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Living with Long Term Conditions from the Perspective of Family Caregivers. A Scoping Review and Narrative Synthesis

Author

Listed:
  • Patricia Marín-Maicas

    (Faculty of Health, Valencian International University, 46002 Valencia, Spain)

  • Silvia Corchón

    (Faculty of Nursing and Chiropody, University of Valencia, 46010 Valencia, Spain)

  • Leire Ambrosio

    (NIHR ARC Wessex, School of Health Sciences, University of Southampton, Southampton SO17 1BJ, UK)

  • Mari Carmen Portillo

    (NIHR ARC Wessex, School of Health Sciences, University of Southampton, Southampton SO17 1BJ, UK)

Abstract

(1) Background: When living with one or more long term conditions (LTCs), both the patient and the family experience the impact of the condition at different levels. The family’s needs and perceptions should be considered in the process of caring for people with LTCs. The aim of this review is to understand “the process of living with LTCs” from a family perspective. (2) Methods: A scoping review and narrative synthesis were conducted using a systematic methodology in MEDLINE, CINAHL, Web of Science and PsycINFO, in English and Spanish, including evidence from 2018. (3) Results: A total of 28 articles were included in the review. Acceptance, coping, self-management, integration, and adjustment were key attributes in the process of living with LTCs from the perspective of family caregivers that interrelated in a dynamic way through different mechanisms: being aware of the changing situation, personal networks, information and education, personal conditions, attitude to life and communication. (4) Conclusions: The five attributes that comprise living with LTCs from the perspective of the family caregiver are closely connected of to those of patients living with LTCs; however, self-management and integration have a different meaning and application.

Suggested Citation

  • Patricia Marín-Maicas & Silvia Corchón & Leire Ambrosio & Mari Carmen Portillo, 2021. "Living with Long Term Conditions from the Perspective of Family Caregivers. A Scoping Review and Narrative Synthesis," IJERPH, MDPI, vol. 18(14), pages 1-22, July.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:14:p:7294-:d:590476
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    References listed on IDEAS

    as
    1. Benjamin Saunders & Julius Sim & Tom Kingstone & Shula Baker & Jackie Waterfield & Bernadette Bartlam & Heather Burroughs & Clare Jinks, 2018. "Saturation in qualitative research: exploring its conceptualization and operationalization," Quality & Quantity: International Journal of Methodology, Springer, vol. 52(4), pages 1893-1907, July.
    2. Liselott Årestedt & Carina Persson & Margareta Rämgård & Eva Benzein, 2018. "Experiences of encounters with healthcare professionals through the lenses of families living with chronic illness," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(3-4), pages 836-847, February.
    3. Lisa Whitehead & Elisabeth Jacob & Amanda Towell & Ma'en Abu‐qamar & Amanda Cole‐Heath, 2018. "The role of the family in supporting the self‐management of chronic conditions: A qualitative systematic review," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(1-2), pages 22-30, January.
    4. Uccheddu, Damiano & Gauthier, Anne H. & Steverink, Nardi & Emery, Tom, 2019. "The pains and reliefs of the transitions into and out of spousal caregiving. A cross-national comparison of the health consequences of caregiving by gender," Social Science & Medicine, Elsevier, vol. 240(C).
    5. Leire Ambrosio & M Victoria Navarta-Sánchez & Ana Carvajal & Cristina Garcia-Vivar, 2021. "Living with Chronic Illness from the Family Perspective:An Integrative Review," Clinical Nursing Research, , vol. 30(5), pages 579-590, June.
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