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Patient and Public Involvement in Sexual and Reproductive Health: Time to Properly Integrate Citizen’s Input into Science

Author

Listed:
  • Miguel García-Martín

    (Department of Preventive Medicine and Public Health, Faculty of Medicine, University of Granada, 18016 Granada, Spain
    Consortium for Biomedical Research in Epidemiology and Public Health (CIBERESP), 28029 Madrid, Spain
    Instituto de Investigación Biosanitaria (ibs.Granada), 18014 Granada, Spain)

  • Carmen Amezcua-Prieto

    (Department of Preventive Medicine and Public Health, Faculty of Medicine, University of Granada, 18016 Granada, Spain
    Consortium for Biomedical Research in Epidemiology and Public Health (CIBERESP), 28029 Madrid, Spain
    Instituto de Investigación Biosanitaria (ibs.Granada), 18014 Granada, Spain)

  • Bassel H Al Wattar

    (Reproductive Medicine Unit, Institute for Women’s Health, University College London Hospitals, London WC1E 6BT, UK
    Warwick Medical School, University of Warwick, Coventry CV4 7 AL, UK)

  • Jan Stener Jørgensen

    (Department of Obstetrics and Gynaecology CIMT-Centre for Innovative Medical Technologies Odense University Hospital, 5000 Odense C, Denmark)

  • Aurora Bueno-Cavanillas

    (Department of Preventive Medicine and Public Health, Faculty of Medicine, University of Granada, 18016 Granada, Spain
    Consortium for Biomedical Research in Epidemiology and Public Health (CIBERESP), 28029 Madrid, Spain
    Instituto de Investigación Biosanitaria (ibs.Granada), 18014 Granada, Spain)

  • Khalid Saeed Khan

    (Department of Preventive Medicine and Public Health, Faculty of Medicine, University of Granada, 18016 Granada, Spain
    Consortium for Biomedical Research in Epidemiology and Public Health (CIBERESP), 28029 Madrid, Spain)

Abstract

Evidence-based sexual and reproductive health is a global endeavor without borders. Inter-sectorial collaboration is essential for identifying and addressing gaps in evidence. Health research funders and regulators are promoting patient and public involvement in research, but there is a lack of quality tools for involving patients. Partnerships with patients are necessary to produce and promote robust, relevant and timely research. Without the active participation of women as stakeholders, not just as research subjects, the societal benefits of research cannot be realized. Creating and developing platforms and opportunities for public involvement in sexual and reproductive health research should be a key international objective. Cooperation between healthcare professionals, academic institutions and the community is essential to promote quality research and significant developments in women’s health. This cooperation will be improved when involvement of citizens in the research process becomes standard.

Suggested Citation

  • Miguel García-Martín & Carmen Amezcua-Prieto & Bassel H Al Wattar & Jan Stener Jørgensen & Aurora Bueno-Cavanillas & Khalid Saeed Khan, 2020. "Patient and Public Involvement in Sexual and Reproductive Health: Time to Properly Integrate Citizen’s Input into Science," IJERPH, MDPI, vol. 17(21), pages 1-12, October.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:21:p:8048-:d:438473
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    References listed on IDEAS

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    1. Caron-Flinterman, J. Francisca & Broerse, Jacqueline E.W. & Bunders, Joske F.G., 2005. "The experiential knowledge of patients: a new resource for biomedical research?," Social Science & Medicine, Elsevier, vol. 60(11), pages 2575-2584, June.
    2. Jo Brett & Sophie Staniszewska & Carole Mockford & Sandra Herron-Marx & John Hughes & Colin Tysall & Rashida Suleman, 2014. "A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 7(4), pages 387-395, December.
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    Cited by:

    1. Amira Bouzalmate-Hajjaj & Paloma Massó Guijarro & Khalid Saeed Khan & Aurora Bueno-Cavanillas & Naomi Cano-Ibáñez, 2022. "Benefits of Participation in Clinical Trials: An Umbrella Review," IJERPH, MDPI, vol. 19(22), pages 1-11, November.
    2. Juan Miguel Martínez-Galiano & Miguel Delgado-Rodríguez, 2021. "The Relegated Goal of Health Institutions: Sexual and Reproductive Health," IJERPH, MDPI, vol. 18(4), pages 1-4, February.

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