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A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities

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  • Jo Brett
  • Sophie Staniszewska
  • Carole Mockford
  • Sandra Herron-Marx
  • John Hughes
  • Colin Tysall
  • Rashida Suleman

Abstract

This is the first international systematic review to focus on the impact of PPI on the people involved in the process. The beneficial and challenging impacts reported highlight the importance of optimising the context and processes of involvement, so creating the potential for PPI to impact positively on the research itself. Copyright Springer International Publishing Switzerland 2014

Suggested Citation

  • Jo Brett & Sophie Staniszewska & Carole Mockford & Sandra Herron-Marx & John Hughes & Colin Tysall & Rashida Suleman, 2014. "A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 7(4), pages 387-395, December.
    • Handle: RePEc:spr:patien:v:7:y:2014:i:4:p:387-395
    DOI: 10.1007/s40271-014-0065-0
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    References listed on IDEAS

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    1. O'Donnell, Maire & Entwistle, Vikki, 2004. "Consumer involvement in decisions about what health-related research is funded," Health Policy, Elsevier, vol. 70(3), pages 281-290, December.
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    Cited by:

    1. Luisi, Daniela & Hämel, Kerstin, 2021. "Community participation and empowerment in primary health care in Emilia-Romagna: A document analysis study," Health Policy, Elsevier, vol. 125(2), pages 177-184.
    2. Kathryn Oliver & Annette Boaz, 2019. "Transforming evidence for policy and practice: creating space for new conversations," Palgrave Communications, Palgrave Macmillan, vol. 5(1), pages 1-10, December.
    3. Papoulias, Stan (Constantina) & Callard, Felicity, 2022. "Material and epistemic precarity: It's time to talk about labour exploitation in mental health research," Social Science & Medicine, Elsevier, vol. 306(C).
    4. Melvyn W.B. Zhang & Jiangbo Ying, 2019. "Incorporating Participatory Action Research in Attention Bias Modification Interventions for Addictive Disorders: Perspectives," IJERPH, MDPI, vol. 16(5), pages 1-11, March.
    5. Mathieu Ahouah & Monique Rothan-Tondeur, 2019. "End-Users and Caregivers’ Involvement in Health Interventional Research Carried Out in Geriatric Facilities: A Systematic Review," IJERPH, MDPI, vol. 16(16), pages 1-14, August.
    6. Modigh, Anton & Sampaio, Filipa & Moberg, Linda & Fredriksson, Mio, 2021. "The impact of patient and public involvement in health research versus healthcare: A scoping review of reviews," Health Policy, Elsevier, vol. 125(9), pages 1208-1221.
    7. Miguel García-Martín & Carmen Amezcua-Prieto & Bassel H Al Wattar & Jan Stener Jørgensen & Aurora Bueno-Cavanillas & Khalid Saeed Khan, 2020. "Patient and Public Involvement in Sexual and Reproductive Health: Time to Properly Integrate Citizen’s Input into Science," IJERPH, MDPI, vol. 17(21), pages 1-12, October.
    8. Andrea Fogarty & Zachary Steel & Philip B. Ward & Katherine M. Boydell & Grace McKeon & Simon Rosenbaum, 2021. "Trauma and Mental Health Awareness in Emergency Service Workers: A Qualitative Evaluation of the Behind the Seen Education Workshops," IJERPH, MDPI, vol. 18(9), pages 1-16, April.

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