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The role of the family in supporting the self‐management of chronic conditions: A qualitative systematic review

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  • Lisa Whitehead
  • Elisabeth Jacob
  • Amanda Towell
  • Ma'en Abu‐qamar
  • Amanda Cole‐Heath

Abstract

Aims and objectives To explore the contribution of family members in promoting and supporting the self‐management of chronic conditions amongst adult family members. Background The prevalence of chronic disease continues to grow globally. The role of the family in chronic condition management and support for self‐management has received little attention. Design A systematic review of qualitative literature using the Joanna Briggs Institute approach for qualitative systematic reviews. Methods Ovid (MEDLINE, CINAHL and PsycINFO) were searched for the period of database inception—2016. The QARI (Qualitative Assessment and Review Instrument) critical appraisal instrument was used to assess the quality of each study. Using the Joanna Briggs Institute‐QARI data extraction tool, findings related to the family role in the self‐management of chronic conditions were extracted and each finding rated according to Joanna Briggs Institute‐QARI levels of credibility. Findings were categorised and synthesised to produce a final set of aggregated findings. Results Families were key in constructing an environment that was conducive to family engagement and support. Adaptation within the family included maintaining cohesion between family members, normalisation and contextualisation of the chronic condition. Conclusions Whilst evidence on the value of the family in promoting positive health outcomes is clear, research on how families can specifically support the self‐management of chronic conditions is emerging. Relevance to clinical practice Family adaptability has been found to be the most powerful predictor of carer depression. Families may need support to change their home and family organisation to adapt to the challenges they face overtime. Change in roles and subsequent adaptation can be stressful, even for those family members at a distance. Nurses working in hospital and community settings can play an important role in assessing how families are adapting to living with chronic illness and to explore strategies to cope with challenges in the home setting.

Suggested Citation

  • Lisa Whitehead & Elisabeth Jacob & Amanda Towell & Ma'en Abu‐qamar & Amanda Cole‐Heath, 2018. "The role of the family in supporting the self‐management of chronic conditions: A qualitative systematic review," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(1-2), pages 22-30, January.
    • Handle: RePEc:wly:jocnur:v:27:y:2018:i:1-2:p:22-30
    DOI: 10.1111/jocn.13775
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    References listed on IDEAS

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    1. John Rolley & Janice Smith & Michelle DiGiacomo & Yenna Salamonson & Patricia Davidson, 2011. "The caregiving role following percutaneous coronary intervention," Journal of Clinical Nursing, John Wiley & Sons, vol. 20(1‐2), pages 227-235, January.
    2. Geralyn Hynes & Ann Stokes & Mary McCarron, 2012. "Informal care‐giving in advanced chronic obstructive pulmonary disease: lay knowledge and experience," Journal of Clinical Nursing, John Wiley & Sons, vol. 21(7‐8), pages 1068-1077, April.
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    Cited by:

    1. Immacolata Dall’Oglio & Giulia Gasperini & Claudia Carlin & Valentina Biagioli & Orsola Gawronski & Giuseppina Spitaletta & Teresa Grimaldi Capitello & Michele Salata & Valentina Vanzi & Gennaro Rocco, 2021. "Self-Care in Pediatric Patients with Chronic Conditions: A Systematic Review of Theoretical Models," IJERPH, MDPI, vol. 18(7), pages 1-24, March.
    2. Carina Hellqvist, 2021. "Promoting Self-Care in Nursing Encounters with Persons Affected by Long-Term Conditions—A Proposed Model to Guide Clinical Care," IJERPH, MDPI, vol. 18(5), pages 1-15, February.
    3. Paolo Iovino & Ercole Vellone & Nadia Cedrone & Barbara Riegel, 2023. "A Middle-Range Theory of Social Isolation in Chronic Illness," IJERPH, MDPI, vol. 20(6), pages 1-12, March.
    4. Ngai, Steven Sek-yum & Jiang, Shan & Cheung, Chau-kiu & Wang, Lin & Tang, Hon-yin, 2021. "Trust in mutual aid group members, self-management of chronic illness, and well-being among young patients with chronic illness in Hong Kong," Children and Youth Services Review, Elsevier, vol. 130(C).
    5. Patricia Marín-Maicas & Silvia Corchón & Leire Ambrosio & Mari Carmen Portillo, 2021. "Living with Long Term Conditions from the Perspective of Family Caregivers. A Scoping Review and Narrative Synthesis," IJERPH, MDPI, vol. 18(14), pages 1-22, July.

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