IDEAS home Printed from https://ideas.repec.org/a/gam/jsusta/v14y2022i6p3375-d770396.html
   My bibliography  Save this article

The Burden of Caring for Dependent Older People and the Resultant Risk of Depression in Family Primary Caregivers in Italy

Author

Listed:
  • Cristina Gagliardi

    (Centre for Socio-Economic Research on Ageing, IRCCS INRCA-National Institute of Health and Science on Ageing, 60124 Ancona, Italy)

  • Flavia Piccinini

    (Centre for Socio-Economic Research on Ageing, IRCCS INRCA-National Institute of Health and Science on Ageing, 60124 Ancona, Italy)

  • Giovanni Lamura

    (Centre for Socio-Economic Research on Ageing, IRCCS INRCA-National Institute of Health and Science on Ageing, 60124 Ancona, Italy)

  • Georgia Casanova

    (Centre for Socio-Economic Research on Ageing, IRCCS INRCA-National Institute of Health and Science on Ageing, 60124 Ancona, Italy
    Instituto de Investigación en Políticas de Bienestar Social (POLIBIENESTAR)-Research Institute on Social Welfare Policy, Universidat de València, 46022 Valencia, Spain)

  • Paolo Fabbietti

    (Unit of Geriatric Pharmacoepidemiology and Biostatistics, IRCCS INRCA-National Institute of Health and Science on Ageing, 60124 Ancona, Italy)

  • Marco Socci

    (Centre for Socio-Economic Research on Ageing, IRCCS INRCA-National Institute of Health and Science on Ageing, 60124 Ancona, Italy)

Abstract

Long-Term Care (LTC) for older people in need of care is a critical issue affecting the quality of life of family caregivers (as well as older people), encompassing both negative and positive caregiving experiences. Providing support to family caregivers is essential because they play a crucial role in sharing the societal burden of LTC for the growing frail older population. By presenting the results of a survey carried out in 2019–2020 in Central Italy, this study aims to describe the characteristics and estimate by a multivariate logistic model the correlates of depressive symptoms in 369 primary caregivers of dependent older people. Caregivers are mostly women who provide a high amount of care in terms of weekly hours as a result of insufficient assistance from public or private care services. More than half of the sample show depressive symptoms, indicating a fairly serious situation. Perceived burden is a strong predictor of depression. The findings offer suggestions and policy implications. The fragmentation of the care context should be addressed by allocating sufficient funding to expand the supply of public in-kind services and integrate cash-for-care schemes, thus alleviating the burden and mitigating the negative consequences of care on physical and mental health.

Suggested Citation

  • Cristina Gagliardi & Flavia Piccinini & Giovanni Lamura & Georgia Casanova & Paolo Fabbietti & Marco Socci, 2022. "The Burden of Caring for Dependent Older People and the Resultant Risk of Depression in Family Primary Caregivers in Italy," Sustainability, MDPI, vol. 14(6), pages 1-18, March.
  • Handle: RePEc:gam:jsusta:v:14:y:2022:i:6:p:3375-:d:770396
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/2071-1050/14/6/3375/pdf
    Download Restriction: no

    File URL: https://www.mdpi.com/2071-1050/14/6/3375/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Yafeng Wang & Chuanchuan Zhang, 2018. "Gender Inequalities in Labor Market Outcomes of Informal Caregivers near Retirement Age in Urban China," Feminist Economics, Taylor & Francis Journals, vol. 24(2), pages 147-170, April.
    2. Elio Borgonovi & Paola Adinolfi & Rocco Palumbo & Gabriella Piscopo, 2018. "Framing the Shades of Sustainability in Health Care: Pitfalls and Perspectives from Western EU Countries," Sustainability, MDPI, vol. 10(12), pages 1-20, November.
    3. Rafael del-Pino-Casado & Marta Rodríguez Cardosa & Catalina López-Martínez & Vasiliki Orgeta, 2019. "The association between subjective caregiver burden and depressive symptoms in carers of older relatives: A systematic review and meta-analysis," PLOS ONE, Public Library of Science, vol. 14(5), pages 1-16, May.
    4. Uccheddu, Damiano & Gauthier, Anne H. & Steverink, Nardi & Emery, Tom, 2019. "The pains and reliefs of the transitions into and out of spousal caregiving. A cross-national comparison of the health consequences of caregiving by gender," Social Science & Medicine, Elsevier, vol. 240(C).
    5. Karen Hooker & Sally R. Bowman & Deborah Padgett Coehlo & Shana Rae Lim & Jeffrey Kaye & Robin Guariglia & Fuzhong Li, 2002. "Behavioral Change in Persons With Dementia," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 57(5), pages 453-460.
    6. Martin Pinquart & Silvia Sörensen, 2003. "Associations of Stressors and Uplifts of Caregiving With Caregiver Burden and Depressive Mood: A Meta-Analysis," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 58(2), pages 112-128.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Anna Giulia Guazzarini & Georgia Casanova & Friederike Buchholz & Mahi Kozori & Sara Lavolpe & Bjørn Lichtwarck & Eleni Margioti & Aline Mendes & Marie-Louise Montandon & Ilenia Murasecco & Janne Myhr, 2022. "The Special Care Unit for People with Behavioral and Psychological Symptoms of Dementia (SCU- B) in the Context of the Project “RECage-Respectful Caring for Agitated Elderly”: A Qualitative Study," IJERPH, MDPI, vol. 19(24), pages 1-17, December.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Bremer, Patrick & Cabrera, Esther & Leino-Kilpi, Helena & Lethin, Connie & Saks, Kai & Sutcliffe, Caroline & Soto, Maria & Zwakhalen, Sandra M.G. & Wübker, Ansgar, 2015. "Informal dementia care: Consequences for caregivers’ health and health care use in 8 European countries," Health Policy, Elsevier, vol. 119(11), pages 1459-1471.
    2. Miller, Lyndsey M. & Utz, Rebecca L. & Supiano, Katherine & Lund, Dale & Caserta, Michael S., 2020. "Health profiles of spouse caregivers: The role of active coping and the risk for developing prolonged grief symptoms," Social Science & Medicine, Elsevier, vol. 266(C).
    3. Gonçalves, Judite & von Hafe, Francisco & Filipe, Luís, 2021. "Formal home care use and spousal health outcomes," Social Science & Medicine, Elsevier, vol. 287(C).
    4. Rafael del-Pino-Casado & Emilia Priego-Cubero & Catalina López-Martínez & Vasiliki Orgeta, 2021. "Subjective caregiver burden and anxiety in informal caregivers: A systematic review and meta-analysis," PLOS ONE, Public Library of Science, vol. 16(3), pages 1-20, March.
    5. Tatjana Rajovic & Natasa Todorovic & Milutin Vracevic & Nina Rajovic & Andrija Pavlovic & Vedrana Pavlovic & Igor Grbic & Rosa Sapic & Slavica Krsmanovic & Marijana Vukmirovic & Tamara Stanisavljevic , 2021. "From Burden to Depressive Symptoms in Informal Caregivers during the COVID-19 Pandemic: A Path Analysis," IJERPH, MDPI, vol. 18(18), pages 1-13, September.
    6. Sara Santini & Marco Socci & Paolo Fabbietti & Giovanni Lamura & Andrea Teti, 2022. "Factors Worsening and Mitigating the Consequences of the COVID-19 Outbreak on the Overall Health of Informal Caregivers of Older People with Long-Term Care Needs Living in Germany and in Italy," IJERPH, MDPI, vol. 19(3), pages 1-21, February.
    7. Lucian-Ionel Cioca & Mihaela Laura Bratu, 2020. "Sustainability of Youth Careers in Romania—Study on the Correlation of Students’ Personal Interests with the Selected University Field of Study," Sustainability, MDPI, vol. 13(1), pages 1-15, December.
    8. Pavel Bachmann & Jan Hruska, 2022. "Alzheimer Caregiving Problems According to ADLs: Evidence from Facebook Support Groups," IJERPH, MDPI, vol. 19(11), pages 1-15, May.
    9. Juan Francisco Velarde-García & Carmen Ortego-Maté & Carmen Sarabia-Cobo & Aroa Delgado Uria & Rosario Fernández-Peña, 2024. "Impact of the Pandemic on Dementia Care and Caregivers: A Qualitative Study," Clinical Nursing Research, , vol. 33(4), pages 240-252, May.
    10. M Khurram Malik & KS Jacob, 2015. "Psychological morbidity among co-residents of older people in rural South India: Prevalence and risk factors," International Journal of Social Psychiatry, , vol. 61(2), pages 183-187, March.
    11. Zhu, Ge, 2024. "Liberated from care: Long-term care insurance policy and Employment for women," MPRA Paper 120472, University Library of Munich, Germany.
    12. Cheng-Chang Liu & Chang-Franw Lee & Tung Chang & Jing-Jing Liao, 2020. "Exploring the Relationship between the Caregiver’s Stress Load and Dementia Patient Behavior: A Case Study of Dementia Specialist Outpatient Data from the Southern Medical Center of Taiwan," IJERPH, MDPI, vol. 17(14), pages 1-18, July.
    13. Yukie Nakajima & Steven M. Schmidt & Agneta Malmgren Fänge & Mari Ono & Toshiharu Ikaga, 2019. "Relationship between Perceived Indoor Temperature and Self-Reported Risk for Frailty among Community-Dwelling Older People," IJERPH, MDPI, vol. 16(4), pages 1-12, February.
    14. Marie Blaise & Laetitia Dillenseger, 2023. "Informal Caregivers and Life Satisfaction: Empirical Evidence from the Netherlands," Journal of Happiness Studies, Springer, vol. 24(6), pages 1883-1930, August.
    15. Yin LiuPhD & Jooyoung KongPhD & Lauren R BangerterPhD & Steven H ZaritPhD & David M AlmeidaPhD, 2018. "Early Parental Abuse and Daily Assistance to Aging Parents With Disability: Associations With the Middle-Aged Adults’ Daily Well-being," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 73(5), pages 59-68.
    16. Chimdindu Ohayagha & Paul B. Perrin & Annahir N. Cariello & Juan Carlos Arango-Lasprilla, 2021. "Is Helping Really Helping? Health-Related Quality of Life after TBI Predicting Caregiver Depression Symptom Trajectories in Latin America," IJERPH, MDPI, vol. 18(3), pages 1-12, January.
    17. Perla Werner & Aviad Tur-Sinai & Hanan AboJabel, 2021. "Examining Dementia Family Caregivers’ Forgone Care for General Practitioners and Medical Specialists during a COVID-19 Lockdown," IJERPH, MDPI, vol. 18(7), pages 1-11, April.
    18. María Gómez-Gallego & Juan Cándido Gómez-Gallego, 2021. "Predictors of Caregiver Burden of Patients with Alzheimer Disease Attending Day-Care Centres," IJERPH, MDPI, vol. 18(20), pages 1-9, October.
    19. Bom, Judith & Stöckel, Jannis, 2021. "Is the grass greener on the other side? The health impact of providing informal care in the UK and the Netherlands," Social Science & Medicine, Elsevier, vol. 269(C).
    20. Yueh-Feng Yvonne Lu & May Wykle, 2007. "Relationships Between Caregiver Stress and Self-Care Behaviors in Response to Symptoms," Clinical Nursing Research, , vol. 16(1), pages 29-43, February.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jsusta:v:14:y:2022:i:6:p:3375-:d:770396. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.