IDEAS home Printed from https://ideas.repec.org/a/wly/jocnur/v27y2018i3-4p836-847.html
   My bibliography  Save this article

Experiences of encounters with healthcare professionals through the lenses of families living with chronic illness

Author

Listed:
  • Liselott Årestedt
  • Carina Persson
  • Margareta Rämgård
  • Eva Benzein

Abstract

Aims and objectives To describe and explore the experience of healthcare encounters in families living with chronic illness. Background Living with chronic illness is a family concern and often includes frequent encounters with healthcare professionals. These encounters affect how persons with illness and family members handle everyday life. Disease‐related explanations are perceived by healthcare professionals as being of higher importance than the actual experience of illness, even though patients are concerned with issues involving their everyday life. Design A descriptive design with a qualitative approach. Methods Narrative family interviews were conducted with twelve families, using a qualitative content analysis. Results One main category was indicated following analysis, specifically “The impact of an accompanying family member.” Additionally, three subcategories were revealed; “The importance of collaboration,” “Mutual understanding,” “A desire to be confirmed in one's illness”. Conclusions and relevance to clinical practice Having a participating family member increased the sense of power in families during encounters with healthcare professionals. This participation constitutes a level of support, making it easier for families to handle everyday life due to illness. Family members are, in most cases, included in discussions and decisions, both before and after encounters, and it should be a natural for healthcare professionals to invite them to the encounter too. This is an offer that may not fit every family, but the person with illness or the family should at least have the opportunity to choose.

Suggested Citation

  • Liselott Årestedt & Carina Persson & Margareta Rämgård & Eva Benzein, 2018. "Experiences of encounters with healthcare professionals through the lenses of families living with chronic illness," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(3-4), pages 836-847, February.
    • Handle: RePEc:wly:jocnur:v:27:y:2018:i:3-4:p:836-847
    DOI: 10.1111/jocn.14126
    as

    Download full text from publisher

    File URL: https://doi.org/10.1111/jocn.14126
    Download Restriction: no
    File URL: https://libkey.io/10.1111/jocn.14126?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Anna Nygren Zotterman & Lisa Skär & Malin Olsson & Siv Söderberg, 2016. "Being in togetherness: meanings of encounters within primary healtcare setting for patients living with long‐term illness," Journal of Clinical Nursing, John Wiley & Sons, vol. 25(19-20), pages 2854-2862, October.
    2. Carina Persson & Eva Benzein, 2014. "Family Health Conversations: How Do They Support Health?," Nursing Research and Practice, Hindawi, vol. 2014, pages 1-11, April.
    3. Annette Nygårdh & Dan Malm & Kerstin Wikby & Gerd Ahlström, 2012. "The experience of empowerment in the patient–staff encounter: the patient's perspective," Journal of Clinical Nursing, John Wiley & Sons, vol. 21(5‐6), pages 897-904, March.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Patricia Marín-Maicas & Silvia Corchón & Leire Ambrosio & Mari Carmen Portillo, 2021. "Living with Long Term Conditions from the Perspective of Family Caregivers. A Scoping Review and Narrative Synthesis," IJERPH, MDPI, vol. 18(14), pages 1-22, July.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Anette Johnsson & Petra Wagman & Åse Boman & Sandra Pennbrant, 2018. "What are they talking about? Content of the communication exchanges between nurses, patients and relatives in a department of medicine for older people—An ethnographic study," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(7-8), pages 1651-1659, April.
    2. Susanna Pusa & Åsa Dorell & Christen Erlingsson & Helena Antonsson & Margareta Brännström & Karin Sundin, 2019. "Nurses’ perceptions about a web‐based learning intervention concerning supportive family conversations in home health care," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(7-8), pages 1314-1326, April.
    3. Birte Østergaard & Anne M. Clausen & Hanne Agerskov & Anne Brødsgaard & Karin B. Dieperink & Karen F. Funderskov & Dorthe Nielsen & Anne D. Sorknæs & Barbara Voltelen & Hanne Konradsen, 2020. "Nurses' attitudes regarding the importance of families in nursing care: A cross‐sectional study," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(7-8), pages 1290-1301, April.
    4. Inge Faarup & Jørgen T. Lauridsen & Karin Lütgen & Anni Nørregaard & Frantz Rom Poulsen & Birte Østergaard, 2019. "Do family health conversations impact patients with glioblastoma multiforme and their family members?," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(9-10), pages 1695-1707, May.
    5. Anette Johnsson & Åse Boman & Petra Wagman & Sandra Pennbrant, 2018. "Voices used by nurses when communicating with patients and relatives in a department of medicine for older people—An ethnographic study," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(7-8), pages 1640-1650, April.
    6. Helena Lööf & Unn‐Britt Johansson, 2019. "“A body in transformation”—An empirical phenomenological study about fear‐avoidance beliefs towards physical activity among persons experiencing moderate‐to‐severe rheumatic pain," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(1-2), pages 321-329, January.
    7. Gunilla Hollman Frisman & Ingrid Wåhlin & Lotti Orvelius & Susanna Ågren, 2018. "Health‐promoting conversations—A novel approach to families experiencing critical illness in the ICU environment," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(3-4), pages 631-639, February.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:wly:jocnur:v:27:y:2018:i:3-4:p:836-847. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Wiley Content Delivery (email available below). General contact details of provider: https://doi.org/10.1111/(ISSN)1365-2702 .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.