe's Older Adults - The Role of Specific Diseases," European Journal of Business Science and Technology, Mendel University in Brno, Faculty of Business and Economics, vol. 7(2), pages 210-222.
    6. Carnazza, Giovanni & Liberati, Paolo & Resce, Giuliano, 2023. "Income-related unmet needs in the European countries," Socio-Economic Planning Sciences, Elsevier, vol. 87(PA).
    7. Takashi Oshio & Kemmyo Sugiyama, 2022. "Social Participation as a Moderator for Caregivers’ Psychological Distress: a Dynamic Panel Data Model Analysis in Japan," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 17(3), pages 1813-1829, June.
    8. Yunhan Wang & Nan Jiang & Haiya Shao & Zhonghua Wang, 2024. "Exploring unmet healthcare needs and associated inequalities among middle-aged and older adults in Eastern China during the progression toward universal health coverage," Health Economics Review, Springer, vol. 14(1), pages 1-12, December.
    9. Jinpitcha Mamom & Hanvedes Daovisan, 2022. "Listening to Caregivers’ Voices: The Informal Family Caregiver Burden of Caring for Chronically Ill Bedridden Elderly Patients," IJERPH, MDPI, vol. 19(1), pages 1-15, January.
    10. David Feligreras-Alcalá & Antonio Frías-Osuna & Rafael del-Pino-Casado, 2020. "Personal and Family Resources Related to Depressive and Anxiety Symptoms in Women during Puerperium," IJERPH, MDPI, vol. 17(14), pages 1-14, July.
    11. Ramos, Luís Moura & Quintal, Carlota & Lourenço, Óscar & Antunes, Micaela, 2019. "Unmet needs across Europe: Disclosing knowledge beyond the ordinary measure," Health Policy, Elsevier, vol. 123(12), pages 1155-1162.
    12. Röttger, Julia & Blümel, Miriam & Linder, Roland & Busse, Reinhard, 2017. "Health system responsiveness and chronic disease care – What is the role of disease management programs? An analysis based on cross-sectional survey and administrative claims data," Social Science & Medicine, Elsevier, vol. 185(C), pages 54-62.
    13. Aliya Zhylkybekova & Gulbakit K. Koshmaganbetova & Afshin Zare & Nadiar M. Mussin & Asset A. Kaliyev & Shabnam Bakhshalizadeh & Nurgul Ablakimova & Andrej M. Grjibovski & Natalya Glushkova & Amin Tama, 2024. "Global Research on Care-Related Burden and Quality of Life of Informal Caregivers for Older Adults: A Bibliometric Analysis," Sustainability, MDPI, vol. 16(3), pages 1-18, January.
    14. Natasa Popovic & Zorica Terzic-Supic & Snezana Simic & Biljana Mladenovic, 2017. "Predictors of unmet health care needs in Serbia; Analysis based on EU-SILC data," PLOS ONE, Public Library of Science, vol. 12(11), pages 1-20, November.
    15. Cristina Gagliardi & Flavia Piccinini & Giovanni Lamura & Georgia Casanova & Paolo Fabbietti & Marco Socci, 2022. "The Burden of Caring for Dependent Older People and the Resultant Risk of Depression in Family Primary Caregivers in Italy," Sustainability, MDPI, vol. 14(6), pages 1-18, March.
    16. Joanne R. Campione & Katarzyna A. Zebrak, 2022. "The Chosen Child: Characteristics of Family Caregivers Selected at an Early Age to Provide Care to Their Parents," Journal of Elder Policy, John Wiley & Sons, vol. 2(1), pages 29-49, March.
    17. Carlota Quintal & Luis Moura Ramos & Micaela Antunes & Óscar Lourenço, 2023. "Unmet healthcare needs among the population aged 50+ and their association with health outcomes during the COVID-19 pandemic," European Journal of Ageing, Springer, vol. 20(1), pages 1-14, December.
    18. Rafael del-Pino-Casado & Emilia Priego-Cubero & Catalina López-Martínez & Vasiliki Orgeta, 2021. "Subjective caregiver burden and anxiety in informal caregivers: A systematic review and meta-analysis," PLOS ONE, Public Library of Science, vol. 16(3), pages 1-20, March.
    19. Tatjana Rajovic & Natasa Todorovic & Milutin Vracevic & Nina Rajovic & Andrija Pavlovic & Vedrana Pavlovic & Igor Grbic & Rosa Sapic & Slavica Krsmanovic & Marijana Vukmirovic & Tamara Stanisavljevic , 2021. "From Burden to Depressive Symptoms in Informal Caregivers during the COVID-19 Pandemic: A Path Analysis," IJERPH, MDPI, vol. 18(18), pages 1-13, September.
    20. Sara Santini & Marco Socci & Paolo Fabbietti & Giovanni Lamura & Andrea Teti, 2022. "Factors Worsening and Mitigating the Consequences of the COVID-19 Outbreak on the Overall Health of Informal Caregivers of Older People with Long-Term Care Needs Living in Germany and in Italy," IJERPH, MDPI, vol. 19(3), pages 1-21, February.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:18:y:2021:i:7:p:3688-:d:528576. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.