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Informal Caregiving and Quality of Life Among Older Adults: Prospective Analyses from the Swedish Longitudinal Occupational Survey of Health (SLOSH)

Author

Listed:
  • Lawrence B. Sacco

    (Stockholm University)

  • Stefanie König

    (University of Gothenburg)

  • Hugo Westerlund

    (Stockholm University)

  • Loretta G. Platts

    (Stockholm University)

Abstract

Providing unpaid informal care to someone who is ill or disabled is a common experience in later life. While a supportive and potentially rewarding role, informal care can become a time and emotionally demanding activity, which may hinder older adults’ quality of life. In a context of rising demand for informal carers, we investigated how caregiving states and transitions are linked to overall levels and changes in quality of life, and how the relationship varies according to care intensity and burden. We used fixed effects and change analyses to examine six-wave panel data (2008–2018) from the Swedish Longitudinal Occupational Survey of Health (SLOSH, n = 5076; ages 50–74). The CASP-19 scale is used to assess both positive and negative aspects of older adults’ quality of life. Caregiving was related with lower levels of quality of life in a graded manner, with those providing more weekly hours and reporting greater burden experiencing larger declines. Two-year transitions corresponding to starting, ceasing and continuing care provision were associated with lower levels of quality of life, compared to continuously not caregiving. Starting and ceasing caregiving were associated with negative and positive changes in quality of life score, respectively, suggesting that cessation of care leads to improvements despite persistent lower overall levels of quality of life. Measures to reduce care burden or time spent providing informal care are likely to improve the quality of life of older people.

Suggested Citation

  • Lawrence B. Sacco & Stefanie König & Hugo Westerlund & Loretta G. Platts, 2022. "Informal Caregiving and Quality of Life Among Older Adults: Prospective Analyses from the Swedish Longitudinal Occupational Survey of Health (SLOSH)," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 160(2), pages 845-866, April.
    • Handle: RePEc:spr:soinre:v:160:y:2022:i:2:d:10.1007_s11205-020-02473-x
    DOI: 10.1007/s11205-020-02473-x
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    References listed on IDEAS

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    1. Thomas Hansen & Britt Slagsvold & Reidun Ingebretsen, 2013. "The Strains and Gains of Caregiving: An Examination of the Effects of Providing Personal Care to a Parent on a Range of Indicators of Psychological Well-Being," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 114(2), pages 323-343, November.
    2. Christina Matz-Costa & Jacquelyn James & Larry Ludlow & Melissa Brown & Elyssa Besen & Clair Johnson, 2014. "The Meaning and Measurement of Productive Engagement in Later Life," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 118(3), pages 1293-1314, September.
    3. Rebecca Ang & Jiaqing O, 2012. "Association Between Caregiving, Meaning in Life, and Life Satisfaction Beyond 50 in an Asian Sample: Age as a Moderator," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 108(3), pages 525-534, September.
    4. R. Wiggins & G. Netuveli & M. Hyde & P. Higgs & D. Blane, 2008. "The Evaluation of a Self-enumerated Scale of Quality of Life (CASP-19) in the Context of Research on Ageing: A Combination of Exploratory and Confirmatory Approaches," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 89(1), pages 61-77, October.
    5. Chen, Lu & Fan, Hongli & Chu, Lanlan, 2019. "The hidden cost of informal care: An empirical study on female caregivers' subjective well-being," Social Science & Medicine, Elsevier, vol. 224(C), pages 85-93.
    6. Rafael del-Pino-Casado & Marta Rodríguez Cardosa & Catalina López-Martínez & Vasiliki Orgeta, 2019. "The association between subjective caregiver burden and depressive symptoms in carers of older relatives: A systematic review and meta-analysis," PLOS ONE, Public Library of Science, vol. 14(5), pages 1-16, May.
    7. Ellen Verbakel & Silke F Metzelthin & Gertrudis I J M Kempen, 2018. "Caregiving to Older Adults: Determinants of Informal Caregivers’ Subjective Well-being and Formal and Informal Support as Alleviating Conditions," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 73(6), pages 1099-1111.
    8. Hirst, Michael, 2005. "Carer distress: A prospective, population-based study," Social Science & Medicine, Elsevier, vol. 61(3), pages 697-708, August.
    9. Dolan, Paul & Peasgood, Tessa & White, Mathew, 2008. "Do we really know what makes us happy A review of the economic literature on the factors associated with subjective well-being," Journal of Economic Psychology, Elsevier, vol. 29(1), pages 94-122, February.
    10. Jamila Bookwala, 2009. "The Impact of Parent Care on Marital Quality and Well-Being in Adult Daughters and Sons," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 64(3), pages 339-347.
    11. Howe, Anna L. & Schofield, Hilary & Herrman, Helen, 1997. "Caregiving: A common or uncommon experience?," Social Science & Medicine, Elsevier, vol. 45(7), pages 1017-1029, October.
    12. van den Berg, Bernard & Fiebig, Denzil G. & Hall, Jane, 2014. "Well-being losses due to care-giving," Journal of Health Economics, Elsevier, vol. 35(C), pages 123-131.
    13. Bond, Malcolm J. & Clark, Michael S. & Davies, Suzanne, 2003. "The quality of life of spouse dementia caregivers: changes associated with yielding to formal care and widowhood," Social Science & Medicine, Elsevier, vol. 57(12), pages 2385-2395, December.
    14. Martin Pinquart & Silvia Sörensen, 2006. "Gender Differences in Caregiver Stressors, Social Resources, and Health: An Updated Meta-Analysis," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 61(1), pages 33-45.
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